Fibromyalgia (part 2)

purplecatlover

morning all,

sue good luck with packing and organising to leave in the early hours, have a good time there. i hope the tooth is at least starting to feel better and didnt keep you awake.

have a good day everyone.

LameWolf

suep wrote: »

lw Do you think you could use soya milk and cream in an ice cream maker ? I buy Swedish Glace which is lush, but quite expensive and Ive been wondering if I could make my own. Im not a big jam eater, but I could live on ice cream, which is just as well at the moment, as its about all I can eat

I've never tried it, but I can't see why it wouldn't work - I'd be inclined to give it a go and see what happens!:o I had a quick poke about on the Web, and found this
http://www.veganvillage.co.uk/recipes.htm
which might be of interest. I think there are some ice cream recipes there. I hope that tooth is better soon - there's nothing more miserable than raging toothache.

bigzippy wrote: »

The rest of you will more than likely be glad to know that I have a doc appt tomorrow morning (yes! I said morning! :shocked:) at 11am. I shall let you know how it goes.

I'm pleased to hear it. You'll have been by now - I hope you told the doc everything you've been suffering lately, and look forward to hearing that you are feeling better (she says, hopefully).

Paparika wrote: »

But OH today made me go out with him to take the dog for a stroll around the block before he went back home, hurt like anything, but pup enjoyed it. lil furball fast alseep beside me on the sofa (the pup not the OH)

Can I be insufferably nosey and ask what sort of woofer you have? Any chance of a piccy? (In case you didn't realise, I simply adore dogs):D

Sharon it's lovely to hear from you - sounds like you had a fantastic weekend! I hope the radiotherapy wasn't too unpleasant.

I'm still feeling fearfully tired and "out of it" today, but I have no choice but to get off my posterior and do some baking, or Mr LW will have nothing to put in his lunchbox tomorrow. Don't worry, I shall take my time and do as much of it sitting down as I can.

kassandra

Just popping my head round to say hi to Paparika. Hope you find a bit of comfort here xxxx

suep

I slept ok last night until the Tramadol wore off, then the pain was horrendous, I took another 2 but then had to wait for them to kick in, they take the edge off this toothache even though they dont work with my Fibro pain, so Im glad Ive got them. I woke up again at 7.00am with the pain back so I got up then. Im not sure if it's not so bad now or if its the Tramadol working, Im not going to stop taking them just yet to find out either :rolleyes:

lw thankyou for the website, I will definitly have a go at making soya ice cream when I get home, I'll let you know how it turns out.

Must go and write some more things down for dd on her list of things to do, I wonder if she will actually do any of them this year :rolleyes:

I'll try to pop in later, if not see you in a week xx

bigzippy

LameWolf wrote: »

I hope that tooth is better soon - there's nothing more miserable than raging toothache.

I'm pleased to hear it. You'll have been by now - I hope you told the doc everything you've been suffering lately, and look forward to hearing that you are feeling better (she says, hopefully).

Sharon it's lovely to hear from you - sounds like you had a fantastic weekend! I hope the radiotherapy wasn't too unpleasant.

I'm still feeling fearfully tired and "out of it" today, but I have no choice but to get off my posterior and do some baking, or Mr LW will have nothing to put in his lunchbox tomorrow. Don't worry, I shall take my time and do as much of it sitting down as I can.

Suep and sharon: wot she said

lw glad to hear it...you take it easy missy!

As for my docs...I've got some sleeping tablets to try and a refill on everything else. He's upped the lyrica to 75mg in the morning and 150mg at night so we'll see how that goes. He reckons the collapse was more than likely the exhaustion, as I thought, and that the dental abcess won't be helping.
I said about the wheelchair service and that he hadn't sent a supporting letter and he said he didn't want to encourage people my age into wheelchairs! I said that was ageist! That said something along the lines of he thinks that young people should push themselves!! What the hell?! I've got ME so I can't do much and they want me to pace myself, but now because I'm young I'm supposed to push myself?!?! :mad: Am I the only one that thinks that's well off?!

suep wrote: »

Im not sure if it's not so bad now or if its the Tramadol working, Im not going to stop taking them just yet to find out either :rolleyes:

Must go and write some more things down for dd on her list of things to do, I wonder if she will actually do any of them this year :rolleyes:

I'll try to pop in later, if not see you in a week xx

I don't blame you Have a great holiday suep

Careful_with_that_Axe

bz How did you resolve it with doc in the meantime about wheelchair? I hope he is gonna do a supporting letter otherwise I may have to Auntie Axe him!
Hope the meds changes help you.

sue I hope you have an absolutely wonderful holiday and come back happy and refreshed.

