What Is Your Illness Or Who Ever You Care For

maytaurus

severina_2

I've been battling for all my teenage and adult life,
Borderline personality with Bi Polar traits,
ocd,
Severe Anxiety,
Panic attacks,
Social phobia,
A list of problems that means i'm now being queried for Aspergers

On the positive side i've just completed 1 year of being self harm free, and after 15 years even i think thats not bad going!

Millburn_farm

severina wrote: »

On the positive side i've just completed 1 year of being self harm free, and after 15 years even i think thats not bad going!

:T:T Well done

Teahfc

Wow what an amazing thread ..I have Dilated cardiomyopathy but over the past 4 years have seen my health improve to the stage where I can cycle 15 miles from not being able to walk 10 yards.

You guys are AMAZING, I wish I could assist each and everyone of you in some way. :A

Jadiee-x

Hi, Im a newbie here, my first post actually.

I was born with a large brain mass (arachnoid cyst), infact when it was spotted as a baby, it was half the size of my skull.
After brain surgery to insert a draining device (Shunt) the mass decreased and is now at a constant size which is like a boomerang shape, 10 and half cms by almost 4 cms.

I had my first brain surgery at 13 months old.
Then again at 4 years old.
Again an emergency operation at 16 years. && also the day after.
THEN a week later && the next day after that too!!
&& my last surgery was in February just gone, 6 months after the previous surgery.:eek:

Treated at the world famous, Great Ormond Street hospital

earthmother

Anyone wonder when they'll exhaust the possibility of yet another diagnosis?

When I last posted, hubby was in the process of sleep studies for what they thought was a simple occasional sleep apnoea.

He got the results back on Tuesday - Severe (apparently off the scale) Obstructive Sleep Apnoea. In the 2.5 hours he was able to sleep comfortably with the machine on, it registered over 200 30sec+ stops in his breathing - with SATs averaging at 62% and at one point dropping below 50% :eek:

I've seen him with SATs at 79-80% and that was scary enough - he was blue-lighted into hospital twice in the last 9 months with them (P.E. the first time, pnuemonia the second)

So, rush appointment yesterday, and now he's got a CPAP machine next to his bed rather than his alarm clock. At least the kids aren't scared of it though - makes him sound like Darth Vader which they think is great :rotfl:

ladylumps45

HI earth mother
your hubbys results are scary! but at least now something can be done about it which is brilliant.not scaring the kiddies is a certain bonus too lol.
keep posting with updates as id like to know how hubby gets on:o
since i posted on this thread last,ive been to kings college hospital in london and im now expecting a letter any day for admission.
im really scared and the thought of leaving my husband,12yr old and 13 month old daughters is awful.how will they cope without me !!!lol:D
its 2 hour drive from where we live and il be so lonely but i have to remember that its for the best and im lucky to be helped.
best wishes to all of you and if any of the previous posters have any updates etc it would be nice to hear from you.x

surrobeth

After my 5th pregnancy early last year I went my GP with back, legs and bladder problems, she sent me for an MRI suspecting a slipped disc but the MRI showed I have a form of spina bifida and tethered spinal cord syndrome. The end of my spinal cord is trapped much lower in my spine than it should putting it under extreme tension, so over the years my cord has not had the blood supply it should and every move I make causes more damage.

I had some mobility and continence issues in my childhood and teens but the docs could never find an answer so I just got by. Over the past year I have deteriorated rapidly, I'm in a lot of pain, can only shuffle and stumble not walk and even then only using a stick or frame or holding onto someone, my stick and frame both have seats as my legs give way frequently. I am also losing the use of my left arm and have further continence issues.

I should soon be getting surgery to release my cord, it's risky but without it I will continue to decline. I've been warned the op won't improve things, it is just hoped it will stop me getting worse, at least for now. I was told I needed "urgent" surgery in November but lost MRIs and general NHS delays mean I am still waiting and worsening.

Sorry if I rambled, I am still in a bit of shock about all this, I am used to being very active and the one in the family who cares for everyone else, I am finding it very hard to come to terms with the fact I am disabled.

CarerQuie

I have diabetes and depression but don't claim DLA.

My son gets DLA because he has autism and anxiety. xx

robbond55

Suffering from Multiple Sclerosis.
Wife says she suffers from a pain in the a*se.
I don't understand what she's getting at...:rotfl: