What Is Your Illness Or Who Ever You Care For

flashtwinkle

i have borderline personality disorder and depression. my husband ans schzophrenia but is discharged from all mental health team as it is well controlled. i have a cpn and attend a new group calle compolex cases. am interested in anyone that has the same disorder and were they get thier support from. i have looked online and there is not many places that i can find helps. please contact me i wont bite honest...... i find days really difficult to get htru have just been discharged from hospital after a 6 weeks stay and the4 crisis team have now done the same. i am still finding day to day difficul and dont know where to turn to. my family treat it as normall depression and says i have to pull mysef together and get thru this bad patch. i self harm and have od whenthings get bad. i dont sleep as i have bad thoughts going thru my head and when things get really tough want to die(not at that point aT THE monent) i halusinat too on occasioons and hear voices quite often. am on four lots of medication thta helps on a good day



sorry to go on but dont know anyone that understands what i go thru would be nice to find other people out there as groups are thin accross the ground on the net (for weekend support etc~) thanks for reading

ellieo

my godness, as my mum used to say.... theres always someone worse off than yourself

lilwatchergirl

I'm 30 and have Ehlers-Danlos Syndrome, a rare connective tissue disorder which causes severe pain and fatigue, joint dislocations and subluxations, and walking difficulties (I use a wheelchair). It affects lots of organs and systems including the heart, the bowels and the respiratory system. For me, it has knock-on effects of other conditions including fibromyalgia, migraines and IBS.

I used to be a teacher with a promising career, but that's been on hold for the past few years. At the moment I'm not working, but I'm managing to study which is giving me something to focus on. I've worked part-time in the recent past and very much hope to again soon!

I've been involved in disability rights campaigning for many years, and am in love with the social model of disability :cool: I recommend it - interesting reading!

Invasion

I'm 17 and have moderate/severe ME, chronic pain and chronic daily headache, migraine, and possible fibromyalgia, over 2 years now. Am in a wheelchair when out of the house, and trekking poles inside on worse days, have just bought a sparkly new electric wheelchair with my DLA backpayment. Finally a little freedom!

Alan_M_2

My partner has relapse remitting MS, She is 36 and was diagnosed at 25.

She can still walk in her own inimitable style and can still drive, relapse allowing, although in reality this car she has now is likely to be the last one, she's borderline safe now.

The mood swings and depression are sometimes difficult to deal with. But I try and let it wash over me and wait for her mood to pick up.

Under duress she has now accepted she needs a wheelchair, but it's opened up her world and once I'd convinced her it was nothing more than a device to aid her enjoy life and not giving in to the condition it helped a great deal.

diddabunce

Hi

I thought i would list my "war wounds"
I have severe Arachnoiditis am now paralysed from the waist down. It also caused Hydrocephalus which is treated with a VP shunt and the usual things that this disease causes and trust me have managed to be lucky enough for it to hit me.....like my BLadder stopped functioning and I had a ileostomy (bowel surgery). I feel like I was Jack the ripper in a past life.:rotfl:

I'm doing great. Very happy and contented. A good sense of humour helps as well as good friends and family. I have a wonderful husband who looks after me.

Hippychick

Rheumatoid arthritis, so far none of the conventional medicines have worked so I was put on steroids to try and control my inflammation levels, the steroids haven't done that and made me diabetic to boot.

earthmother

Alan_M wrote: »

My partner has relapse remitting MS, She is 36 and was diagnosed at 25.

She can still walk in her own inimitable style and can still drive, relapse allowing, although in reality this car she has now is likely to be the last one, she's borderline safe now.

The mood swings and depression are sometimes difficult to deal with. But I try and let it wash over me and wait for her mood to pick up.

Under duress she has now accepted she needs a wheelchair, but it's opened up her world and once I'd convinced her it was nothing more than a device to aid her enjoy life and not giving in to the condition it helped a great deal.

Hopefully some of the mood swings and depression will ease now she has accepted the wheelchair. DH has a totally different illness, but it took him several years before he'd accept he needed the chair regularly - he was determined to stay out of it, to the point where he was missing out on things like the kids school plays because he wouldn't be seen in the chair in school and couldn't sit in the hall any other way (which in it's own respect wasn't helping his state of mind).

Once he finally admitted to himself that the chair was now a fact of life, and has managed to get out and about that bit more (he's managed two plays since christmas already - made the kids days to see daddy in the audience ), a lot of his moods/depressions have started to lift.

The other day he actually said he felt he wanted to discuss coming off/reducing the happy pills with the GP. Whether it will become a reality yet is to be seen, but the fact that he's come this far is great

MRSTITTLEMOUSE

Can I just say,after reading this thread my heart goes out to you people.
How do you all manage.
Your'e all amazing.
Take care.......

Alan_M_2

MRSTITTLEMOUSE wrote: »

Can I just say,after reading this thread my heart goes out to you people.
How do you all manage.
Your'e all amazing.
Take care.......

My partner has limitations that many other people don't, we therefore just arrange our life around what we can do rather than what we cant.

I don't look at Emma and see a person with MS, I just see Emma. Sometimes she has good days and sometimes she has bad days. I admire how she copes with life, not how I cope with her as I choose to be here. She had no choice.

It's quite astonishing what you can take on and accept as perfectly normal and you never fully know what you can deal with until you have to do so.

Thank you for your thoughts though.