What Is Your Illness Or Who Ever You Care For

homealone_2

i have suffered with depression for 22 years and have spent most of those years on anti depressants which i still take. i have IBS and chrons disease. i slipped a disc in 2003 and had a spinal fusion on L3 and L4 18 months later but it did not work and now suffer with chronic pain and very limited mobility and unable to sit stand or lie in one position for very long and so am unable to work. i take very high doses of morphine which lead to chronic constipation which aggrevates IBS but despite rattling with opiates i still spend most of the day and night in pain. when first diagnosed was on a liquid morphine which was very sweet and due to this have terrible teeth decay and in dentist chair at least 2 or 3 times a month where either a tooth has just fallen out or started crumbling. i have already had extensive dental work done but now also need 4 crowns and 2 extractions. due to limited mobility and long bouts of time in hospital in 2 1/2 years i gained 7 stone. this increase in weight has caused arthritis in both my knees which i need injections for and have just been told i have sleep apnoea and an extremely high sugar count in my blood so am having tests for diabetes. due to all this i have been advides to have gastric bypass having pre op checks led to finding out about sleep apnoea which they hope to treat or i cant have op i also developed trigeminal neuralgia 3 months ago which is the worst pain imaginable, i was in an accident whilst in my wheelchair on a bus and was thrown clear from the chair and through the doors, since then have terrible headaches and blurred vision. besides all that i lead a very healthy life style ha ha ha

Millburn_farm

As to the pink; I'm with TaBunny & littleTinker nooooooo :lipsrseal pleaseeeeee

I have ME (not CFS) diagnosed for 16yrs; almost 17 :shocked:

for the 1st 5yrs I struggled with depression; but then from high functioning scientist to someone who can't count on a bad day

I was also born with a congenital heart disease, and have back problems following a motor bike accident whilst at Uni



BUT; I'm alive; I'm well enough to drive and today was almost killed by someone overtaking whilst I was on-coming; the good bits being a) I'm here uninjured (stiff; but fine) and I wasn't in the wrong

dumb_blonde

i just wanted to say i felt very humbled by reading this thread, it makes me wonder why i moan about my little problems.You all seem to still have great senses of humour and my best wishes go to you all.

Trialia

I have...

Fibromyalgia syndrome - in my case the wider syndrome/symptoms include migraines, IBS symptoms, menorrhagia, dysmenorrhoea, chronic pain and chronic fatigue, cognitive dysfunction (sporadic dysphasia, short-term memory loss, short-term memory sequencing impairment, poor ability to concentrate), anxiety, depression, TMJ disorder, morning stiffness, muscle weakness, impaired balance and sleep capabilities, nausea, paresthesia (I can never remember the BrEng spelling of that)... Oh, and local anaesthetic doesn't work on me, and at this point neither do mild pain medications - I'm on dihydrocodeine, which is Class B!

Hypermobility syndrome/Ehlers-Danlos syndrome type II - the 'official' dx is the former, but my father has the latter and that is hereditary, and doctors in the wider world are considering reclassifying HMS as EDS-III because they're so very similar. Chronic joint pain, stiffness, dislocations and subluxations, easy bruising, flat feet, deformed ribcage, minor scoliosis, extremely soft skin.

Rapid-cycling bipolar disorder, type NOS (not otherwise specified). This one's a lovely bundle of fun. My moods can swing to extremes from hour to hour, though sometimes I have an overlying episode of one particular mood that will last a couple of weeks or sometimes as much as a month before changing again.

Oh, and asthma. Which is the only one that could physically kill me, but comparatively mild in its everyday symptoms compared to everything else!

I'm 23 and I live alone, though technically in a shared household, and have no carer at the moment. I'm struggling a lot, but I can't live with my family for various reasons. I developed fibromyalgia after a nasty fall when I was 19...never walking on wet steps ever again!

earthmother

earthmother wrote: »

Hubby ... has lost the ligaments in his right knee joint (no fancy title - which means many people don't see it as a real issue) - it, along with HMS and the onset of arthritis has slowly over the last 7 years taken him out of the active workforce and placed him more and more often into a wheelchair. He also has high blood pressure, MRSA, Lymphodema, and suffered a pulmonary embolism last summer which has slowed him down even more, and placed him on warfarin. Oh, and the doc is also treating him for depression. :rolleyes: He takes so many pills he reckons he has shares in ICI

One more to add to the list - hubby went for a hearing test last week - it's his 4th in 7.5 years as we've both noticed problems, but in the past they've been cursory checks and 'everything's fine' type of sessions.

