Nice people thread part 8 - worth the wait

zagubov

LydiaJ wrote: »

Poor little DS. Hope he gets over it soon and nobody else catches it.

(Am envious of job where you can take time off to look after your kids when they are ill.)



Sue, this is totally unacceptable. I really feel you need backup here. Is there anyone at the local authority you can complain to, who can beat the school with a big stick for you? Or some kind of ASD charity who could provide you with a free advocate-type person?

There's been a long pattern of you complaining to the school and them ignoring you, and of the school quite simply failing to fulfil its obligations to Youngest. There is no indication that the school are going to get any more cooperative if you keep complaining by yourself in the way that you have been doing, and the time has come (or is in fact overdue) for the pressure on the school to be stepped up considerably.

Even if you can't get anyone with clout to back you up, can you get hold of the text of DS's statement, plus the equalities or SEN policies of the school, to demonstrate exactly where they are failing to do what they are contracted to do? In my own case, I got nowhere complaining to the inactive coroner about the lack of progress towards an inquest date until I quoted the coroner's charter at the coroner's office, threatening to make an official complaint unless the stuff mentioned in the charter was done. Remarkably soon, things started to progress.



Yes. Do it. Immediately.

What Lydia said.

lostinrates

Ok. On another subject,


London based npeople.

I think I have decided but never blind to the wealth of knowledge here I though I might canvas other opinion on a restaurant.

Requirements...central. Think knightsbridge / green park to say barbican. But west is best!

Not too expensive ( footing the bill for others). Not too formal ( I want to wear flats and no ties). Preferably not to bland atmosphere (romance not required) Light food...not Italian, Indian, Chinese or French......something like mezze, maybe tapas would be superb because then I can pick without looking freakish. but other options ok too. just so long as there is light food. ( and something not spicey....my medication) A friend's Spanish restaurant is a possible and a restaurant of a friend of the family but don't want either to feel they should discount so I am wary of those. Open to all opinion.

GDB2222

lostinrates wrote: »

I am seriously thinking now about enquiring about a blue badge having resisted all this time. Ironically, this comes as I feel better for pain than I have done for ages and ages and ages.

I was shocked by how exhausted I got shopping though and at one point had a bit of a panic I was too exhausted to make it back to the car. I realise that part of the reason I am not going out is because I can handle either the going or the out, but both together are too much.

When you fill out the form, you need to put your condition at its worst rather than on an average day.

lostinrates

GDB2222 wrote: »

When you fill out the form, you need to put your condition at its worst rather than on an average day.

But on its worst I don't go out. No option to. .

I'm really conflicted because I have resisted for so long and seems perverse to do it when things seem better rather than worse. But I do think it could increase my access to things significantly.

tomterm8

You should write down your condition at its worst. You don't always have a choice when you go out (e.g. for medical appointments) and the badge can be used by someone else when they drive you if you aren't fit enough to drive yourself.

lostinrates

PasturesNew wrote: »

Some test that they have developed that tells your age - it thinks I am 30.

http://kgajos.eecs.harvard.edu/ag/

I don't think this loads on macputers . On the plus side I don't get to find out I am twice the age of my years.

LydiaJ

lostinrates wrote: »

But on its worst I don't go out. No option to. .

I'm really conflicted because I have resisted for so long and seems perverse to do it when things seem better rather than worse. But I do think it could increase my access to things significantly.

But even at your worst you might need to be driven somewhere - the doctor or hospital, even. And if you were, you'd need that blue badge. If you really can't bring yourself to put down just your description of the worse, then put "Sometimes [description of completely unable to get out of bed etc] but occasionally [description of worst condition in which you might possibly try to go out if you had a blue badge]."

Do it now while you have the drive and energy to sort it out, so that if and when you feel worse, it will already be in place. Besides which, you are better at the moment, and you still found your most recent trip scarily exhausting. There is no reason for you to be (a) not going out because you can't cope with the walk from a normal parking space to where you need to be, or (b) trying to cope without the badge and ending up with panic attacks, exhaustion, making yourself worse etc.

Blue badges are for people whose health issues make getting about on foot harder and/or more tiring than it is for other people, so that a close parking space makes a real difference. That describes you, so get one.

LydiaJ

lostinrates wrote: »

I don't think this loads on macputers . On the plus side I don't get to find out I am twice the age of my years.

Doesn't load for me on laptop either.

lostinrates

tomterm8 wrote: »

You should write down your condition at its worst. You don't always have a choice when you go out (e.g. for medical appointments) and the badge can be used by someone else when they drive you if you aren't fit enough to drive yourself.

Hehehe, I cancel things if I am too ill. Including medical apps. .

Hey, I cancel medical apps when I am well enough to go but I'll enough to need them....:D. When I am at worst I don't drive. I stay in or if convenient someone else takes me. If some one else takes me they can drop me at the door and come back at the end if need be. S they don't need a badge but would take a space someone who does might.

I am being difficult btw, because I am doggone tired.

LydiaJ

lostinrates, just get the wretched badge.

If your vision goes in both eyes or something, you might need the person driving you to wherever it is to come in with you straight away instead of driving some distance to park.

On the days you are not bad enough to need it, you don't have to use it if you feel it would be fairer not to. You can still choose to park further away even if you own the badge. It opens up options and has no disadvantages.

On another topic... After several attempts I got that site that Pastures mentioned to load. It thinks I'm 30 as well.