What Is Your Illness Or Who Ever You Care For

cydney65

Here goes:
Sjorgens
raynauds
fibromyalgia
aggressive rheumatoid arthritis (yuk)
depression...can't think why :rolleyes:
I also care for my OH who has MS and DD1 who has ASD (asperger's). DD2 also has fibromyalgia but she recently married a great chap who keeps her happy by buying memory foam mattresses :rotfl:
The last couple of weeks I've felt really blergh with chest infection and viruses due to my lowered immunity. I've also had to give up swimming-my only exercise and luxury-as there are just too many nasties in the pool and changing area. I live in fear of infections as I'm allergic to most antibiotics and my GP makes me sit in the surgery to take any new meds so he can keep an eye on me...bless him. BUT I am looking forward to the new series of Torchwood this year (YAY for Captain Jack, Gwen and Ianto) and DD2 and hubby have just bought a house, so I'm enjoying their excitement at shopping for bits for their new home. Funny what little things keep you going.

Limana68

I care for my hubby who has got cerebellar ataxia, ( balance, speech, muscle aches, tremors) he is waiting for genetic testing to be done as believed hereditary from his dad. I also look after my 79 yr old mum, who lives with us who has arthritis, diabetes type1, memory probs.
I also have 2 kids and several pets and am still at work! For how long who knows, it depends on how my hubbys illness progresses.

Li xx

Gemmzie

Anyone who is working and struggling to work full time. Please look into Working Tax Credits, in many cases you can then do less hours and have your wages topped up. It's been a live saver for me and really improved my general well being.
16 hours is still really tough but it's a good balance between living and not just surviving and being so tired from working I couldn't do anything else.

SailorSam

After reading all the other contributions to this thread i feel like a cheat posting here.
I only have close-up double vision, i need to sit right up to the screen with one eye closed to get rid of it, and keep missing the right letters on this keyboard.
I think i'm very lucky, after reading this i should be dancing a jig.
But, PLEASE no more coloured fonts.

survivor13

Hiya Guys
Im Fibromyalgic, have spinal scoliosis, 5 'knackered' spinal discs (lumber), basilar migraine,arthritis and a great sense of humour! which i think we all need to cope with the day to day challenges of living with severe pain disorders. Luckily for me i have a very supportive and helpful GP, i know many dont. I have a dedicated husband and family which is a godsend and also a determined and stubborn mind which does not allow the luxery of ever feeling sorry for myself, i always focus on what i can acheive and never what i cant, glass is half full not half empty etc etc im 44 by the way and have suffered with all of the above in varying degrees for over 25 years!

cceg

I am mum to a severely autistic boy who is now 5. He also has a bowel disorder ( autims linked, unsure as of yet? ) and a eating disorder, not linked to autism but made alot worse by autism.
He's a cheeky monkey and i enjoy every moment i have with him. He is now at a special school so i can work a few hours during school time.
I feel lucky to have him because i now notice everything, something i feel i might have mised out on had he not have autism.

I have a skin condition ( psrioasis ) which is very severe and is now drug controlled, blood tests weekly etc...

jules999_2

Hi Everyone,
My son is now 17 now. A week after the MMR at 14 months old he had his first seizure. He has had seizures ever since and diagnosed with severe epilepsy as well as autism at the severe end of the scale. Severe learning difficulties, delayed speech and at present is having problems with his hands and pain to the point where he is rubbing the skin off them. Seeing the neurologist soon to hopefully find out what this could be.
A boy with many sides to him and whom I wouldn't be without, he is such a joy, (most of the time). I always say being with him is like ground hog day, everyday, same chatter and same routine.

MrsManda

Just wanted to say that you all sounds like you're still smiling despite everything which is ace It's good that most of you seem to have good support systems with family, doctors etc...
Never be afraid to ask for help if you need it and keep smiling

I have Hydrocephalus and a non-specific seizure disorder. The Hydrocephalus now seems to be have been controlled and I've been out of hospital for over a year *grins* (first time in over 14 years that I've been out for more than 5 mths). Hoping it will stay that way as I'm back at uni and would like to stay this time
The seizures are interesting - mainly controlled with medication providing I avoid wine but occassionally go numb down my right side for no reason anyone can find. Last neurologist didn't believe I was having 'true' seizures and it was pure coincidence that he put me on medication and the 'falling over, losing consciousness, arching back, foaming mouth and full body shakes' non-seizures stopped, with them starting again after taking the medication away. Now back on medication which works, no nasty side effects. Had an EEG and waiting to see a new neurologist in two weeks to see what he thinks. Personally I'm happy taking the meds and avoiding wine and staying concious.

My husband is fab and family, friends and university are really supportive so all in all I am incredibly lucky :-)
Keep smiling xx

LameWolf

Systemic lupus erythematosus (with all the attendant issues such as Sjogrens, Raynauds, joint and muscle pain, recurrent mouth ulcers, mega fatigue etc).
Congenital scoliosis (undiagnosed until I was in my mid-20s).
Chronic depression, anxiety and social phobia (probably a knock-on effect of childhood sexual abuse).

Ain't life grand?:o

missstropy

Heres a new name for you all, Not seen this one on here yet.

My 17yr old has Coffin-Siris Syndrome.

Loverly name for a syndrome. She has severe learning and behavioural difficulties, My 11 year old towers over her and my 6 yr old is a couple of inches shorter than her.

She can be laughing and joking one minute and in a split second be running into the kitchen for a knife to stab you or put the gas on and choke us all to death. Shes set fire to a few things in the past too. Obviously we can read her like a book and know how to deal with her, She refuses to eat, she hardly sleeps and she can throw a paddy for England.

But she is what I was given so we put a smile on and get on with it..