Blue Badge 'police'

SandraScarlett

freesp1r1t wrote: »

Oh my goodness, my husband has just qualified for a B/B which he only received a week ago, due to the Xmas break he hasn't had much chance to use it yet. Reading this thread it makes me wonder if he's going to be safe using it at all!

You makes sure he uses it as much as he wants to. He's been awarded the BB, because the Powers That Be decided he was entitled to one.

And that's all that matters.

xx

wattdallas

SandraScarlett wrote: »

As I did, caring for my mother for decades, 24/7, and now doing the same for my husband. But I don't mind, and I'm not resentful, because I loved my Mother, I love my husband, and, at the moment, I can manage.

It was a bigger struggle when I was first diagnosed with breast cancer, and I had to continue giving care to others, whilst having treatment.

But God makes the back to bear the burden, and somehow you find a way to get through it all.

xx

Its hard work isnt it , Changing pads, feeding ,lifting, and not getting a whole nights sleep because of her having seizures everday.

And then she had scoliocis surgery wich went well but with massive complications ie infection three times.

And its getting harder as she is getting bigger ,but like you say you do it out of love.

SingleSue

wattdallas wrote: »

I agree with you there,if its any consilation the worse off dont get much help either.:)

Just a thought but SS do have free days out for children who care, not much but better than nothing.

Hope you get a diagnosis if only for peace and mind

My son used to be a member of young carers and they helped an awful lot when he was younger with the frustration, exhaustion and anger he felt at having to help care for his brothers.

It gave him time to be himself, to have fun with other children his age and to have trips out that would not have been possible with the boys at that time. Alas, he grew out of them and has no support now, either as a carer to not only his brothers and now myself but also as a disabled person in his own right...he thinks of himself as too old for young carers but is too young for the more grown up version.

SingleSue

wattdallas wrote: »

Its hard work isnt it , Changing pads, feeding ,lifting, and not getting a whole nights sleep because of her having seizures everday.

And then she had scoliocis surgery wich went well but with massive complications ie infection three times.

And its getting harder as she is getting bigger ,but like you say you do it out of love.

Exhausting work, sometimes I don't know if I am coming or going!

It got a lot harder as middle son got bigger, he was already matching me for strength before he hit 10, now at 14, he is just about taller than me, way stronger than me and restraining has become an absolute nightmare when he goes into a rage.

Youngest son is not so difficult in that area but the constant checking of his levels (severe asthma), his foods (gross food intolerances and allergies) and basically keeping him calm and going through his routines (complex autism) can be very trying...especially when his bowels decide not to play ball!

And there was me thinking it would get easier as they got older :rotfl:

wattdallas

SingleSue wrote: »

Exhausting work, sometimes I don't know if I am coming or going!

It got a lot harder as middle son got bigger, he was already matching me for strength before he hit 10, now at 14, he is just about taller than me, way stronger than me and restraining has become an absolute nightmare when he goes into a rage.

Youngest son is not so difficult in that area but the constant checking of his levels (severe asthma), his foods (gross food intolerances and allergies) and basically keeping him calm and going through his routines (complex autism) can be very trying...especially when his bowels decide not to play ball!

And there was me thinking it would get easier as they got older :rotfl:

If only

SandraScarlett

wattdallas wrote: »

Its hard work isnt it , Changing pads, feeding ,lifting, and not getting a whole nights sleep because of her having seizures everday.

And then she had scoliocis surgery wich went well but with massive complications ie infection three times.

And its getting harder as she is getting bigger ,but like you say you do it out of love.

Oh, how I wish for 2 or 3 hours uninterrupted sleep, but, as my Granny used to say "If you wish in one hand, and s*** in the other, I know what'll get full first"! :eek:

Nothing special about what I do - I expect it's a very similar tale for lots of posters on here. It's only the details of illnesses that differ.

xx

Indie_Kid

SingleSue wrote: »

And there was me thinking it would get easier as they got older :rotfl:

Mum has found it does get easier; (bother has Aspergers) but I know this isn't true for everyone.

SingleSue

I think some things improve but other things get harder....well that has certainly been my experience anyway.

If middle son just had Aspergers, it may have been the case but he also has damage to the areas of his brain which deals with emotions and short term memory, which of course doesn't help with the Aspergers (or it doesn't help with them!), on top of partial deafness, bowel disorder and now probable EDS too!

Savvy_Sue

going back to who 'needs' wider spaces, I'm temporarily incapacitated, and have really struggled on a few occasions to get out of the car if the door isn't fully open, especially if I've got my walking pole with me too.

so I'm not going to say that it's only x group, or y group, that needs the extra space. I can't tell by looking at someone what their needs are, especially as it hadn't occurred to me that losing the use of one arm would mean that having the car door wide open was helpful!

Indie_Kid

Savvy_Sue wrote: »

going back to who 'needs' wider spaces, I'm temporarily incapacitated, and have really struggled on a few occasions to get out of the car if the door isn't fully open, especially if I've got my walking pole with me too.

so I'm not going to say that it's only x group, or y group, that needs the extra space. I can't tell by looking at someone what their needs are, especially as it hadn't occurred to me that losing the use of one arm would mean that having the car door wide open was helpful!

Some people in x group may need extra space and maybe some in y; but some could manage without the extra space - it's being close to their destination that they need.