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can we ask for a gluten free prescription for

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  • sophlowe45
    sophlowe45 Posts: 1,559 Forumite
    edited 13 May 2013 at 3:52PM
    is it possible to use alternatives rather than buying special gluten free stuff as it is expensive.

    Use rice, quinoa, millet, amaranth, buckwheat.
  • March2012
    March2012 Posts: 487 Forumite
    but also nice every so often to eat gluten free/wheat free paste adn some bread! though particulary in the brea dyou have to watch what other crap they put in it.
    sophlowe45 wrote: »
    is it possible to use alternatives rather than buying special gluten free stuff as it is expensive.

    Use rice, quinoa, millet, amaranth, buckwheat.
  • March2012
    March2012 Posts: 487 Forumite
    thanks for your input
    For those with Coeliacs who can't afford it. If you don't have Coeliacs, then the free Gluten Free prescription is a no-go.
  • Person_one
    Person_one Posts: 28,884 Forumite
    Tenth Anniversary 10,000 Posts Combo Breaker
    March2012 wrote: »
    thanks for your input

    You do understand the difference between a real diagnosis and one made by a lay person watching Youtube though, surely?

    If you have coeliac disease, you'll get the help you need. If you just prefer to eat gluten free and feel that there are health benefits (entirely possible I suppose, the placebo effect is powerful and not fully understood) then that's a choice you can make but not one that the NHS should be expected to fund for the rest of your lives!
  • podperson
    podperson Posts: 3,125 Forumite
    Ninth Anniversary 1,000 Posts
    I think it's great if it's made a difference to you and your family's health but unfortunately I can't see that you would be able to get a medical prescription for it without having an official medical diagnosis. I'm sure that there's a lot of food choices that people could make that might improve their health but sadly the overstretched NHS isn't going to help pay for them.
    Have you possibly looked into making your own gluten free bread, then you'll know exactly what's going into it.
  • Goose_Girl
    Goose_Girl Posts: 62 Forumite
    edited 13 May 2013 at 4:56PM
    I really don't see how you could get anything prescribed without a diagnosis. Simply believing the food is better is not good enough; fruit and veg would be available on prescription.
    I wish coeliac/gluten intolerace simply caused spot and growing pains. Give me that any day of the week! And my test for coeliac came back negative, meaning IBS will probably be my diagnosis when I next check in with the doctors.

    General health is our own responsibility and the NHS is really there for medical conditions. Your situation really sounds like it is the former I'm afriad.

    ETA:
    If you believe you have Coeliac disease and have sufficient reasons that a doctor sends you for blood tests, then results can be negative because the villi aren't damaged enough in the intestines. If diet modifications have been made, you need to go back to a gluten containing regular diet for at least six weeks before the tests, but I expect YouTube covered that ;)
  • LadyMorticia
    LadyMorticia Posts: 19,899 Forumite
    Part of the Furniture 10,000 Posts Name Dropper Photogenic
    Goose_Girl wrote: »
    I really don't see how you could get anything prescribed without a diagnosis. Simply believing the food is better is not good enough; fruit and veg would be available on prescription.
    I wish coeliac/gluten intolerace simply caused spot and growing pains. Give me that any day of the week! And my test for coeliac came back negative, meaning IBS will probably be my diagnosis when I next check in with the doctors.

    General health is our own responsibility and the NHS is really there for medical conditions. Your situation really sounds like it is the former I'm afriad.

    ETA:
    If you believe you have Coeliac disease and have sufficient reasons that a doctor sends you for blood tests, then results can be negative because the villi aren't damaged enough in the intestines. If diet modifications have been made, you need to go back to a gluten containing regular diet for at least six weeks before the tests, but I expect YouTube covered that ;)

    The part in bold is what happened to me. I had alot of the Coeliac symptoms but the tests were negative (I was eating gluten at the time and hadn't changed my diet) so I was diagnosed with IBS with gluten as a trigger. Sure, Gluten-Free food is expensive but I don't expect to get it on prescription because I'm not eligible for it and I'm okay with that.
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  • Caz3121
    Caz3121 Posts: 15,874 Forumite
    Part of the Furniture 10,000 Posts Name Dropper
    edited 13 May 2013 at 5:14PM
    Goose_Girl wrote: »
    If diet modifications have been made, you need to go back to a gluten containing regular diet for at least six weeks before the tests

    I have a severe reaction to wheat (feels like someone twisting a wide knife in my stomach often followed by sitting on the loo!) so do not eat it.

    I believe this is a wheat intolerance that agravates IBS so have excluded it and eat mostly gluten free. Was told that for a coeliac testing I would need to reintroduce it for 6 weeks which I was not prepared to put myself through (for the sake of a prescription for gluten free bread and pasta)

    I buy spelt artisan bread on the odd occasion or make my own and find wheat free pasta etc easy to buy in M&S or supermarkets. Buy pizza bases etc and make my own. Buying all the "gluten-free" branded products can be expensive when they are alternatives to traditional gluten items but there are many things that can be eaten by anyone

    As far as my IBS goes I bought this book which has really helped me. I went through months of being up every night feeling nauseous and diahorrea about twice a week (even with a controlled diet) and since following some simple tips, including some breathing exercises, I have been symptom free for over a month (long may it continue)
    http://www.amazon.co.uk/Irritable-Bowel-Solutions-essential-treatments/dp/0091917069
  • Doves Farm do gluten free flour (I get in tesco), and I use it to make flat breads, cakes, and pizza base.
  • Goose_Girl
    Goose_Girl Posts: 62 Forumite
    Caz3121 wrote: »
    I have a severe reaction to wheat (feels like someone twisting a wide knife in my stomach often followed by sitting on the loo!) so do not eat it.

    I believe this is a wheat intolerance that agravates IBS so have excluded it and eat mostly gluten free. Was told that for a coeliac testing I would need to reintroduce it for 6 weeks which I was not prepared to put myself through (for the sake of a prescription for gluten free bread and pasta)

    I buy spelt artisan bread on the odd occasion or make my own and find wheat free pasta etc easy to buy in M&S or supermarkets. Buy pizza bases etc and make my own. Buying all the "gluten-free" branded products can be expensive when they are alternatives to traditional gluten items but there are many things that can be eaten by anyone

    Horrible isn't it. I was lucky that I was tested before exclusionary diets, but since it was early on in my symptoms I may not have had the damage for it to show. I won't reintroduce it now in anything but small amounts rarely.

    And absolutely yes, a lot of normal food is perfectly safe to eat. For example, without an allergy oats are fine even if processed in the same place as wheat products as the trace amounts are small enough.

    That spelt bread sounds good! Is it from a local place or supermarket bakery?
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