The (not so old) Crocks Cafe -Part 2

Breast_Cancer_Survivor

ash4becks wrote: »

hey all hope everyone is well or weel as they can be the hms was confimed for sure score of 5/9 but cab sue thinks i have a good chance for the higher rate but has went though as a reconcideration not appeal due to dates on letters etc so fingers crossed for that, gp still thinks its fibro but as treament the same pretty must will not refer me for second option which i half understand, but iam doing well and out of flare up about flaming time to lasted about 3/4 months , pain still coming and gooing but i can deal with that just

sorry guys not been on for a while been sorting the tip of a flat out with mam helping me 16 black bags of rubbish its canny tidy for now not sure how long that will last though but iam trying feeling ok, things a bit up and down iam learning to pace which is annoying, but i have got a stick now which is helpful

but i got my reward for all the physio at home and got to take my dog out for a walk wasnt far but it felt like heaven just on way back home from vets but didnt get bus right home for a change but went though park as a shortcut bumped into a puppy lab and another lab so the 3 of them are running around like little holigons ella comes back black but i loved it , iam sure she knew i couldnt do this much she was coming over me to see i was alright with out asking me too

i was in pain for having to stand for more than 5 mins but was so worth it i really miss my walks with her i was in bed for 2 days afterwards then slept for 16hrs the next few days afterwards, to see her play like a pup ment everything to me but i dont think i can do that much but she knew she couldnt go far or play up , what a dog i no in my heart or hearts i shouldnt really have her but that babe is my like and iam proud of her for the way she is but i need to give that back to her a save up for a chair or a scooter so i can take her out more

BCS whats happened x

They denied liability which is apparently not unusual although I was shocked tbh seeing as we have proof of everything we claim.

Suprisingly depite a good old cry i'm fine, infact I feel pretty relieved that it's over (that part at least).

We will be taking them to court now which could take another 2 years but they could still decide to settle when they see our evidence.

The main thing is that it isn't ruling my life anymore & I feel free. :j

I'm getting married in 6 weeks & my family have started talking to me again too so I couldn't be happier. :A

I'm sorry to hear that you are still in pain but good luck with your reconsideration, i'll keep my fingers crossed for you.

Indie_Kid

I knew this was coming:

Got a letter from SS stating they can't help me for now. Thankfully, I have my parents - but that's not the point.

Trialia

sh1305 wrote: »

I knew this was coming:

Got a letter from SS stating they can't help me for now. Thankfully, I have my parents - but that's not the point.

*gives you virtual hugs*

They've rushed my SS assessment through the system a bit since I told them I was currently unable to wash properly (arms keep coming out every time I reach anywhere ), and I got a phone call today to ask if it was okay for my local assessment team to send someone out this afternoon at 3, so I'm waiting on that. I also got a call from PALS at MRI earlier this morning to say that they're going to get the doctor at Maxillofacial who was meant to be treating me last year to see me, but he's on annual leave for the rest of this month, so it won't be til November, probably December. But at least I'm back on their radar!

bertiebat

formaldehyde_perfume wrote: »

My mobility scooter was sort of delivered, but before he came round he tested it and found another bit was wrong HOPEFULLY it'll be here on thursday, but I've missed the day where I can hire the mobility scooter from the other shop (as he said he'd deliver it tuesday so I said I didn't need it on wednesday) so if I don't get it before friday evening my weekend plans will have to be cancelled and I'll be HUGELY !!!!ed off.

I'd hate to think that you would have to cancel your looked forward trip and just wonder whether I can help.

You mentioned Ally Pally and my brother lives just down the hill from there. I have a portable mobility scooter and was thinking that I could drop this off at my brother's for you to borrow whilst in Ally Pally. Might be able to do this myself as well but may have plans for Sat.

Send me a PM if this could be of help to you.

formaldehyde_perfume

bertiebat wrote: »

I'd hate to think that you would have to cancel your looked forward trip and just wonder whether I can help.

You mentioned Ally Pally and my brother lives just down the hill from there. I have a portable mobility scooter and was thinking that I could drop this off at my brother's for you to borrow whilst in Ally Pally. Might be able to do this myself as well but may have plans for Sat.

Send me a PM if this could be of help to you.

Awww, thank you so much. I only just read this so sorry I didn't reply to you. Thankfully I've just found out (after tons of phone calls pestering them) that my scooter will be delivered today, although until it's sat on my drive way I won't quite believe it. It's such a relief that I won't be in agony all day, having to try and be all smiles and join in conversation when I'm just screaming inside.

bertiebat

formaldehyde_perfume wrote: »

Awww, thank you so much. I only just read this so sorry I didn't reply to you. Thankfully I've just found out (after tons of phone calls pestering them) that my scooter will be delivered today, although until it's sat on my drive way I won't quite believe it. It's such a relief that I won't be in agony all day, having to try and be all smiles and join in conversation when I'm just screaming inside.

