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ESA / Fibro / Want to scream

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  • Jock221
    Jock221 Posts: 160 Forumite
    Don't think corrupt is the right word but let's face it the job of the Doctors is to get people off benefits and it seems to be that the honest people are the ones that suffer and the chancers always come off better !! Why is that!! Saw an article about an amputee losing incapacity benefit I mean to say how could he have failed the capability report with no legs. I told the doctor I get my shopping delivered to the door , my report said regularly goes shopping and can carry a bag of spuds, where did spuds Come into it we grow our own I don't buy them .
  • Jock221 wrote: »
    Don't think corrupt is the right word but let's face it the job of the Doctors is to get people off benefits and it seems to be that the honest people are the ones that suffer and the chancers always come off better !!

    If only they all considered that part of their job description. My diagnosis went, "yes the rheumatologist has diagnosed clinical fibromyalgia, go claim your benefits". I don't want extra money, I want my life back. I'm on my third set of medication as previous ones did nothing to help, my doctor has now cancelled three appointments with me and I'm looking for a new surgery. In my case it seems that they diagnose, prescribe and then expect you to just plod off and learn to live with it. Not shocking when some do and fall into a routine of being ill.

    I'll keep on fighting to not stay this way. I don't do incurable, I want to be me again.

    The part about the chancers is so true. I know a friend who gets DLA, she's an over emotional teenager and has allowed to depression to take over. Instead of trying to find a way to live, she wears her disabled status like a badge. Saddens me, she could potentially live a full and normal life, I'd give anything for it. But she'd rather sit back and claim the money.
  • Jock221
    Jock221 Posts: 160 Forumite
    Yes you are so right. I know people who won't go for operations that would help them incase the condition gets better and they lose benefits how sad is that. It a wonderful society that awards 15 points on the capability assessment if you need alcohol before midday. My 23 year career is in ruins I was. Civil servant set up until retirement until fibro took over despite over a year of every treatment I get lyrica and told that's it we have nothing else just get on with it. Doctors now just treat you as a statistic.
  • Indie_Kid
    Indie_Kid Posts: 23,097 Forumite
    Part of the Furniture 10,000 Posts Combo Breaker
    Jock221 wrote: »
    Yes you are so right. I know people who won't go for operations that would help them incase the condition gets better and they lose benefits how sad is that.

    I would love to have an operation that would cure my disabilities. However, due to how complex my disabilities are, this isn't going to happen.
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  • Jock221
    Jock221 Posts: 160 Forumite
    I am sure you would and I give you all my sympathy . Isn't it so sad that people can be helped but too afraid of losing benefits and God forbid they might actually have to go to work.
  • sunnyone
    sunnyone Posts: 4,716 Forumite
    Tenth Anniversary 1,000 Posts Combo Breaker
    Im on Lyrica and its so much better than Gabapentin and while it still has many side affects (I do not have fibro but several disabilities) it is affective for nerve pain in a multi approach treatment plan.
  • Brassedoff
    Brassedoff Posts: 1,217 Forumite
    Jock221 wrote: »
    Yes you are so right. I know people who won't go for operations that would help them incase the condition gets better and they lose benefits how sad is that. It a wonderful society that awards 15 points on the capability assessment if you need alcohol before midday. My 23 year career is in ruins I was. Civil servant set up until retirement until fibro took over despite over a year of every treatment I get lyrica and told that's it we have nothing else just get on with it. Doctors now just treat you as a statistic.

    I cannot understand how people can do that. I thought if someone was marked as PRT (Patient Refused Treatment) or DNA (Did Not Arrive) that made immediate impact on their benefit. I was in hospital today and overheard the instance of one person not turning up for three appointments and therefore was discharged due to their own actions.

    I understand that this is one of main parts of qualifying for a sickness/disability benefit.

    Just before every operation (that I have had), I have been given the option of pulling out. Is this what you mention? Otherwise, I would have thought the patent would be discharged on the basis of refusing treatment.

    I might be wrong. I might be right.
  • Brassedoff
    Brassedoff Posts: 1,217 Forumite
    sunnyone wrote: »
    Im on Lyrica and its so much better than Gabapentin and while it still has many side affects (I do not have fibro but several disabilities) it is affective for nerve pain in a multi approach treatment plan.

    I take 200mg x 3 daily of Pregabalin (Lyrica) and you are right it does cut the neuro pain, but at £1.00 a tablet many Doctors will not prescribe it.
  • Jock221
    Jock221 Posts: 160 Forumite
    They can suggest treatment that may help but they cannot force you to hAve it. It would make your ears curl at the excuses people come up with to avoid surgery. It's the side effects of lyrica I can't function with it. Gives me nightmares and constantly wake up in a sweat. I have just had surgery for right hand carpal tunnel and my medication is so mixed up am on tramadol as well. Do you know if fibyomalygiA is recognised as being an Illness for incapacity I can't understand how I failed.
  • Brassedoff
    Brassedoff Posts: 1,217 Forumite
    Jock221 wrote: »
    They can suggest treatment that may help but they cannot force you to hAve it. It would make your ears curl at the excuses people come up with to avoid surgery. It's the side effects of lyrica I can't function with it. Gives me nightmares and constantly wake up in a sweat. I have just had surgery for right hand carpal tunnel and my medication is so mixed up am on tramadol as well. Do you know if fibyomalygiA is recognised as being an Illness for incapacity I can't understand how I failed.

    My wife had the same operation only a year after having C3,4 & 5 done. She took the eight weeks off as recommended by the surgeon and had a full recovery. Carpal Tunnel is only a minor operation done under local anesthesic, I waited the two hours for her in day surgery and the Neurosurgeon considered her case as a 3 in the 1-3 severity scale.
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