Nice people thread part 4 - sugar and spice and all things

PasturesNew

wageslave wrote: »

I assume you are really fond of them

Were they wonderful to you when you were a embryo/toddler/teenager?

No, but you can't turn your back can you??

No. See answer 1.

There's a certain duty one has in life... and it's not a time to be selfish.

neverdespairgirl

PasturesNew wrote: »

Aspies don't touch people

I thought one of your parents was also an Aspie? And there you and your siblings are.....

PasturesNew

neverdespairgirl wrote: »

I thought one of your parents was also an Aspie? And there you and your siblings are.....

Don't be dirty

silvercar

Painting: paint brush tied to a broom handle. Remember the further from the eye the painting is, the less detial and so mistakes will be noticed.

PN, I do feel sorry for you. Make the most of every questioning opportunity. No harm is asking for an email address so that you can ask questions privately.

I've got the opposite problem, parents are the only ones that can speak to the doctors, so info comes second or third hand and is misinterpreted along the way. One only hears the positive stuff and the other only listens for gloom and doom. So GP makes casual point, "if the body can take the chemo" (and I don't know what that was in response to) and we get told that there is no hope as he won't be able to have chemo. So for 24 hours we think that this is it, no treatment possible, the end.

Then the results come through and he is being transferred to the care of a different hospital consultant and having a meeting the very next day to discuss the different chemo options available.

All upsetting, worrying and frustrating.

At the moment on the private vs NHS debate, I'm voting private. On the NHS he would be waiting the 3-4 weeks the GP quoted for an ultrasound. That was 2 weeks ago, private it was the next day. Since then he's had a liver biopsy, seen two different cancer consultants and got a treatment plan. Steroids start now, chemo next week. On the NHS he still wouldn't have had the scan!

Plus, and I find this unbelievable, as well as a BUPA specialist cancer phone number to chat to whoever when needed, he can have chemo at home attended by a specialist BUPA nurse rather than go to the hospital.

Results still not good - enlarged liver which is now a bit uncomfortable plus primary identified as coming from bowel, though not large enough to see on scan.

Consultant said (allegedly) 75% chance of success - so that seems good in the circumstances.

GDB2222

Silver. You ought to ask parents whether they perhaps should go for a full body scan. If the primary is in the bowel and there's a secondary in the liver that's big enough to cause problems, there may be other secondaries. Sorry to be so depressing.

GDB2222

BTW, private care is great for this sort of thing. If your parents have paid for BUPA, use it.

silvercar

GDB2222 wrote: »

Silver. You ought to ask parents whether they perhaps should go for a full body scan. If the primary is in the bowel and there's a secondary in the liver that's big enough to cause problems, there may be other secondaries. Sorry to be so depressing.

He's had liver biopsy, abdominal ultrasound and some sort of CT scan. Don't know if that covers it all?

Plus they have to do this chemo as the first (and possibly only needed) attack; so if it was anywhere else the chemo should attack it??

Both consultants seem happy that it is contained to a small area of the bowel and liver.

Plus, they don't take advice - I queried why he was taking tamazepan and got told off. A couple of phone calls to the GP later (by them) and the GP had prescribed it to be taken if needed only. So that explained the drowsiness which they had put down to his body rather than the meds. Every time I question anything I'm told "the doctors know what they are doing"

SingleSue

I suppose I am lucky for that any important stuff like that, my parents insist I go with them so I can ask the right questions and take the right information in.....it was my mum insisting they told me or repeated what the prognosis was when dad had his strokes as she knew I wouldn't get hung up on a word but would take in all that was being said and would then know exactly what the bleddy hell was going on.

Hospitals scare them, I am used to them, they trust doctors, I am used to challenging them (if I hadn't when hubby was being admitted, he would have been going home in a box due to his fairly rare disorder), they get flustered and confused with all the jargon, I know the jargon and can think clearly.

No idea why I can be so unemotional but it certainly comes in handy at times.

GDB2222

silvercar wrote: »

Every time I question anything I'm told "the doctors know what they are doing"

That is a way of coping, isn't it? Abdicate responsibility to the medics.

lostinrates

PasturesNew wrote: »

LOL... kitchen chair. You're such a posh lot.

I've got a plastic garden chair. That'll have to do. Have to set out early in case we need 2-3 rests down the garden.

any chair that's light to carry. Posher than me, having garden furniture....we sit ona dog bed or just the grass

Chair technique worked well for me for a long while.:o:D