Fibromyalgia (part 2)

bigzippy

:wave: meekly...Not got much to say today. Slept about 3.30am til about 4 - with a bit of awakeness to deal with the dog(s) howling like a wolf this morning! (Wth was that about?!) Feel more tired than yesterday for some reason....waiting for DF to return from putting his ma's bin out to make me some spag bol...I couldn't even be @rsed to make a butty today. :rolleyes:

Careful_with_that_Axe

Enjoy your spag bol bz and hope you get some more decent sleep. Sounds like it's all catching up with you.

sharon That does sound like a fab weekend!

bigzippy

Ta Cwta. Still waiting for spag bol to get started....I'm gonna start eating the dogs soon....at least they'd come to me

bigzippy

Paparika I don't have much to add to what the others have said...esp as I'm not really with it atm anyways...:rolleyes: I was in a bit of a similar situation with you as to the work thing - but I'd been signed off sick for a longo time before they worked out what was wrong with me, to the point where I'd exhausted SSP and was transferred to applying for IB etc. The thing is, only you know whether you're capable of working, and the more time you have off (whilst kidding yourself that you can do the household stuff most likely) the more likely you are to realise that you can't do a lot and that it may include working fulltime/part time/the job you used to. Only you'll know the level you're capable of in the end.

The rest of you will more than likely be glad to know that I have a doc appt tomorrow morning (yes! I said morning! :shocked:) at 11am. I shall let you know how it goes.

suep, good luck with the packing and the wisdom tooth thing. I've seen how bad it can get as Df has some impacted teeth to be taken out too.

sharon was DS one or GS one?

hi pooh and hassie (I see you lurking ) :wave:

P.s. the spag bol was tasty

Careful_with_that_Axe

*sigh*

Today has been a day of frustrations. SatNav took me to a housing estate behind the place here I was doing the job this morning and spent ages trying to work my way round to entrance. Have spent many (happy? NOT!) hours on my hands and knees in the kitchen (Matron!) trying to connect the cold feeds to the washing machine and dishwasher and have finally remembered how weak my hands are which would explain why the connectors leak. I'll try again tomorrow with a spanner rather than the footpriints I was using which will be much easier.
After much tooing and froing, I finally have BB on although I can only connect using my Virgin software when I have a sky connection, so not sure who I should be paying and certainly don't ant to end up paying both.
I'm just a bit frustrated, fed up and mooky, but a good nights sleep will sort me out - I hope!
I say bring back parchment, quill pens and washing boards! It's gotta be simpler!
Sleep well all.

Paparika

Thanks for the info.

big sigh of relief that finally after calling my manager this morning to tell her of my hospital results, she calls me about ten to five this afternoon, and admittedly i felt smug to inform her that this issues they had me with with not taking it all and and making mistakes (got redeployed in Feb this year, previous department was fab and very understanding of my uvitis and needs with that) (they tried to start the ball rolling by kicking me out using the capability procedure) even though i kept telling them that i was having memory issues and i thought it was illness related) omg didn't it feel good to inform her that it was part of my disability. i hope she feels remorse for the hell they have put me through.. Union saw right through the capability thing and made them retract that until i had a diagnosis. now i know why i have days of being dipsy/flaky/complete airhead, it doesn't upset me so much knowing there is a reason behind it.


So now to get on with the management of this... can't sleep at night, when i do sleep its usually until about 11 ish, half the day wasted

But OH today made me go out with him to take the dog for a stroll around the block before he went back home, hurt like anything, but pup enjoyed it. lil furball fast alseep beside me on the sofa (the pup not the OH)

bigzippy

Hope the day's better tomorrow Cwta and you get it sorted out.

Paparika glad you got some satisfaction today! And I know what you mean - it's a mixed bag finally getting a diagnosis and knowing that it wasn't all in your head, but then realising that there's no cure (or, essentially, proper treatment :rolleyes:) and it's something we have to "manage". Hopefully you'll find us a friendly (if not helpful ) bunch and feel free to stick around and stick your oar in...we often do

Paparika

bigzippy wrote: »

Hope the day's better tomorrow Cwta and you get it sorted out.

