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What Is Your Illness Or Who Ever You Care For

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  • MadMonkey
    MadMonkey Posts: 305 Forumite
    • Crohn's disease
    • Athritis in my wrists, feet, knees, hands
    • Carpal Tunnel - very chronic at mo
    • PCOS
    • Lupus
    • PTSD - anxiety
    I joke that i am really a hypochondriac as no-one could really have this many illnesses !!

    Having said that - i recently filled in a DLA form and omitted so many things asi don't see myself as "disabled" but if i were to keep a written diary for you i am actually a complete mess and should be put to sleep !!:D

    I think they will refuse DLA for me and i will then have to appeal - not because they decided wrongly but because i under-estimated the impact that my illnesses have on my daily living.
    It's not paranoia if they really are after you.
  • MadMonkey wrote: »
    • Crohn's disease
    • Athritis in my wrists, feet, knees, hands
    • Carpal Tunnel - very chronic at mo
    • PCOS
    • Lupus
    • PTSD - anxiety
    I joke that i am really a hypochondriac as no-one could really have this many illnesses !!

    Having said that - i recently filled in a DLA form and omitted so many things asi don't see myself as "disabled" but if i were to keep a written diary for you i am actually a complete mess and should be put to sleep !!:D

    I think they will refuse DLA for me and i will then have to appeal - not because they decided wrongly but because i under-estimated the impact that my illnesses have on my daily living.

    Its perfectly natural to be positive about yourself,hopefully you`ll get DLA but if you have to appeal then please get some help either from cab or welfare rights
    good luck
  • I have been diagnosed with

    Emotionally Unstable Personality disorder
    Chronic Depression
    PTSD
  • hi i have endometriosis and i also have adnormal cells in my cervix some days are a lot better then others i can't hoover or sweep up as this hurts my back and i can't lift anything heavy. i was once told by a employer when i phoned in sick that i should go on the pill little do they know that i can't take the pill now on my good days i work for myzself. sometimes i have to shut my shop early but my customers are bvery understanding.


    and the plus is i have a amazing husband who helps me out
  • tattoed_bum
    tattoed_bum Posts: 1,189 Forumite
    i care for my little boy who is deaf and partially sighted ,

    I also have depression and severe nerve damage to my back legs and neck ,carple tunnel in my wrist/hands
    oh i also have asthma ,lol .

    so when my depression lets me get motivated to walk anywhere my back doesnt let me or my asthma plays up.
    my dh recons that i take more meds than should be allowed for one person .:rotfl:

    i tried for DLA for myself but got a no and just couldnt go through filling out all the forms again so never tried again
  • earthmother
    earthmother Posts: 2,563 Forumite
    Part of the Furniture
    I'm here as carer to my husband and 2 out of 3 children.

    Hubby is the main one - he has lost the ligaments in his right knee joint (no fancy title - which means many people don't see it as a real issue) - it, along with HMS and the onset of arthritis has slowly over the last 7 years taken him out of the active workforce and placed him more and more often into a wheelchair. He also has high blood pressure, MRSA, Lymphodema, and suffered a pulmonary embolism last summer which has slowed him down even more, and placed him on warfarin. Oh, and the doc is also treating him for depression. :rolleyes: He takes so many pills he reckons he has shares in ICI :p


    The kids are relatively easy to explain - they've inherited his HMS, although luckily not to extreme levels. It means that, in simple terms, they look to the outside world just like your typical clumsy gangly 5 and 7 year olds - poor co-ordination, loads of tumbles. But it also affects their speech, writing etc, and means they have to wear special insoles/footwear, and can suffer extreme pain and/or injury from activities most people would take for granted. Luckily their school is great and understands them. :D

    I have my own limitations, but nothing that can carry a diagnosis, so I don't count ;)

    I also lurk on behalf of my mum, who has MS.
    DFW Nerd no. 884 - Proud to [strike]be dealing with[/strike] have dealt with my debts
  • Epidermolysis bullosa here :)
    Cake please...
  • tattoed_bum
    tattoed_bum Posts: 1,189 Forumite
    good grief earth mother you deserve a medal .

    in fact we all do .

    i dont have any medals so this will have to do
    :T :T :T :T :T :T :T :T :T :T :T
  • magoogy
    magoogy Posts: 2,961 Forumite
    Part of the Furniture 1,000 Posts Combo Breaker
    im a carer of my hubby who has an illness caused fibrous dysplaxia - it means his bones are crumbling away - he found out he had it after a hip replacement didnt take and they found he had this disease - if they had stopped the operation when they noticed he had the disease instead of going ahead he wouldve had a few more years of active worklife in him - as it is they went ahead and he has been in constant pain and on crutches for the last 15 years....he gets so many other side affects too....and also has kidney stones to top it all...
  • I Have Crohns disease, Arthritis and Fybromyalgia.

    I was diagnosed 3 1/2 years ago after thinking it was my appendix. I have had 14 operations in that time, one of which was for peritinitis, and nearly died. I still have, despite my crohns keeping quiet, chronic pain as I am having ongoing issues with adhesions.
    I also suffer with depression. I am trying to get back up to full time hours, I work 5 a day at the moment, but it's so difficult. I feel constantly lethargic too and often have to sleep at various times in the day.

    I inject methotrexate once a week which is a 'chemo' type drug which lowers your immune system, as well as other strong opiate based painkillers just to keep me going. The meds bring down my immune system, so I am prone to picking up anything and it lasts that much longer.

    I am working, but wonder if I could still apply for DLA.

    On top of this I have my father who has been battling with a brain tumour for 14 years, and tbh, is probably not going to be around much longer, and my husband has recently been diagnosed with diabetes as well, and is also on anti depressant medication

    We try to see the best in things, but it is very difficult.

    Life feels pretty crap sometimes...... sigh

    A_S x
    ** Getting back in the swing of saving again.... **

    :T :T :T :T :T
    Trying to find the best deals to save as much as we can..........
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