Pleased you got it sorted. :T Have a lovely day.

formaldehyde_perfume

bertiebat wrote: »

Pleased you got it sorted. :T Have a lovely day.

I just thought I'd say I did indeed have a lovely day, I would never have coped if my mum hadn't been on to the shop every hour on friday asking when we were going to get it, finally got delivered at 6pm on friday. Unfortunately I only managed to get a total of about 2 hours sleep but as we went on a coach and I used my scooter all day I managed pretty well

It's my mums birthday today so we're going for a spa day :T Although I am feeling it being up this early after yesterday, but I wanted to walk the dog (she usually does the mornings) and set out her presents before she wakes up. I may well fall asleep by the pool if I'm still this groggy, that would be one very expensive bed :rotfl:

I hope everyone's still keeping their head above the water.

... On a slightly more concerning note. I got a letter saying that the DLA are waiting for information from 'your consultant' but I was discharged from the outpatients department of that hospital months ago, but I'm guessing theyre getting it from the 'have you seen anyone about your condition in the past 12 months' question, which I had.... I've also now seen a local rheumy who also said I have FM. Should I contact the DLA and ask them to contact him? He didn't examine me though as he had a detail report from UCLH to work from (and he said he didn't want to leave me in more pain, finally, someone understands!)

I am also technically under a physiotherapist but I've only seen her once, she was very good and instead of seeing me weekly (which has failed before as I tended to only get 3 or 4 sessions then discharged without a proper plan in place) said 'do this one exercise, once you can do it 10 times in a row holding it for 10 seconds make another appointment to see me' so if they contact her she'll have no idea other than the 30 mins she saw me a few weeks ago... That's also on my ESA forms too under something like 'treatment' so I'm guessing it could come back to bite me in the bum if she says 'i don't know how far she can walk' etc :think: All this stuff really makes my brain hurt.

SingleSue

I am so so nervous tonight...got a big exam tomorrow morning in the next big town to us (which I am not amazingly familiar with as I hate driving in the blooming place) and the exam hall has no parking!

I have been in contact with OU and they suggested going via the park and ride but wasn't sure which stop to get off (I think they thought there was only one stop but there are about 10) or going by train and getting a taxi from the station...all ok ideas but not really suitable for time as I have the school run first thing in the morning.

Anyway, think I have found a close ish car park and will have to hobble the rest of the way..fingers crossed I am in a fit state to take the exam once there! The physio was not best impressed when I told her and told me to take it very slowly and carefully but that it really wasn't on or suitable.

Goodness knows how a severely disabled person would be able to do it, apparently there is no parking even for those with a blue badge or the exam invigilators.

Indie_Kid

Good luck Sue!

SingleSue

Well back from the exam and what a nightmare that was!

I decided on the park and ride in the end as the walk looked to be too great from the car park (plus the thought of driving in that town sends me into a panic attack!) but I still struggled and was in a fair bit of pain by the time I had walked from the bus stop to the exam centre.

Anyway, onto the exam....the content wasn't too bad and at least there was some things my brain wanted to recognise in the questions (although I don't think I have done spectacularly well) but the chairs! My word they were not the right sort of seats for me or my back...within 20 minutes, I was itching to get up and walk around as everything was seizing up, so I did the next best thing after a further 30 minutes of sitting there suffering...I asked to go to the loo.

Only problem was that only gave a very short term relief and within 10 minutes of sitting down again, everything was on fire..about the only thing able to move freely was my left hand....handy that, I am left handed! I didn't dare ask to go to the loo again so spent the rest of the exam (it was a 3 hour exam) trying to move around (quietly) in my chair to try to get some relief only to find that once the exam had finished, I had completely stiffened up and really struggled to get upright and moving again.

Then the walk back down (it had been uphill on the way) to the bus stop - not so bad, wait for the bus - not very good and then a lovely sit and be moved around on the bus back to the park and ride car park (hmm, jury is out on the that one)....and home.

Proud of myself though, I managed to go into the town centre of that town on my own, on a bus and not have a panic attack...must have been exam nerves which kicked the panic attack out!

I am now absolutely shattered, my right eye is twitching, my back is killing me, my knee is killing me, my right ankle is constantly going out and a headache is brewing.....and a school run to go, housework to be done, cheque to be banked, tea to be cooked before a chance to relax arrives.

Oh what fun to start the week on eh?