Paparika glad you got some satisfaction today! And I know what you mean - it's a mixed bag finally getting a diagnosis and knowing that it wasn't all in your head, but then realising that there's no cure (or, essentially, proper treatment :rolleyes:) and it's something we have to "manage". Hopefully you'll find us a friendly (if not helpful ) bunch and feel free to stick around and stick your oar in...we often do

hehe thanks. would love some tips on surviving the day and be able to have the strengh to cook dinner once in a while

bigzippy

Paparika wrote: »

hehe thanks. would love some tips on surviving the day and be able to have the strengh to cook dinner once in a while

Tbh paparika that's one thing that made me realise I couldn't work! I figured if I couldn't properly manage to just basically look after myself (shower regularly, dry my hair, make a bit o lunch, occassionally put some washing in etc) then how on earth would I do all that plus working? And then I thought - well what if I just do something that only uses my brain/work from home - but then you realise fairly quickly that with the issues we have with memory and concentration, quite beside the toll concentrating for longer than the (usually recommended) 20mins takes on the ol' energy reserve, that that's unlikely too - at least as a regular arrangement....or at least that was the conclusion I had to come to. And trust me, it wasn't an easy one to reach.
As for making tea, it's rare I manage that more than once a week and I only manage that now that DF (dearest fianc! if you're not in the know ) is around and does most of the housework (for most see everything he cba to do from all the stuff I don't - in fact, just everything!), I've moved to a house with a toilet downstairs (the stairs ruined me!) and a dishwasher (I actually have clean dishes now! Although it should be mentioned that DF generally fills and unpacks it :shhh:) and take it very easy. I've been told and read for myself, ME and/or Fibromyalgia sufferers are recommended to only do a task (concentrating/driving/reading/watching tv/cooking/pottering/whatever) for 20 mins - at least to begin with. Perhaps if you cut down on some of your daily activites that you don't even realise takes energy you might have a bit more to use in other areas that makes you feel productive (such as cooking)...? I've found that not walking round the supermarkets etc not only reduces my pain and fatigue at the time, but also enables me to do a bit more for that eve/day after/few days after....hence I've asked for a wheelchair now...but that's another story :rolleyes::o

Hope something in that mass of rambling helps!!:o

Paparika

bigzippy wrote: »

Tbh paparika that's one thing that made me realise I couldn't work! I figured if I couldn't properly manage to just basically look after myself (shower regularly, dry my hair, make a bit o lunch, occassionally put some washing in etc) then how on earth would I do all that plus working? And then I thought - well what if I just do something that only uses my brain/work from home - but then you realise fairly quickly that with the issues we have with memory and concentration, quite beside the toll concentrating for longer than the (usually recommended) 20mins takes on the ol' energy reserve, that that's unlikely too - at least as a regular arrangement....or at least that was the conclusion I had to come to. And trust me, it wasn't an easy one to reach.
As for making tea, it's rare I manage that more than once a week and I only manage that now that DF (dearest fianc! if you're not in the know ) is around and does most of the housework (for most see everything he cba to do from all the stuff I don't - in fact, just everything!), I've moved to a house with a toilet downstairs (the stairs ruined me!) and a dishwasher (I actually have clean dishes now! Although it should be mentioned that DF generally fills and unpacks it :shhh:) and take it very easy. I've been told and read for myself, ME and/or Fibromyalgia sufferers are recommended to only do a task (concentrating/driving/reading/watching tv/cooking/pottering/whatever) for 20 mins - at least to begin with. Perhaps if you cut down on some of your daily activites that you don't even realise takes energy you might have a bit more to use in other areas that makes you feel productive (such as cooking)...? I've found that not walking round the supermarkets etc not only reduces my pain and fatigue at the time, but also enables me to do a bit more for that eve/day after/few days after....hence I've asked for a wheelchair now...but that's another story :rolleyes::o

Hope something in that mass of rambling helps!!:o

Brilliant thanks

DS came home from school and i sat down and explained to him our long awaited results, bless full of raging hormones at 14 but understands when i am sat down shouting instructions/orders, yes it is me being stressy but not lazy.

OH i think needed to hear i had something wrong with me (he was the same when i found out i had uvitis) but once he drove me back home from the hospital, he started to have a nose on the net and you could see him relax knowing that again its not me being a lazy cow that this 'thing' really exists, made sure i had everything i needed and i sent him home to his cat. Its been one heck of a day bad news/good news/bad news/good news.
but such a relief

nn all