Its tough, it will get better and guess what its freezing brrrrr!

mardatha

Same think Kath. Is just easier to type ME for me

NualaBuala

HariboJunkie wrote: »

:rotfl::rotfl::rotfl: *runs and checks her tea towels.*



There once was a lady called Nuala
Who posted on MSE Old Style.
She was worried about her lack of Moola
And she hadn't cleaned up for a while.
But a wise old poster once told her
That the housework would wait till next day
To give herself a pat on the shoulder
The knitting will blow the cobwebs away.

xx

:rotfl::rotfl::rotfl::rotfl::rotfl:
I want to frame that! In a homemade OS frame of course! You are a poet and a philosopher and you have cheered me right-up HJ!:T
I hope your tea-towels pass muster.

mardatha wrote: »

Be careful with that NB, dont try to go too mad too fast. I spent the first year with ME fighting like hell to be better and get back to work "next week". I think now it just set me back another year. I'm relaxed about it now, if I'm having a bad day then I leave the house till the next day... no problems, it'll still be there ! Take care of yourself pet its not a nice illness xxx.

Ta Fred, I have read lots of warnings about the graded exercise so I won't let myself do too much. I have good days where I can do stuff and that's when I'm really in danger of overdoing it - I think the plan is that I don't use up all my reserves and just exercise a little tiny bit. I have spent the past 2 years trying to push through it and it got worse and worse. So now I will be sensible. Ish.

Katholicos, yes - I think they are the same thing but I read there is a whole issue about what to call it. I don't really care what it's called and like Fredartha says, it's easier to type ME! Take care of yourselves, the pair of you - it is a horrible thing.

charlies-aunt

katholicos wrote: »

After suddenly being taken serously ill 11 years ago, i've had many years of poor health, worsening as each year has passed. The rheumie i saw last month thinks i may have Chronic Fatigue Syndrome (amongst other things) is M.E the same thing or a different thing?

You are in luck with your Rheumatologist - I have RA & Leukopenia and feel constantly tired - mine tells me that my chronic tiredness isdue to my age/ all in my mind.... and tired? - I ought to try his job!

I had sudden onset too, literally overnight - contracted parvovirus which had its wicked way with my immune system :mad:

katholicos

charlies-aunt wrote: »

You are in luck with your Rheumatologist - I have RA & Leukopenia and feel constantly tired - mine tells me that my chronic tiredness isdue to my age/ all in my mind.... and tired? - I ought to try his job!

I had sudden onset too, literally overnight - contracted parvovirus which had its wicked way with my immune system :mad:

Oh poor you! Ive seen lots of neurologists with the same attitude as the rheumies you have seen...makes my blood boil. Getting to the car after an appointment with them and bursting into tears is an all too common occurance for me i'm afraid. Sadly, i know that many other sufferers feel the same. The rheuie i saw said it could be Fibromyalgia as well as CFS but wanted me to have blood tests to rule out any other illnesses. Haven't heard back about bloods yet so i am assuming they were ok.

I was suddenly struck down with sceptecemia, pneumonia and suspected meningitus (they treated me for meningitus though wouldn't specifically state it). Soon after that my lungs were not functioning right and i was diagnosed with chronic asthma and over the years there has been lots of other things ie: myalgia, chronic daily head and eye pain, debilitating frequent migraines and then panic attacks, anxiety and depression along with crippling and overwhelming tiredness, lethargy, pain in all areas of the body, numbness, tingling, involuntary twitching etc. I'm also borderline diabetic and have high blood pressure. What a healthy specemin i am eh?

Parvo virus is nasty! Isn't it incredible just how quickly and unexpectedly these sudden serious illnesses come on? One minute i was healthy (or thought i was....i was slim, energetic, beginning to get over a bad relationship/divorce and was looking forward to starting a new life. It hasn't exactly gone as i would have hoped, but i know there are people far worse off than me so i just get on with each day...nice to have a bit of a chinwag about it on here though

Nuala and Mardatha, thanks for replying/responding.

Look after yourselves dear ladies!

NualaBuala

charlies-aunt wrote: »

You are in luck with your Rheumatologist - I have RA & Leukopenia and feel constantly tired - mine tells me that my chronic tiredness isdue to my age/ all in my mind.... and tired? - I ought to try his job!

I had sudden onset too, literally overnight - contracted parvovirus which had its wicked way with my immune system :mad:

That sounds really rough, Charlies Aunt. Grrrr ... lots of Docs just don't believe in it STILL! :mad:

Thanks katholicos - you sure have gone through hell. I cried after leaving the 2nd GP in my practice who didn't believe in it. At least they referred me on to a rheumie though,

Well hugs to you all and take good care (and to everyone else here lurkers (who are probably wondering if they have stumbled onto some old crocks' thread) and posters alike. xxx

Hardup_Hester

Hugs to all those with illnesses, I'm not sure if the Dr's don't believe or if it's just a cop out, I rarely go to the Dr's but when I do whatever is wrong is blamed on my age & if it isn't caused by my age, last year I had an ear infection & my eardrum burst, they won't treat it, because of my age!
No wonder times are getting harder, we're expected to work til we are 68, but at 50 the Dr's place us on the scrap heap.
Rant over, lol.
Hubby's getting a payrise at Christmas & in February, but we are no better off, they will just replace the drop in my wages, but not help towards the increases in money we pay out. Petrol here has gone up a penny a day since Monday when it was £1.12 to £1.16 this morning, still I did get 6 day's meals & soup from a £2.59 chicken on Sunday.
Hugs Hester

ceridwen

Hard-UP Hester

You wouldnt believe how young I was when a doctor told me an illness was "your age":mad:. I took appropriate action though - I told him what I thought of his "verdict", "sacked him" and changed to another practice:D.

