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  • pretzelnut
    pretzelnut Posts: 4,301 Forumite
    So sorry to hear your news, i have no words that will help in any way.

    I had a friend who went through something similar and she was advised by another friend to take a dictaphone and record all meetings with doctors, she was greatful she did as by the time she came out of the appointments she couldnt remember half of what was said and the other half she got mixed up. It really helped her to play it back later on in the day and go over all the facts 1 by 1.
    :TIs thankful to those who have shared their :T
    :T fortune with those less fortunate :T
    :T than themselves - you know who you are!
    :T
  • Nikabella
    Nikabella Posts: 413 Forumite
    I'm so sorry to hear that the latest news wasn't good. I'm sorry that there is nothing I can say or do that will make things better. You clearly are being a great support for your daughter in this difficult time.

    I will be thinking of your daughter tomorrow.

    A.x
    :DBeautiful DD born Jan 2007 :D
    :sad: One Angel baby lost April 2009 :sad:
    :D Beautiful DS born March 2010 :D
  • sassygirl_2
    sassygirl_2 Posts: 436 Forumite
    Hi, only just seen this thread.
    Really sorry that the news wasnt better, BUT

    My half sister has spina Bifida and Scoliosis. When her mum (same dad, not mum) was pregnant with her, they said that she would never walk, never have children, be catherised, and have no quality of life.

    My sis is now 35 yrs old, 3 children, never been catheterised, and leads a full independant life.

    Hope you get more more answers tomorrow
  • tara747
    tara747 Posts: 10,238 Forumite
    Part of the Furniture 10,000 Posts Name Dropper Combo Breaker
    SaintChris, I don't know what to say except that I wish you and your family all the best. Your daughter is lucky to have you.

    (((hugs))) to you all.
    Get to 119lbs! 1/2/09: 135.6lbs 1/5/11: 145.8lbs 30/3/13 150lbs 22/2/14 137lbs 2/6/14 128lbs 29/8/14 124lbs 2/6/17 126lbs
    Save £180,000 by 31 Dec 2020! 2011: £54,342 * 2012: £62,200 * 2013: £74,127 * 2014: £84,839 * 2015: £95,207 * 2016: £109,122 * 2017: £121,733 * 2018: £136,565 * 2019: £161,957 * 2020: £197,685
    eBay sales - £4,559.89 Cashback - £2,309.73
  • Saint_Chris
    Saint_Chris Posts: 3,876 Forumite
    thanks :cry:

    my feelings at this moment, sorry
  • WolfSong2000
    WolfSong2000 Posts: 1,736 Forumite
    Part of the Furniture 1,000 Posts
    There's hope, hon...I recently met a teenage girl with spina bifida...she was in a wheelchair and had braces on her legs, but my goodness she had the most amazing attitude ever! I met her and her mother at a concert I was attending and spent a lot of time hanging out with them. It was obvious she had physical disabilities, but she didn't let them limit her at all. She was great fun to be around, very positive and all of us had an amazing time at the concert.
  • flower24
    flower24 Posts: 1,719 Forumite
    i'm so sorry chris, try and think positive x x x thinking of you all x
  • Dinah93
    Dinah93 Posts: 11,466 Forumite
    Part of the Furniture 10,000 Posts Combo Breaker Bake Off Boss!
    I'm so sorry the news wasn't better, I hope the outcome of today helps you to see a way forward x
    Debt January 1st 2018 £96,999.81
    Debt September 20th 2022 £2991.68- 96.92% paid off
    Met NIM 23/06/2008
  • Nikabella
    Nikabella Posts: 413 Forumite
    Just wanted to see how you were doing Saint Chris?

    Still thinking of you.

    A.x
    :DBeautiful DD born Jan 2007 :D
    :sad: One Angel baby lost April 2009 :sad:
    :D Beautiful DS born March 2010 :D
  • tara747
    tara747 Posts: 10,238 Forumite
    Part of the Furniture 10,000 Posts Name Dropper Combo Breaker
    Me too xoxoxo
    Get to 119lbs! 1/2/09: 135.6lbs 1/5/11: 145.8lbs 30/3/13 150lbs 22/2/14 137lbs 2/6/14 128lbs 29/8/14 124lbs 2/6/17 126lbs
    Save £180,000 by 31 Dec 2020! 2011: £54,342 * 2012: £62,200 * 2013: £74,127 * 2014: £84,839 * 2015: £95,207 * 2016: £109,122 * 2017: £121,733 * 2018: £136,565 * 2019: £161,957 * 2020: £197,685
    eBay sales - £4,559.89 Cashback - £2,309.73
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