Budget - tougher for DLA claimants

daska

maytaurus wrote: »

Just wondered what other peoples experiences of DLA medicals have been like?

I was diagnosed with M.E. in january 2007
Have made 2 applications for DLA and been turned down

The doctor who came to do my 'medical examination'
asked me if I could stand on one leg
and if I could touch my nose with my eyes closed?

I'd laugh, but being practically housebound and unable to do hardly anything for over 3 yrs just takes the edge off the funny side

As for my GP :rotfl:
he says there is no point going to see him as I have amongst other things M.E. and Chronic Pain Syndrome
Any health problems are therefore just put down to this, including my request for an angiogram (family history of serious heart problems)
when I said I thought I was going to have a heart attack ...
answer was that my cholesterol and BP were fine and that they couldn't do tests 'willy nilly'

8 days later I had a heart attack
It's often nice to be the youngest person, but not in coronary care

The consultant wrote to my GP asking for him to make several appts for me regarding physical symptoms he was concerned about

My GP said 'there's no point in him making them' as I have M.E.
That was in March this year
So I see nobody from the 'medical profession' about anything
I have an appt for january 2012 to see the heart consultant
So much for the Nice guidelines :rotfl:

Establish a supportive and collaborative relationship with the person with CFS/ME and their carers.
This is particularly important for children and young people, and for people with severe CFS/ME.
Assign a named healthcare professional to be responsible for coordinating the person’s care.
Provide accurate information at all stages, from when a diagnosis is first being considered.
Tailor information to the person’s circumstances, including the stage and duration of the condition,
symptoms, and personal and social factors.
Make information available in a variety of formats if appropriate (printed copy, electronic and audio).
Information should cover:
– possible causes, nature and course of CFS/ME
– local and national self-help and support groups for people with CFS/ME and their carers
– the NHS Expert Patients Programme (see www.expertpatients.nhs.uk or www.eppwales.org).
Healthcare professionals caring for people with CFS/ME should have appropriate skills and expertise in
the condition.
Offer every person diagnosed with CFS/ME:
– acceptance and understanding
– help negotiating the healthcare, benefits and social care systems
– help with occupational activities, including work and education if appropriate (see page 12).
Develop an individualised management plan with the person, and their carers if appropriate,
including:
– relevant symptoms and history
– plans for care and treatment, including managing setbacks/relapses
– information and support needs
– any education, training or employment support needs
– details (and contact details) of the healthcare professionals involved.
Review the plan at each contact and document any changes.

And when Sleeping Beauty woke up she found the NICE fairies had left her a storybook.

My GP is seriously lovely, she is so nice that it's the first comment everyone who's met her makes. The other two are both in the Wessely camp so visiting them tends to be less than productive.

But I don't think I'll ever find myself being tested for anything that can't be assigned to ME on even the most spurious basis.

krisskross

I think a lot of the people getting DLA for MH issues may well lose it and the money be chanelled into extra therapy.

Indie_Kid

krisskross wrote: »

I think a lot of the people getting DLA for MH issues may well lose it and the money be chanelled into extra therapy.

Some do need it for taxis, medication and sometimes microwave meals.

DX2

Aputsiaq wrote: »

The amount of children that have sprung up with Aspergers, Austism, ADHD, etc etc who all have parents claiming DLA is shocking. (What will happen when the new information from America blasting these conditions happens, goodness knows)

Has Autism/Aspergers/ADHD all just sprung up though? Or have many children in previous years been mis diagnosed, how many could have been sent to institutes and diagnosed as schizopheric. Food for thought there

Indie_Kid

DX2 wrote: »

Has Autism/Aspergers/ADHD all just sprung up though? Or have many children in previous years been mis diagnosed, how many could have been sent to institutes and diagnosed as schizopheric. Food for thought there

Like many conditions, they've probably been around for years but only just been recognised.

krisskross

sh1305 wrote: »

Some do need it for taxis, medication and sometimes microwave meals.

I have need of all 3 of these things, sometimes daily. Does that mean I can claim DLA?

Oldernotwiser

nogginthenog wrote: »

Be fair they are not exactly assumptions are they? Most peoples comments i hope are based on the vast bulk of your previous posts which follow the same trend IE
I have no problems, so it must be allright for everyone else.
It works for me,So it must work for everyone else.
I'M right so the law and everybody else must be wrong.

I've certainly never said that I have no problems and I don't even claim benefits so I certainly wouldn't say the system works "for me".

I simply feel that the best way to get on with things is to approach them from a positive angle rather than expecting the worst and antagonising people before you even start. If you act as if you expect the system to cheat you then you will appear shifty to people and they will expect the worst.

Oldernotwiser

Bryando wrote: »

Where does the right to DLA come from? I get £90.00 per week DLA. High care, low mobility. Have mental health problems.

NONE of this goes to anybody to help me! Partner gets Carer's Allowance. Even being on DLA I still have a question and opinion.

why not give ALL the DLA money to Social services etc and they provide the required. If nothing is required like me, axe the money!

Have never got in to my head how I can get £90.00 per week DLA when I have no outgoing due to my health. Or where does the right come from to get DLA, can the UK Govt not just withdraw this? Or does it come from the EU?

I claim as I can, simple as that! Just because I get DLA does not mean I 100% support the concept.

What a refreshingly honest attitude!

Oldernotwiser

sh1305 wrote: »

You mean ignorant, judgemental people who have no idea what they're talking about and think they know more about the disabled persons' needs than the disabled person?

As I said before, many of us taking the opposite position are either disabled or carers ourselves. this is not a discussion with the disabled on one side of the fence and people with no involvement with disability on the other!

Oldernotwiser

daska wrote: »

FUN QUESTION...

Shall we suggest that Child Benefit gets paid direct to Children's Social Services and that parents should apply to central purchasing to obtain nappies, cream and wipes and everything else that can be proven to be a legitimate child related cost?

Personally I'm not in favour of Child Benefit for anyone. But I would rather people were provided with the things that a child needs rather than have the money spent on drink and cigarettes by a minority of irresponsible parents