ESA / Fibro / Want to scream

pinkfluffythings

Sorry if this is in the wrong wee bit so please move it if it is.

This is going to be a long post so make a cuppa

September went for my second medical (work focus group after first medical). I was very unhappy with the way the medical went, the Doctor was putting words in my mouth and she was more interested in the next client that me, she did'nt even listen about how sore I am and I know she didn;t list all my medications.

Fast forward a few weeks, my Fibro has got worse, thanks to the Govenment cutbacks in NI insteasd of seeing a consulatnt withing 13 weeks its now 9 months for an urgent case. Nice.
I went privatly, much to my own GP's happiness. I now 110% have Fibro and I am being tested for Sero Negative Arthritis.

I have called the ESA line to see what the craic is with a decision, I apparently scored under 15 points but due to previously passing a medical it had went to a decision maker.

Called again yetserday, have been told I am fit to work (what a bloody joke, I can hardly wipe my a*se in the mornings) :rotfl: (have to laugh or do cry). Guy I spoke to was lovely, sending me out appeal forms which I received today.

So I have appealed it, requesting an oral tribunal (am I wise??) because I need to be properly listened to, Jesus if they could see me now they would know I was ill!.
I have wrote a letter of complaint to Medical Services in Belfast about the Doctor that preferred to have her tea break while assessing me.

Having some probs with housing benefit being paid to letting agent so called them, to be told out HB is suspended because my ESA has stopped and I need to write a letter to inform them that I am appealing it.
Does the endless fighting to prove you are sick ever stop?? I've spent most of the afternoon in floods of tears, my oh is away until later and its just me and the cats lol

I've started new medications which I know I can't list on this forum but I feel like I've had one too many Vodka's!

Does everyone have bad days like this were you just want to go to bed and hide?

[Deleted User]

An oral appeal is usually perhaps always the way to go.
As for meds i can sympathise as i take 17 different ones and they now want to add an 18th....

pinkfluffythings

woodbine wrote: »

An oral appeal is usually perhaps always the way to go.
As for meds i can sympathise as i take 17 different ones and they now want to add an 18th....

Oh goodness, 18! God love you x I actually feel slightly out of it now, walked up the hall a min ago and you would think I was drunk even though I'm Tea total now and never was a drinker.

Thank god for MSE or else my head would melt x

formaldehyde_perfume

I have sympathy with you, but I can't really offer any advice unfortunately. I hope you get these things sorted out soon.

sunnyone

fibros a hidden condition and if they can ignore 100% provable conditions without a second thought a hidden condition dosnt have a chance but your lucky, very, very lucky because NI dosnt have ATOS doing the medicals!

So you had more chance than us on the main land.

I hope your appeal goes ok, the oral hearing stnads a higher chance of you winning, as you say if they can see you (and ask you questions) you stand a better chances statistically than a paper hearing.

uolypool

Hi I have bad days where staying in bed under the duvet is a necessity.I had my medical at home after months of fighting for it,If you could call it a medical:mad:.I was asleep on the sofa when the Atos person got here, and my son had to wake me up.They looked at my meds and that was about it, seriously if they say anything about my mobility it will be a lie as they didnt ask me to stand , or even get off the sofa for that matter.I'm expecting a letter soon to say I am fit for work but I know that I am not , some days like you I cannot even manage to get out of bed let alone anything else and will sleep all day and night at times amongst other things.So I know I will have to appeal.So chin up you know yourself but it is a long hard road ahead for many of us I feel.I gain a feeling of support from people on this forum and I feel I have built up a pretty good online friendship with one particular member who has supported me via pm throughout my ESA journey so far.Without them I think I would have cracked a long time ago.

I_know_my_ABC_and_my_CMYK

victoria_p wrote: »

Sorry if this is in the wrong wee bit so please move it if it is.

This is going to be a long post so make a cuppa

September went for my second medical (work focus group after first medical). I was very unhappy with the way the medical went, the Doctor was putting words in my mouth and she was more interested in the next client that me, she did'nt even listen about how sore I am and I know she didn;t list all my medications.

Fast forward a few weeks, my Fibro has got worse, thanks to the Govenment cutbacks in NI insteasd of seeing a consulatnt withing 13 weeks its now 9 months for an urgent case. Nice.
I went privatly, much to my own GP's happiness. I now 110% have Fibro and I am being tested for Sero Negative Arthritis.

I have called the ESA line to see what the craic is with a decision, I apparently scored under 15 points but due to previously passing a medical it had went to a decision maker.