This time he got someone a bit more with it - he was in there almost 2 hours, had cameras stuck up his nose, scans/x-rays taken, and they've concluded that he has hearing loss due to a big, wonky, bone in his nose which apparently is distorting all the tissues around it. It's also causing his sleep apnea (now why didn't the sleep clinic pick up on that one the other month? - ah yes, they put it all down to his weight and didn't look any further :rolleyes:). The bone could apparently be fixed but they won't operate due to his weight and the GA - the hearing can't be fixed, but isn't bad enough yet for an aid - so he's now under yet another specialist for monitoring until it is.

We're in the process of DLA renewal forms, so you can imagine the 'extra info' we're having to write up. Never had a problem in the past, but we're worried about this one though - recently changed GPs so this one isn't up on everything, and the SW turned around the other day and said that she didn't think he needed the level of care I said I was providing - quite how he'd manage if I only did what she said was needed I dread to think, but that's going to feed back to the DLA isn't it


Oh, and third child - the one who we'd been told had escaped the HMS and it's associated issues - has been diagnosed with flat feet (would that explain the toe-walking? We'd always been told in the past that was an HMS trait), so now I have a three-for-three in the paediatric orthotics department and yet more pricy shoes :rolleyes:


I hate to think of our family NHS bill right now - thank goodness we don't have to pay for it all ourselves :eek:

colin13

earthmother wrote: »

Hopefully some of the mood swings and depression will ease now she has accepted the wheelchair. DH has a totally different illness, but it took him several years before he'd accept he needed the chair regularly - he was determined to stay out of it, to the point where he was missing out on things like the kids school plays because he wouldn't be seen in the chair in school and couldn't sit in the hall any other way (which in it's own respect wasn't helping his state of mind).

Once he finally admitted to himself that the chair was now a fact of life, and has managed to get out and about that bit more (he's managed two plays since christmas already - made the kids days to see daddy in the audience ), a lot of his moods/depressions have started to lift.

The other day he actually said he felt he wanted to discuss coming off/reducing the happy pills with the GP. Whether it will become a reality yet is to be seen, but the fact that he's come this far is great

I suffer from primary progressive MS,,my walkin balance is terrible,but when we go to shopping malls I will not get a chair(stupid I know) I was Diagnosed in 1999 ,,and it takes me w hile to accept things are changing,,got walking stick about 4 yrs ago ,would use it everywhere except home town:) but got over that1 of these days something will click and I will accept my limatations and when I go shoppin get a electric buggy,,but untill then if u c someone with a stick walking slowly in a shopping mall it will be me

busiscoming2

Hello there, I was just nosing through the boards when I fund this one: You all are such an inspiration to people like me who apart from the odd ache and pain are healthy and mobile! I always try to be grateful for being well but life can throw a curved ball from time to time. I shall think of you all when I start to feel hard done by.

ladylumps45

hi, im 35 and have a rare myeloproliferative bone marrow disease.
i also have intra cranial hypertension (too much pressure in the brain).im on opiate pain patches and oral morphine amongst a load of other meds.these make me soooo spaced out and weird and sick and its not nice.i have a 12 yr old and 11 month old daughter and they make life worthwhile really although my husband is my carer and deals with the children too.
its so easy to get down when i see the girls doing things that i would love to do with them and cant.
i use a wheelchair as just to walk and sometimes to cough hurts so much.
all of us have our illnesses but as long as we can smile we will get through day by day! best wishes to you all xx:D

holistic_witch

thought i would put mine and sons in but are minor compared to most

Me
oesto arthrititis knees hips - can have worst knee replaced next yr woooooh - now morphine great as tramadol doesnt do anything
PCOS Son 6 yrs
HMS ADHD
fibro ODD
cervical spondylosis ASD nearing diagnosis
scoliosis lumbar spine Speech and Lang
IBS Dyspraxia
Insulin Resistant Sensory issues
Rhinitisis sinusitis
Nerve damage ulnar left arm
Carpal tunnel right hand
Circulation probs hands/feet
Breast lumps (cant remember offical name)
I'm 37 yrs

holistic_witch

sorry it seems to have merged mine and sons together
Son 6 yrs
ADHD
ODD
ASD nearing diagnosis
Speech and Lang
Dyspraxia
Sensory issues