Why Is There Not Much Help For Binge Eating Disorder (and if there is, where is it?)

oopsadaisydoddle

daska wrote: »

Well... That explains a lot!

One bit of advice that you really must listen to. If it is ME/CFS then you have to play it canny. If you want to beat this you have to reduce your energy expenditure to the minimum needed to avoid crashing and keep it there until you know you're stable. Then you can start doing more. Unfortunately, as I know all too well, kids and ME are a bad combination (DS2 has ASD and sensory processing problems). There is a 'spoon theory' which helps to explain the limitations of energy but I have to say I don't like much, I think it's more like having a lunch allowance that never pays for a full meal so you have to take out a loan at 100% interest per day.

Thanks! That's quite a good explanation!

I don't want to do too much too soon, because I know from experience that that just causes a whole host of problems.

My aim though is somehow to try and get some semblance of 'normality' - being able to go for a walk in the woods with the kids without having to have a marathon snooze afterwards!! I hate feeling like I'm always 'whinging' about something - honestly if i had a £ for every time I'd said to Mr Oops, I feel ill - well I wouldn't need to be an MSE'r because I'd be rich!!!

Doc said not a lot can be done but to keep a diary of how it goes and then go back and we can look to see if we can improve. He mentioned CBT is sometimes useful and gradual exercise(?).

I still haven't done that lunch - must move!!

daska

Cognitive Behavioural Therapy = think yourself better. It's really about finding ways to do things rather than avoiding them. I've done some CBT, though admittedly not for ME, and TBH I'm not convinced.

Graded Exercise Therapy? The whole premise is that you take yourself back to doing so little that you never crash and then gradually add in additional things one step at a time. So that might be, depending on severity, upping from not brushing your hair to giving it one stroke with a hairbrush, or walking for 3 minutes instead of 2 etc. Not easy to manage it to that degree with kids! Muuuuuummmmm! Where's my ...../ I want a ...../ You know I've got to go to .... LOL

I'm well past the point of being able to walk in the woods but that's probably the thing I miss most, so we'll go to somewhere with paths that are good enough for my mobility scooter. And by not trying to walk I have more energy for other things and less brain fog. The best I've felt in the last 6 years was when I had meningitis and was forced to spend a week confined to bed - I felt amazing by the end of it (relatively speaking LOL)

oopsadaisydoddle

Thanks again.

I suppose I shall just have to listen to my body.

I always get aches in my neck and shoulders when brushing/drying my hair and I've always thought it strange. I can manage it but have to rest half way through - especially when using the hairdryer. I kind of just put it down to being part of how I am.

The only thing I'm still a tad unsure of is whether it could actually be a side effect of the Citalopram because a lot of the symptoms are the same. I have had a lot of the symptoms (brain fog, dizziness, sickness, the pain in my neck shoulders and of course, the fatigue) since before I even touched the Citalopram but maybe this has exacerbated the problem.

Whatever it is certainly explains a lot of my ailments!!

Like I said, I am just happy that it has been identified. Like there is an actual real reason for it and I am not just going mad or am lazy! I am going to gradually reduce the Citalopram though to see if it helps. That would be a bonus!

heartbreak_star

Check with your doc before reducing any medication!!

HBS x

oopsadaisydoddle

heartbreak_star wrote: »

Check with your doc before reducing any medication!!

HBS x

The doc suggested it!x

heartbreak_star

Ahh good! I hate it when docs don't even think about reducing medication - at one point my Gran was on so much she rattled and half of them contradicted each other!

She moved to a new doc and the first thing he did was review her prescription, lol!

Good luck

HBS x

Jox

Hi oopsa, it's been exactly a month since you started the thread, it's good that you have a diagnosis and some ideas about what to do.

I too feel exhausted all the time and going to work is real mission for me (I do it purely for the money).

At the weekend I just want to lie in bed. My husband won't let me wallow there, though I would love to. I don't have the energy to get up, get dressed, put my make up on, go out, though I force myself to (I understand that there are people in worse situations than me and with worse health issues).

I always think it's related to anaemia for me and not eating healthily enough. But I don't know for sure.

I can't imagine having the energy to be pregnant and commuting on the underground in London and working, I think that would finish me off, probably why I've not had children so far, though I would love to have some!

Probably for me, I need to find a local part time job so I don't have to take 3 trains to work and try to work within my limitations, things are hard they way they are!

Hope you can get some help at home and more understanding from your family now that you've had the diagnosis x

oopsadaisydoddle

Jox wrote: »

Hi oopsa, it's been exactly a month since you started the thread, it's good that you have a diagnosis and some ideas about what to do.

I too feel exhausted all the time and going to work is real mission for me (I do it purely for the money).

At the weekend I just want to lie in bed. My husband won't let me wallow there, though I would love to. I don't have the energy to get up, get dressed, put my make up on, go out, though I force myself to (I understand that there are people in worse situations than me and with worse health issues).

I always think it's related to anaemia for me and not eating healthily enough. But I don't know for sure.

I can't imagine having the energy to be pregnant and commuting on the underground in London and working, I think that would finish me off, probably why I've not had children so far, though I would love to have some!

Probably for me, I need to find a local part time job so I don't have to take 3 trains to work and try to work within my limitations, things are hard they way they are!

Hope you can get some help at home and more understanding from your family now that you've had the diagnosis x

I used to only work 16 hours over 2/3 days and I upped them recently to 20 over 4 days. I have found since doing this, things have gotten considerably worse.

I get up at half six, do th kids' things, like breakkie, making sure they get uniformed, teeth, face, hair etc. as well as sorting me out. I then do the school run and go straight to work. I have an office job which I love but sometimes as soon as I get to work, I feel like putting my head on the desk and going to sleep. I often feel like I am not actually there in mind, and although my performance is always good enough, I often feel like I'm capable of better yet physically/mentally can't push it.

I then finish at 2:30 and get the kids and then it's home for the whole "mum, I need a drink, Mum I'm hungry, Mum can we do this/that/te other". And I know that's a normal part of being a mum but sometimes I get so exhausted, I am close to tears. My favourite past time with the kids is going to in an indoor play area where I can sit and watch them while I have a coffee. Just the thought of running around after them in the park, tires me out!!

Being a mum is tiring but it is the best! I hate always telling them I feel too tired to sit on the floor to do puzzles (although i try). I often feel like a bad mum because of it. It would be great if it was just the Citalopram but I suspect it is more than that - we shall see!

daska

And if it's CFS/ME and you were already struggling then you should have been reducing rather than increasing your hours. If cutting down the dose doesn't work has the GP suggested the possibility of trying something other than citalopram to check whether it is the side-effects?

oopsadaisydoddle

daska wrote: »

And if it's CFS/ME and you were already struggling then you should have been reducing rather than increasing your hours. If cutting down the dose doesn't work has the GP suggested the possibility of trying something other than citalopram to check whether it is the side-effects?

He didn't really say, but I suppose if I reduce it and have no ill effects mood wise then it won't matter but if it does affect me then I shall suggest trying something else. When I have reduced before, my anxiety usually pops up a little more so it's hard to tell.

DH is home early and i asked him to pick kids up because if I go, I feel sick and tired when I get back so it's like a little holiday for me when someone else does it - anyway he wasn't very enthusiastic but went. It's this attitude that makes me feel like a burden. I mean, I could have gone myself but it is so much better if i don't. Now I can conserve my energy and make tonight's meal.