What Is Your Illness Or Who Ever You Care For

easy

I was born with an ill-made skeleton, funny muscles and under-active nerve endings. There is no name for my condition, my childhood specialist had never seen the like of it, except in my older sister who is similarly affected (no other siblings, our parents felt 2 with these probs was enough).

I walk in a very peculiar fashion, self-taught when I was about 8, when the professionals had decided I never would.

I had a hip replacement that went wrong about 5 years ago, and had to learn to walk all over again.

My twisted spine has started to get painful as I get older, I get sore shoulders and neck.
My hands don't quite work properly, and there is some arthritis in those too now.

But one carries on. I drive, I can work (bookkeeper/accounts advisor for small business), I love my son aged 9, my husband (who is a wonderful support, and saw me thru all the horrors of the hip disaster with love and fortitude) and our 2 delightful Cavalier spaniels.

earthmother

tattoed_bum wrote: »

good grief earth mother you deserve a medal .

in fact we all do .

i dont have any medals so this will have to do
:T :T :T :T :T :T :T :T :T :T :T

Never intended it to sound quite so bad. Things always sound worse when you list them altogether though don't they. To be honest, we, like so many others here I imagine, just get one with life each day, and it's not until a thread like this that I put everything together in one place.

As you say, I think everyone here deserves medals :A

PetuliaGristle

Just ulcerative colitis and currently on azathioprine and mezalazine, vitamin c, iron and calcium due to reduced bone density. Although I've been avoiding going back onto prednisolone for months my colon is bleeding again so I might have to. So glad I don't have crohns.
You guys are heroes :A

sharon59

my list is embaressingly long-seems to keep growing...
Depression
fibromyalgia
sjogrens
breast cancer-double mastectomy -but doing ok now
Lymphodaema both arms-due to the BC
prolapsed lumber disc -sciatica
hip bursitis

Janetew

I'm shared carer of my mother who is 76 and paralysed from her mid chest down, my father is her main carer but he has brain damage as the result of a triple heart bi-pass.

My son suffered a head injury in a near fatal road accident when he was 13 and my husband became mentally ill as a result of it (we are now divorced).

You all have such brave stories and I just wondered if anyone has found good support groups or ways of keeping strong? I feel guilty even thinking of my own needs but so need to be strong for everyone as I know things are not going to get easier especially for my parents.

hamstercheeks_2

carer for father - bladder cancer
and sister- MS

shiny_happy_people

Hi i'm carer and single mum to my autistic son he's 11

finnigan

I also care for my child. Her official diagnosis is severe developmental delay. We don't know why it happened to her, her brain didn't form properly. Her geneticist has not been able to find a cause, I say she is ahead of her time and the medics will catch up with her one day .

shiny_happy_people

great attitude finnigan its only way to cope isnt it?

finnigan

Well if you stop laughing you could end up crying and life is too too short xx