ESA & DLA Cancelled

richard9991

celinepatricia wrote: »

i can asure you that i am no troll.. Just somebody who is disappointed with they way the system in this country works..

not saying you are but op has not posted once since the op

Tehya

celinepatricia wrote: »

What about those people who are to ill to work but the ESA health care professional who done the medical assessment has lied. My husband has had major surgery for cancer and has been told that the cancer has metastisised to his lungs. He got 0 points.. how does that happen? He has been on the assessment rate for nearly a year now and his appeal wont be heard until at least April. What do the government think he is supposed to live off, keep warm with in this very cold weather? Everything isnt black and white you know!!

I can't beleive anyone, especially having read the above post, about your husband's diagnosis, would then say that you were wrong in evaluating his condition.

Getting zero points for a cancer that has metastisised to the lungs is totally bewildering to me but it seems to be happening such a lot, you only have to read the forums at breast cancer care and McMillan Support to see what's going on. People should not be made to fight for this especially at a time where extreme stress can have such a negative impact on the outcome of treatment.

celinepatricia: Sorry to read you've had problems with your husbands claim. If you're not already in contact with McMillan I highly recomend them. They can help with benefits and all sorts of other support. They have quite a good website too with a forum that's active and friendly.

dmg24

richard9991 wrote: »

not saying you are but op has not posted once since the op

I am guessing that posts #1 and #2 are actually the same person.

oldestrocker

sh1305 wrote: »

The numbers have stayed roughly the same since 1997.

Yes maybe they have, but those numbers relate to a time when getting DLA was a lot easier. Let us just say - the DWP were fairly relaxed with the rules.

I know for a certainty that to get either/or both HRC/HRM back in the middle/late 90's - there was never a medical involved. All you had to do was do a half decent job in filling out the DLA1 (parts 1 &2) make sure that your GP would back you up or other professional and you got it - and in many cases on a 'for life' basis.

Far too easy - there should be at least an independent thorough medical assesment carried out, not looking at the illness, but how that illness impacts on your life. Also maybe a GP report.

I see they have done away with the 'for life' awards - thank goodness. Nobody ever notified the DLA if they had any improvement!!

celinepatricia

Thank you Tehya, somebody with a bit of compassion on these forums.. We are in touch with McMillan nurses and we did have a benefits advisor fill in his form for ESA. She cannt understand it either, but, like you say, it seems to be happening to a lot of people.

sunnyone

GlasweJen wrote: »

Just re-jigged your post a bit, that assessment rate money is what he's supposed to be living on. ESA+HB+CTB etc is often more than some people earn working, you should be able to budget enough to pay your heating from ESA at the assessment rate.

Not everyone is on means tested benefits and your wrong to ASSUME that they are, the people who struggle the most are the ones with a bit saved over the many decades that they have worked and that means that they pay for everything and cant claim means tested benefits.

Youve worked for how long again and what help do you get again to work?

Your a kid, save a bit and then become to ill to work and then you might have the knowledge to insult celinepatricia, till then you dont have a clue, severly disable people like her husband are being kicked off ESA every day and my husband might be one of them next even thoug he has kidney failure (stage four and we are now looking at dialasis because of his heart conditions), endocrine system failure and he needs heart surgery soon (to name a few of his conditions) but he may be found fit tomorrow by a podiatrist or some other HCP who cant lick his 5 consultants boots, we even carry evidence of his ill health with us whenever we are out of the house so that we can hand it over to any medics when he takes ill, thats how ill he is but he failed a medical 18 months ago.

atrixblue.-MFR-.

celinepatricia wrote: »

What about those people who are to ill to work but the ESA health care professional who done the medical assessment has lied. My husband has had major surgery for cancer and has been told that the cancer has metastisised to his lungs. He got 0 points.. how does that happen? He has been on the assessment rate for nearly a year now and his appeal wont be heard until at least April. What do the government think he is supposed to live off, keep warm with in this very cold weather? Everything isnt black and white you know!!

im sure he would of been excempt from a medical! seek advice with a ben specialist at CAB!

GlasweJen

sunnyone wrote: »

Not everyone is on means tested benefits and your wrong to ASSUME that they are, the people who struggle the most are the ones with a bit saved over the many decades that they have worked and that means that they pay for everything and cant claim means tested benefits.

Youve worked for how long again and what help do you get again to work?

Your a kid, save a bit and then become to ill to work and then you might have the knowledge to insult celinepatricia, till then you dont have a clue, severly disable people like her husband are being kicked off ESA every day and my husband might be one of them next even thoug he has kidney failure (stage four and we are now looking at dialasis because of his heart conditions), endocrine system failure and he needs heart surgery soon (to name a few of his conditions) but he may be found fit tomorrow by a podiatrist or some other HCP who cant lick his 5 consultants boots, we even carry evidence of his ill health with us whenever we are out of the house so that we can hand it over to any medics when he takes ill, thats how ill he is but he failed a medical 18 months ago.

I've worked since I was 16 and I'm 24 now. I've also studied full time in between then and at one point had 2 jobs and was studying.

I score 27 points on the ESA descriptors, I probably score more but that's the definite can't be argued with ones. Just because I choose to go down the route of supported work does not mean that I am not disabled.

I claim DLA MC LM, WTC disability element, access to work pay for taxis and hearing aid batteries. I don't need to wait to become ill I already am. I have a syndrome that will kill me before I'm 35, if I'm really lucky I'll make it to 40. Don't dare assume that because someone is young then they can't understand disability issues.

ETA the only reason people can't claim income based benefits is because they already have a household income more than or equal to the minimum that the gov says they need to live on or they have savings. It's not like there are people out there who really only live on £65 a week for house, bills food and everything.

GlasweJen

I've had 17 heart surgeries btw most of them when I was younger but I've had a replacement bicuspid valve (2007) and then another one to iron out a kink in my inferior vena cava (2009), they use the T word now and then so that could be my next one but we'll see. Hope your husband gets through his ok. I think they're scarier for the family than they are for the patient (if that's a comfort). Us patients are usually quite ready for them when the time comes.

celinepatricia

GlasweJen wrote: »

I've worked since I was 16 and I'm 24 now. I've also studied full time in between then and at one point had 2 jobs and was studying.

I score 27 points on the ESA descriptors, I probably score more but that's the definite can't be argued with ones. Just because I choose to go down the route of supported work does not mean that I am not disabled.

I claim DLA MC LM, WTC disability element, access to work pay for taxis and hearing aid batteries. I don't need to wait to become ill I already am. I have a syndrome that will kill me before I'm 35, if I'm really lucky I'll make it to 40. Don't dare assume that because someone is young then they can't understand disability issues.

ETA the only reason people can't claim income based benefits is because they already have a household income more than or equal to the minimum that the gov says they need to live on or they have savings. It's not like there are people out there who really only live on £65 a week for house, bills food and everything.

Im very pleased for you that your employer is happy to let you carry on working in your job and that you are getting all the benefits that you are entitled to. Not everybody has that. The problem with losing the main breadwinners wages into the household is that this illness was totally out of the blue. All the income coming into the house is accounted for, so, when you suddenly loose the lions share of it what are you supposed to do, We have to pay the mortgage to keep a roof over our heads and that is what my wages pay for.