What Is Your Illness Or Who Ever You Care For

mumoftwins

Hi all,

I have trochanteric bursitis in my right hip, 2 degenerative discs in my lower back, scoliosis of the spine, sciatica and depression - I wonder why :rotfl::rotfl:???

In pain 90% of the time, can't walk far and have dreadful trouble sleeping cos of the pain - what a wonderful life we all have ;);)

Claire3121

TaBunny wrote: »

Hey Claire, my mum has raynaud's she said it's quite rare, I'm dreading that I will get it when I'm older because her dr hinted it may be hereditary but all the stuff I've read on line leads me to think it's not. So I know how you must be suffering with that my poor mum looks like a pin cushion from all the blood tests she has to have.

I've got RA in 90% my body too but never heard of it called palindomic, that's interesting I shall go have a surf about that and yeah mine varies from day to day too, well hour to hour really so I know where you're coming from. Hugs.

Thank you. Palindromic means "to come and go" but its more permanent over the last few months.
Re the Reynauld's,I dont know anyone in my family who has it so I wouldnt worry.

GlasweJen

I've got neurocardiogenic syncope, dysautonomia, unconjugated hyperbilirubinaemia, a specific learning disorder and Irlen syndrome.

ETA I missed out my gastric reflux, angina and the keloid scar from my pacemaker surgery. My mum says i'm a walking pharmacy.

linmad

hi. im a newie
think i've put this in my moan but here goes----
multiple joint osteo
soft tissue rhumatics
mechanical (really google it ) back pain
deafness in one ear
oh what fun

Isis_Black

Me i am a sufferer of depression have been on and off since i was a teen but only recently admitted it to the doc and so finally got meds for it, i have a brill doc!!!!!
i also am an asthmatic, have been since i was about 12 or so when i got bhronchlitis while on holiday, so been on many different meds ever since.

The only thing i do ever think is can i ever claim any help benefiit wise for my depression mostly as my asthma is under control most of the time, but i just look and can never seem to get an answer.

[Deleted User]

My problem/disability is severe uncontrolled epilepsy following 2 strokes 11 years ago,i also have a left sided weakness following the strokes e.g. no grip at all in left hand.The 20 tablets a day I take for this and other problems also have horrible side effects like blurred vision,tremors,always tired,depression.
Other than that i`m fit and well(if only),but life goes on and theres always hope!

colin13

i dont have an illness with a long name :0 just plain old MS,,I am still walking , but it aint in straight line still drive and still annoy the life out my my wife(who is a godsend:))

purpleorc

I have MS, trigeminial neuralgia, PCOS and stomach ulcer. I like colin13 can't walk in a straight line look as drunk as a skunk But at least I am still mobile with my own unique style I have a caring husband whom is wonderful and puts up with all the ups and downs of these conditions. Not many ups though come to think of it :rotfl:

Fear_Manach

Had cervical cancer but was getting treatment for abnormal cells (CIN III) for 3 years before it was discovered - apparently it may have been there all along (an longer still) but wasn't where they were expecting it to be....(Cervix isn't very big so am baffled by this).

Cancer resulted in a hysterectomy, during which my bowel was torn and I got perotinitis and was almost a gonner. Had emergency surgery to repair the 'tear' and had to have colostomy bag fitted. Luckily it looks as though the colostomy can be reversed and I will only have to live with the enormous scar, low self esteem and I can only guess that the recovery time will be about the same again. I find it difficult to walk very far and need help with normal tasks like getting dressed and getting in and out of the shower. I don't know when or if I will ever be able to do my job fully again - I'm an environmental consultant and do loads of site work including heavy carrying (soil/water samples) and walking across rough terrain. I love my job too...:( I can't cook or do any cleaning (there are some upsides ), but my poor hubby is a complete angel and takes good care of me. He has also lost out in all of this (although I seem to be the only one who recognises it) - the tremendous heartache of seeing me close to death as well as the confirmation of us not being able now to 'get pregnant'. (in the 3 years prior to diagnosis the docs told us not to get pregnant until they sorted out the problems...we were only married 6 weeks at the time)

Oh and the tear in my bowel was apparently caused because I had endometreosis - which I had all the symptoms of and asked the consultants to investigate prior to cancer diagnosis (not knowing it was endometreosis until 3 weeks after emergency surgery) but they never did.

You can probably hear the sarcasm in my tone. We feel very let down. But if you or any of your loved ones is going through something similar then my advice is to keep on the backs of the doctors til you get the treamnet/answers you need. It's your lives we're talking about here.

Just as post script - I contacted my GP during the whole process which had been dragging on for some time and where I was getting increasingly anxious (you can't help it after 2 years of knowing you've got cells that turn to cancer if they go untreated - no matter what anyone says) to see if she could do anything to hurry the hospital up. It was the only time I had ever contacted her to ask her to do this, and it was only to pacify mt mum...Her exact words were "..there are women coming in to this surgery on a weekly basis in their 50's and 60's who have never even had a smear test who are being diagnosed with cancer. Those are probably the women who are in front of you in the queue." Apparently my life at 32 years of age, having not had a family yet, was less important than older women who had. Despite me being a 'good student' and going and having the smears done.
Apologies for the waffling. It's still pretty raw. But thanks for giving me a place to vent a bit of the anger.

marigoldhen

Hi everyone, there are some fantastic spellers amongst you with all the long winded medical names.

I am a full time carer for my 16 year old daughter. She was diagnosed with ME when she was 13. She became so ill very quickly and ended up paralysed which was a really nasty time. She is now out of that stage and is in bed about 95% of the day only getting up to struggle to the bathroom.

We've had some really bad times but some how we keep on going. I went on to anti depressants for a long while because of all the upset and had to give up my job. It was a massive life changing experience for all of us.

Good things do come out of bad. We are all much closer as a family and really appreciate being together. Our lives have actually changed for the better, believe it or not. Obviously I don't mean my daughter's illness here, but because of what has happened we have re-evaluated our lives and have changed it drastically. My husband is now self employed so he is at home so much more, our 13 year old son is now home educated, and we were allowed to get CHICKENS!! We are much more chilled out and laid back and we don't have long stressful days working for horrid bosses and then spending ages driving home to find the kids miserable because granny has upset them. We all work as a great team and everyone mucks in (apart from cleaning out the chickens which seems to have become my job). I am now off the tablets because I have so much more help from my husband and son.

My daughter has been so strong throughout and she has taught us a lot of lessons about ourselves. Thank you to my lovely daughter for that. She is a super star and she nevers complains. I am hoping that she will recover, she has a long way to go and if anyone deserves a happy life, she does.

I look forward to the day when we can send her wheelchair back and her horrid hospital bed and all the other equipment that the NHS has provided. Can't they make things in pink and purple instead of yucky NHS colours!