I suppose they dont want to say "I'm sorry - I dont know whats wrong with you" - not after all those years of training and us patients sitting there thinking "You've gotta be a flippin' brainbox to be a doctor". The last thing they want is for us to ever know better than them:rotfl::rotfl:

Re doctors putting people "on the scrapheap" at 50 onwards - I suspect they do....and I would imagine its to do with the fact that the NHS simply doesnt want to spend whatever money is required on ALL of us (they'd rather spend it on a few more managers and those high-cost drugs the pharmaceutical companies want to sell to us) - so older people get "put to one side" a bit because they're not deemed to need their health for holding down a job any more. Errrrmm...well...what about holding down a life then?!!!

Well - this is a moneysaving post - a grumble that is - it was at that point I thought "Well - if you're trying to ration me out of healthcare I need - looks like I'm going to have to investigate going privately for things in future if need be. I'm darn well going to have my healthcare needs met." - hence I started being moneysaving....

hellsbells45

The truth is, if ou are unwell then it is very difficult to be os. these past few weeks because of the flare up of the ME/CFS mu spending has rocketed (well not that much, but when your on a tight budget any increase in spending feels huge:(). I really wish that we had more flexability in the NHS, because the treatments that have been most beneficial to me have been Chiropracty (injuried back in the army:o on the assault course. And chinese medicine neither of them cheap but both far more effective than the treatment I've had from the NHS. Not knocking the NHS just wish that there was a bit more flexability in it:).

Money saving - managed to get to Trago yesterday and got 4 small joints of topside for £9.:T:T:T:T.

skyelark

charlies-aunt wrote: »

Housework .... my motto on that is 'Clean enough to be healthy, mucky enough to be happy'

When dd's were tiny, I had a very house proud and germ-concious friend - all pets were banned as being dirty, disease ridden fleabags, all soft toys were boil washed every week and all the plastic-y things were doused with milton fluid every evening and - she only allowed them to 'play in the garden' if they didn't stray off the large piece of carpet that she laid down on the lawn for 'outside play' :eek: . . . .her little dears were whinney, asthmatic, runny nosed and sickly - caught every bug going and were constantly at the doctors.

On t'other hand - dd's grew up in a normal house - a pretty OS childhood with lots of pets, made mud pies in the garden in all weathers and their toys only got washed when there was visible dirt on them - still caught colds and bugs but generally speaking much healthier and unfussy.

Life's too short to spend it doing housework! and I believe in leaving something for the next generation so I'm going to bequeath my undone housework

That is so sad. Poor kids! A carpet? In the garden? Bonkers!:shocked:

kezlou

mardatha wrote: »

Oh for shame annie !! A forkful of horsesh*t and you're anybodys !

:rotfl::rotfl::rotfl::rotfl::rotfl:
Great news Annie56, so glad to see you posting!
Sounds like a hunk to me! Heop the divorce goes smoothly and well done for keeping the garage going!

fantastic bargains sammy!:T
Haribo :Tnice poem:T

---

RANT ALERT

---

May i say i hate houseowrk, but do try and keep the house clean. For the past five months i've a broken knee cap which has only just healed and i can still barely walk.
Now don't get me wrong i hate fleas with a passion. I detest them, i hate being bit and i refuse to let people in the house when we have them. What i can say i have two cats who invite they friends in when either were out or in bed. :mad::mad:

Now i just had a phonecall because from a neighbour/ friend who pee'd me right off last week with they shocking rudeness as just done it again. I've been blamed for they lack of money, er how, i never ask them or encourage to borrow money or spend all theirs.Now its fleas, because they cats never have fleas ever, even though its out constantly like mine and its my fault :mad::mad:. Now according to them, one got bitten last night (i wasn't in) and about five weeks ago, they were bitten badly in my house (when i wasn't in again), but only decided to tell me today. Now why didn't they tell my partner last night. Why wait till he's gone out to tell me. They do it every time i'm upbeat, they see me smiling and then say something to make me feel or treat me like carp. So sick of it. They never complain to my OH or blame themselves for they own problems its always somebody else fault. I'm sorry everyone i'm just pig sick. so sick of being treated like a door mat.

END OF RANT


But i had a lovley day yesterday, spent half of the in agony chatting to a freidn then went out for an hour with an old firend. SHe insisted on paying for coffees. So i'd said i'll buy it next time. It was good, felt quite relaxed and upbeat till the above happened. Still i just sat on my backside so at least my knee and guts got a rest. If i'm not feeling well tomorrow i'm going to make an appointment with the GP. As stomach cramps and being in this much pain is just not right esp after five days.

OS wise, more picking toms and making stuff for tea and pack lunhes. I've had requests for chicken pie off DS2.So plans for today sort the house out again. Going to have a go at throwing five things out. Wish me luck!.