Called again yetserday, have been told I am fit to work (what a bloody joke, I can hardly wipe my a*se in the mornings) :rotfl: (have to laugh or do cry). Guy I spoke to was lovely, sending me out appeal forms which I received today.

So I have appealed it, requesting an oral tribunal (am I wise??) because I need to be properly listened to, Jesus if they could see me now they would know I was ill!.
I have wrote a letter of complaint to Medical Services in Belfast about the Doctor that preferred to have her tea break while assessing me.

Having some probs with housing benefit being paid to letting agent so called them, to be told out HB is suspended because my ESA has stopped and I need to write a letter to inform them that I am appealing it.
Does the endless fighting to prove you are sick ever stop?? I've spent most of the afternoon in floods of tears, my oh is away until later and its just me and the cats lol

I've started new medications which I know I can't list on this forum but I feel like I've had one too many Vodka's!

Does everyone have bad days like this were you just want to go to bed and hide?

Absolutely yes, and I have fibro too. I am struggling at the mo and dreading my DLA renewal next June, to the point it escalates my pain.

I hope you win the appeal

Jock221

Victoria just to reply I too saw the Doctor in Belfast in July took me off IB six months after I had been medically retired from my job of 22 years with fibromalygia,sero negative arthritis and an now just recovering from carpal tunnel surgery. My appeal was this month exactly 24 weeks no benefit of any kind they told me to apply for job seekerd and guess what they backed the computer operated robot doctor that looked about 15 years old and tried to thick me all ways my appeal failed and I am now applying for ESA it's the biggest joke ever. I scored 25 points last November and nil this time around they are not interested in anyone illness but specifically trained to save the government money to allow them to draw big salaries

victoria_p wrote: »

Sorry if this is in the wrong wee bit so please move it if it is.
This is going to be a long post so make a cuppa

September went for my second medical (work focus group after first medical). I was very unhappy with the way the medical went, the Doctor was putting words in my mouth and she was more interested in the next client that me, she did'nt even listen about how sore I am and I know she didn;t list all my medications.

Fast forward a few weeks, my Fibro has got worse, thanks to the Govenment cutbacks in NI insteasd of seeing a consulatnt withing 13 weeks its now 9 months for an urgent case. Nice.
I went privatly, much to my own GP's happiness. I now 110% have Fibro and I am being tested for Sero Negative Arthritis.

I have called the ESA line to see what the craic is with a decision, I apparently scored under 15 points but due to previously passing a medical it had went to a decision maker.

Called again yetserday, have been told I am fit to work (what a bloody joke, I can hardly wipe my a*se in the mornings) :rotfl: (have to laugh or do cry). Guy I spoke to was lovely, sending me out appeal forms which I received today.

So I have appealed it, requesting an oral tribunal (am I wise??) because I need to be properly listened to, Jesus if they could see me now they would know I was ill!.
I have wrote a letter of complaint to Medical Services in Belfast about the Doctor that preferred to have her tea break while assessing me.

Having some probs with housing benefit being paid to letting agent so called them, to be told out HB is suspended because my ESA has stopped and I need to write a letter to inform them that I am appealing it.
Does the endless fighting to prove you are sick ever stop?? I've spent most of the afternoon in floods of tears, my oh is away until later and its just me and the cats lol

I've started new medications which I know I can't list on this forum but I feel like I've had one too many Vodka's!

Does everyone have bad days like this were you just want to go to bed and hide?

dmg24

Jock221 wrote: »

Victoria just to reply I too saw the Doctor in Belfast in July took me off IB six months after I had been medically retired from my job of 22 years with fibromalygia,aero negative arthritis And just recovering from carpal tunnel surgery. My appeal was this month exactly 24 weeks withno benefit and guess what they backed the computer operated robot doctor that looked about 15 years old and tried to thick me all ways my appeal failed and I am now applying for ESA it's the biggest joke ever.

Perhaps you are fit for some work? The Tribunal is independent, they will make a decision based on all the evidence in front of them. If your IB claim has stopped, be aware that the chances of you receiving ESA post assessment are absolutely minimal.

KittyLady

I'm a fibro sufferer too, I haven't even attempted to claim though, too many horror stories of how they treat us.

dmg24

KittyLady wrote: »

I'm a fibro sufferer too, I haven't even attempted to claim though, too many horror stories of how they treat us.

Perhaps you should stop listening to stories and find out for yourself? Fibro is a variable condition, plenty of sufferers do qualify for ESA, but plenty of sufferers are also capable of work.