Sack Atos Healthcare Immediately Please take a look.

Mrs_Arcanum

If ATOS actually looked at the evidence for those with a decent medical history and put them straight through to the Support Group, they might, have time to really catch the genuine shirkers. However, when they can claim someone deaf from birth can hear because they responded to the call on the tannoy (due to being prompted by their carer) there is no hope.

seven-day-weekend

[QUOTE=Invalidation;50528941]Whatever makes you think I dont feel good about myself?

If I didnt feel good about myself I would have topped myself years ago, after realising the system doesnt care or work.

And if you think that by changing one's Nicname makes one feel better, I would suggest you dont understand the problem. (Apart from the fact that Ive had that nic since Demon Internet first started, years ago)[/QUOTE]

Becuse you wrote:

I now simply exist, waiting to die. No one cares (other than my wife)

As regards changing the username, it seems very negative to define yourself by such a depressing name, it said to me that you saw yourself as being worthless.

If all this is too much amateur psychology and I am wrong, then I unreservedly apologise.

sunnyone

Mrs_Arcanum wrote: »

If ATOS actually looked at the evidence for those with a decent medical history and put them straight through to the Support Group, they might, have time to really catch the genuine shirkers. However, when they can claim someone deaf from birth can hear because they responded to the call on the tannoy (due to being prompted by their carer) there is no hope.

They changed the rules earlier this year to mean that even for those totally deaf since birth who are therefore without speech dont even pass the medica on that alone, never mind go into the support group as they can read and write, the same goes for totally blind people, they fail because they can hear.

Oldernotwiser

Invalidation wrote: »

You really dont understand do you?

Ive been 'Officially' disabled since 1993 yet once told I was 'Disabled for life' I was, to all intents and purposes, dumped by the system. No interest, follow ups or 'Continuing Care' offered.
"Theres nothing we can do" I was told, patted on the head and had my meds changed and in the last 6 years after moving to my new address, Ive seen the Doctor twice, I cant even remember the last time. And I cant even change my Doctor as all others are out of my area.
I havent had a 'sick note' since 1994.

I now simply exist, waiting to die. No one cares (other than my wife) except to try and snatch back some money off me soon.

My husband is in the later stages of emphysema and, like you, there's very little that can be done for him. However, he still still sees his GP regularly to check his condition and the various other conditions that go alongside it.

You have to be proactive in seeking out good medical care and accessing any new treatments available, especially if you receive disability benefits that would pay for you to do so.

Just because people disagree with you doesn't mean that they don't understand.

ETA

I know we're not supposed to offer medical advice here but I wonder whether you've seen your GP for help with depression? Many people with chronic conditions find that medication for this helps them to cope.

rogerblack

Oldernotwiser wrote: »

My husband is in the later stages of emphysema and, like you, there's very little that can be done for him. However, he still still sees his GP regularly to check his condition and the various other conditions that go alongside it.

You have to be proactive in seeking out good medical care and accessing any new treatments available, especially if you receive disability benefits that would pay for you to do so..

And this is not the case for all.
I'm keeping up with the latest research into CFS, to the point of reading various medical journals occasionally for any relevant research into treatments.

There is no new treatment currently available.
Going to see my doctor - and often spending a couple of days recovering from the trip - means that I get even more behind with the things I'm already neglecting.

eskimo26

rogerblack wrote: »

And this is not the case for all.
I'm keeping up with the latest research into CFS, to the point of reading various medical journals occasionally for any relevant research into treatments.

There is no new treatment currently available.
Going to see my doctor - and often spending a couple of days recovering from the trip - means that I get even more behind with the things I'm already neglecting.

I'm having some success with the Perrin Technique but not sure i could recommend it for your level of CFS. I would say a good relaxation cd is indispensable for CFS, the one from the Sutton st Heliers team is very much recommended and should still be available on their website.

As for ATOS their software isn't fit for purpose and everything hinches on it so the rest is a moot point. The term accuracy is most certainly a joke.

flight747

sunnyone wrote: »

They changed the rules earlier this year to mean that even for those totally deaf since birth who are therefore without speech dont even pass the medica on that alone, never mind go into the support group as they can read and write, the same goes for totally blind people, they fail because they can hear.

That's a load of rubbish. I was anixous and frustrated, angry for my two hearing aids (digital hearing aids) and doesn't help me at all, cannot hear at all. Very dangerous to walk on the street, exspecially most peoples ride a motorbike behind me and I could get killed off or someones who can mugged me behind. I was awards 27 points because of deafness since birth, hearing aids no help at all, can't speak well, cannot communcation with every days life with hearing world, doctors, hospital, dentist, bank, shops etc. Cannot write due to poor english. ATOS award me 27 points and on support group for 3 years last month.

Oldernotwiser

rogerblack wrote: »

And this is not the case for all.
I'm keeping up with the latest research into CFS, to the point of reading various medical journals occasionally for any relevant research into treatments.

There is no new treatment currently available.
Going to see my doctor - and often spending a couple of days recovering from the trip - means that I get even more behind with the things I'm already neglecting.

As my husband can do very little except sit and read, there's very little for him to get behind on!

simplydevine05

Thought I would just follow up to my last post. Within eight days of my ATOS visit I had received a dla payment and received not one, but two letters from the dwp, one stating they were sorry for the delay and they would look at my case asap and the other with the decision! Granted I got a lower tier for care than I expected but after reading the letter I understood why and that was not down to anyone's fault.
At the end of the day there will be many people who need the financial support more than I, but I am very grateful for what I've got. Besides, it means this morning I have been able to employ a cleaner as my poor boyfriend is struggling to look after me, my three year old, his full time job AND the cleaning! Bless his heart cos my goodness does he try his hardest!

My best wishes are sent to those who are in for the long haul. In a way I have been rather lucky and I have had the time to set up a part time business should I not be able to return to work. I even told the ATOS doctor about this and I think a lot of them are experienced enough to see when someone is genuine. Of course I'm not condoning those who have reported inaccuracies as it messes lives up and disabilities are hard enough let alone the added stress of financial difficulties.

Take care everyone!

Kirsty

Invalidation

Oldernotwiser wrote: »

My husband is in the later stages of emphysema and, like you, there's very little that can be done for him. However, he still still sees his GP regularly to check his condition and the various other conditions that go alongside it.
You have to be proactive in seeking out good medical care and accessing any new treatments available, especially if you receive disability benefits that would pay for you to do so.

My main problem is, my Doctor simply doesnt care, and because we are rural, there is no other Surgery in the area. He knows I cant visit him and simply doesnt bother to check on how I am. Hopefully the new rules might change this.
My other problem is, that I have a degenerative condition and was told back in 1994 that any operation to ease the problem could possibly make it much worse and the surgeon recommended it be left as it is. I asked my Doctor when I saw him last, (cant remember when) about re-asessing my condition and his reply was "Whats the point, you have a degenerative condition, that description says it all"
I have effectively been dumped by the system and theres little I can do about it.

Oldernotwiser wrote: »

Just because people disagree with you doesn't mean that they don't understand.
.

The other person didnt disagree with me, they suggested that by changing a nicname I have had for over 15 years would make me feel better?? As if !

I'm now actually quite positive, now I know about Dignitas, and I have some funds put away for that when the time comes.

However I'm quite interested in whats going to happen to me with respect to ATOS and my re-assessment if it ever comes. As I mentioned previously elsewhere, there is a possibility in me challenging the Government in the ECHR on re-assessing those people who were classified as 'Disabled for Life'. Im certainly going to make some Minister question why they took the job if I get a chance to get my teeth into it (gums actually, I had to pull my own teeth out)