Fibromyalgia (part 2)

Careful_with_that_Axe

pcl sounds like you can keep it lit from what I've been told. I'll be able to tell you more when I've seen it tomorrow.
Shame you can't choose family isn't it. Don't let it get to you if you can help it.
Will try to mentally send you lots of patience!

bigzippy

Good luck for tomorrow Careful.

Sorry I've been a bit absent and quiet lately guys. I've been lurking more than posting.... I've just been feeling a bit weird since my birthday really - a bit like wondering what the point is... I don't really feel like a useful member of society, cos I don't feel like I'm contributing anything - you know? And I'm a bit fed up with the daily grind, not feeling like I've gotten anything done, made any progress with the house... I hate that I have all this time on my hands, but nothing productive to show for it. I hate that I have to put pressure on DF to do things in his spare time - of which he doesn't have a lot of - around the house or whatever, that I should be able to do myself, and before the illness(es) took hold I would and did do them for myself. It's so frustrating. And to add to that it's like we have to prove our existance, and our right to exist, to the cynics, the unbelievers, the authorities and the benefits agencies. And then when you have proved yourself to the bluddy authorities and benefits agencies and struggled through their pathetic and frustrating beaurocracy and finally got what the basic rights you applied for months ago, it's a complete anticlimax! Hmph. Sigh. Grrr. *Swear* :mad:

So that's where I'm at. I'm sure you can all empathise/associate yourself with that/the right word that I now can't think of cos of the freaking fog! :mad:

bigzippy

Oh...and I hate that constant feeling of suspense that you get with the seemlessly endless stream of hoop jumping that is claiming for what you are rightfully entitled to...and that goes along with constantly wondering how your health will be at x event/organised activity/trip out...and that goes along with wondering what other people's reactions will be to whatever recent symptoms/coping strategies/weight difference/situations will be. :mad:

MAKE IT GO AWAY!!!:mad:


Vent might be over now...perhaps.

bigzippy

I remembered what the word is : RELATE. I know you guys can all relate to it.

Phewf.

purplecatlover

thanks careful. keeping it lit will be better, easier too than relighting it iirc.

bz i wish it was possible to make it all go away, since thats impossible i will point out that you are a useful member of society, especially this community here and to mil2b from what i can see. your giving a lot more in terms of empathy and advice and companionship than many so called useful, working people do. and you do achieve many things each day, you've been dealt a !!!! hand with the illnesses but you dont let them stop you form doing everything, you get up and get things done every day, even if its not everything you should be able to do. thats major achievement in my book. stuff what society marks as achievements, id love to make every single policy maker live as one of the people they think should not recieve benefits, just for a day or two, they would give in and give up after half the day if the had to put up with so much crap constantly. likewise all th epeople who complain that their money goes on benefit claimants. id love to see them live on the measely ammounts compared to their salary that they complain about

raeh

hello all, a quick post before we go !!!!!! for a few hours :rolleyes: i have read through but just quickly so wont be answering much

auntie axe very nice to see a photie of you

LW enjoy the tim with mr LW

sharon hope you are feeling ok and everything is going well with the treatment, as always my thoughts are with you and all the positive vibes i have xxxx

pcl im a bit lost as to where you are and what you are doing but i hope everything is ok with your family xx

bz hugs to you xx i hope you can brighten up soon, its hard when you feel low. Iv been feeling that way myself and not for any particular reason?? which then makes me feel guilty for feeling pointless? Its just that horrid grey cloud that hangs overhead

sue your hair sounds fab i have to work myself up to booking an appointment hence taking the scissors to myself recently

hello to everyone else

auntie axe the appointment was pretty pointless as usual, Why wont they remember that my pain threshold will be less than other people and not leave me in tears? [but thats not a story for main board!! ] and the rest was just keep on as you are and fibro is to blame for everything i do have a better than perfect liver though and my cholestrol is as low as it could possibly be. My problem is that because i hold down a job and appear to manage daily life very well [ie dont need a wheel chair and dont have help with things] they see that before any thing else??

right i wont bring the mood right down by whinging

hope everyone has a good day and hopefully we will all be back later xxx

raeh

oh forgot to say, auntie axe i hope everything goes well with viewing the house xx

Tiger_greeneyes

Morning all

I didn't get to the pain clinic - I got a phonecall of doom in the wee hours - my stepfather hassed away. Not unexpected but a shock all the same. My Mum has been keeping me really busy, my feet have hardly touched the ground and I'm exhausted. I don't sleep well at the best of times so I'm having to down the Red Bull (well, the Tesco version (Kick)) like it's going out of fashion.

Mum's very MSE though, she mentioned she might go with Co-op Funeral Care because the extra reward card points will come in useful

I'm back around Mum's again shortly, just trying to take it easy while my painkillers get to work. It's no good though, going to have to shovel some more in.

I hope you're all having a better weekend than I am!

raeh

tiger im really sorry to hear that i hope you dont burn youself out too much worrying about your mum and rushing about xxx

Careful_with_that_Axe

tiger, I'm so sorry. Even if it wasn't unexpected, you have to come to terms with the reality of it rather than the thought of it iykwim. Look after yourself as well as your Mum eh? And have an extra 'ug.

raeh, do you think you've come to the end of the road with your surgery? It's awful if they left you in tears and maybe you could now think of changing to another doc? Yu may appear to live a "normal" life in their terms, but what about the toll it takes on you to do it? You may have an extra 'ug too. *g* And this is just the place to have a winge not to hold it in!

House today was dismal - painted in shades of 20 year old nicotine, stairs like a cliff face with no bannister and not updated since 60's. Grim (*winks at bz*). So I am back to sighing copiously. I did hit hopelessness, despair and got tearful for an hour or so afterwards though.
I think I can spare some 'ugs for the rest of you too. *g*