I am everso tired, but can't have a nap til later as landlady is popping for coffee later to say hello and sort out a few small issues.

I am relieved to have BB again and now just need to scrabble on the kitchen floor to sort out these fittings - then I think apart from pottering, I'll call it a day.

bigzippy

Careful_with_that_Axe wrote: »

bz How did you resolve it with doc in the meantime about wheelchair? I hope he is gonna do a supporting letter otherwise I may have to Auntie Axe him!
Hope the meds changes help you.

It's not resolved. I said it was unhelpful. He just said it was his opinion. :rolleyes:
I hope they help too, but I suspect I won't see any significant change til I have this abcess sorted.

Sounds like calling it a day is a good idea Auntie Axe - I think you've done more than you realise...

TOBRUK

bigzippy, what is your doctor on about?! He says its exhaustion and next breath tells you to push yourself! I have M.E. and I have on occasion tried to push myself and as a result suffered for days after. Do you have a doctor you see on a regular basis who understands the illness?

I haven't been on this thread for months as I have had a difficult few months with the M.E. I am lucky if I leave the house once a week just to get a few groceries and when I get back to the house I have to lie down! I am having difficulties just coping these days and am getting worried as I live alone and can go days without seeing anybody.

These warm days are killing me - just zaps the energy (the little I have) out of me.

bigzippy

TOBRUK wrote: »

bigzippy, what is your doctor on about?! He says its exhaustion and next breath tells you to push yourself! I have M.E. and I have on occasion tried to push myself and as a result suffered for days after. Do you have a doctor you see on a regular basis who understands the illness?

I haven't been on this thread for months as I have had a difficult few months with the M.E. I am lucky if I leave the house once a week just to get a few groceries and when I get back to the house I have to lie down! I am having difficulties just coping these days and am getting worried as I live alone and can go days without seeing anybody.

These warm days are killing me - just zaps the energy (the little I have) out of me.

I had wondered where you'd been. Hope you feel a bit better soon. I know what you mean about the heat too and when I lived alone/was single I was the same struggling to see anyone/go anywhere...

As for my doctor, he is my normal GP...he's usually really good, and he listens to everything and does what he can - unfortunately on this occassion it would appear that he has a personal opinion on this that won't be changed much...I know you're all gonna say that that shouldn't sway his professional actions, but we all know it doesn't work like that sometimes. :rolleyes2:undecided I told him that I wouldn't've minded if they'd've said to me that they didn't have the funding to cater for my level of requirement - I would've gone out and bought one myself, but they didn't say that - they made out like I was asking for something unreasonable and it's so frustrating - especially when you feel like you're finally starting to take control of managing your condition and sort things out that'll help! It just feels like, with everything we ask/apply for, we get evaluated and scrutinized and examined and found wanting at every turn - whether it's cos we're too ill for something, or not ill enough! It's ridiculous and it makes coping with the everyday struggle of being ill SO much worse. :mad: It infuriates me.

Thanks for popping your head in tobruk - I hope you know you're welcome any time

LameWolf

Tobruk I know exactly what you mean - it's far too warm for me, and I feel like a week-old cabbage, physically and mentally! Welcome back, btw.:o

BZ imho your GP is talking out of his @rse. Surely to goodness, a wheelchair to allow you to do the "big" outings without wrecking yourself would allow you so much more freedom (ie energy) to do more other things.Or am I totally missing the point? *Mumbles cynically about "NHS Bean Counters"*.

Auntie Axe, take it easy will ya? You make me tired just reading all you manage to do in a day!:o

Chocolate buns have been made, as has cheese tomato and Quorn quiche (just need to be baked) and the dough for the rolls is being made in the breadmaker, so I'm getting there.

I've also done the labels for the jam we made on Sunday - I was going to do them yesterday but my poor brain was so fuddled I couldn't remember how to work the label program.

Just taken a dose of Oramorph as my back is giving me merry hell, and can now sit/lie down on the sofa for an hour til I have to see to the breadmaker.