Fibromyalgia

Careful_with_that_Axe

Oh my poor love!
Do you have the energy to make a complaint, or do you just want to let the dust settle for a bit?
They just don't seem to be accountable at all. Blatant incompetence, but they still get to stay in their jobs!
Have you thought about getting in touch with your MP or Social Services or anyone?
Sending you lots of hugs and I'm so sorry that I made a joke about it.
x

yellowrock

Hi All - esp Sharon59 & Unity, for replying to my post on tmj probs, I will give the sherbert lemons a go!

I too hav fms, been struggling of late with my osteo arthritis too. am waiting to see endocrinologist at local hosp due to lots of hypoglycaemic attacks, my blood sugar is all over the place! Recently have been trying to keep to a low GI diet and have noticed a slight improvement in my fms symptoms, when I did sneak some chocolate I got a real nasty flare! Not got diabetes though, but have heard low blood sugar is a common symptom of fms. I work part-time but sometimes it feels like it is 70 hours a week!! Well I suppose it is if you take into account running a house and looking after my son. My hubbie is great but I do feel guilty sometimes that he has to do so much to help me, I just want my independence and social life back! Would be lovely to hear form other fms suffer's and have a chin wag? I feel like the local hospital are going to start labelling me soon! Have a spinal appt, dermatology, endocrinology, max fax, podiatry( have dislocated my little toe 10 times- ouch!) Must admit all stuff is prob down to fms, but would like an opinion on it all and my GP seems happy enough to keep referring me on -suppose it takes me off her hands for a while!

thanks for listening
Yellowrock

yellowrock

Hi Sue P

I too have sacroiliac joint probs, had a go at nearly all the treatments apart from surgery( too drastic). I went on a great back pain course at my local hospital and they told me to go swimming which I took up 3 years ago. At first it was agony, could hardly change into my swimming cossie, but it has got better. I go about 3 times a week and do what I can, it really has made a big difference and I notice when I dont go. It flares my fibro which in my case is the lesser of two evils, rather the fibro than the excruciating back pain. Hope this helps.
I too am reiki qualified as well as indian head and neck massage and refelxology, although I can only do one client every so often due to my back and fms! If you are nearby and fancy a bit of pampering let me know! it sounds like you could do with it.
good luck
Yellowrock

suep

Hi Yellowrock, Im nervous of swimming as my local pools have quite cold water which brings on muscle spasms, although I do agree it's probably the lesser of 2 evils as the sacroilliac pain is definitly worse than the Fibro. The heumi I see has just said nothing can be done about it, I think he's just put it down as part of the Fibro, Im not sure about this as I've only had it about 3 years, I also have interstitial cystitis which again can be worse than anything else at times.
Your reply is the nicest one Ive ever had since Ive been on this site, I would love to do a Reiki swap , I live in West Sussex, dont know where you are ? Maybe we could just send eachother distance healing. I would love to learn a few other therapies like you have, but the last couple of years have been extremely tough, I dont seem to have good days anymore.
Im so glad you found something thats helped your back.
Thankyou for replying
sue

raeh

Unity wrote: »

I was diagnosed with TMJ last Christmas and got a splint from my dentist to wear at night, which helps a little. I've also had a couple of attacks of trigeminal neuraligia - I don't know if that's associated or not as that's the only painful part for me. I have the very loud clicking noise when talking or eating and I've had to adjust my diet accordingly. I sometimes get my jaw sticking - so I can't open or close my mouth and I look like a ventriloquist's dummy, which can be quite alarming :eek:. I believe there are injections for the pain and they can operate. You should be able to get a leaflet from your local hospital with details on how to cope.

Best of luck!

yellow rock and unity i have tmj, i was given exercises to do to strengthen it but it clicks and sticks open if i bite too wide, i have to break bits of food off and put them in my mouth and i havent a chance of yawning! if i forget i now have to sort of snap it shut. I am going to have to have a bite guard as i bite my teeth together when im asleep and when im in pain which obviously is quite regularly.

bigzippy wrote:

I agree with the identifyable causes of headaches - dehydration is one of my big downfalls, but I've now taken to refilling a 1l sports bottle (Buxton or whatever with the spouty top) with cordial once or twice a day so I've always got something with me that doesn't require me to have co-ordination or be sitting up to drink from! It's also less annoying than returning to the kitchen everytime my glass is empty

I do also consciously (sp?) think about how tense my muscles (particularly around the jaws) are and I'm very aware of whether I've been clenching my teeth in my sleep (a by-product of the lucid dreams and associated stress factors I fear).

careful_with_that_axe wrote:

Just wandered back in to say that some of my headaches are from identifiable causes. I have a tendency to get dehydrated and this is something that bring on a bonce pain. also, I think as a result of always being in pain, my shoulders are always hunched up round my ears which causes tension in the muscles which contributes to pain in the head.
I do consciously relax the muscles and bring my shoulders down, but it's easy to forget!

The biting my teeth together is giving me lots of pain in my jaw and neck and is part of the reason i have lots of head aches. All i have to do is remember to relax it but thats easier said than done. I know i keep my muscles tensed alot too which doesnt help the pain but then its pain that makes me do it, i have a problem with my neck which makes it difficult to move?? now im confusing myself lol and im stopping before this becomes yet another of my posts listing complaints

hello :wave: to suep

somebody_else im so sorry you had all that to cope with

im sorry if iv missed anything important anyone has said, an early night is needed tonight if possible as im sure ds2 will be up at the crack of dawn for his pressies :rotfl: mind you sleep isnt going to be easy whilst ds1 is hammering away on the guitar hero drums up there :rolleyes:

wishing everyone a restful nights sleep xxx

raeh

suep wrote: »

Hi Yellowrock, Im nervous of swimming as my local pools have quite cold water which brings on muscle spasms, although I do agree it's probably the lesser of 2 evils as the sacroilliac pain is definitly worse than the Fibro. The heumi I see has just said nothing can be done about it, I think he's just put it down as part of the Fibro, Im not sure about this as I've only had it about 3 years, I also have interstitial cystitis which again can be worse than anything else at times.
Your reply is the nicest one Ive ever had since Ive been on this site, I would love to do a Reiki swap , I live in West Sussex, dont know where you are ? Maybe we could just send eachother distance healing. I would love to learn a few other therapies like you have, but the last couple of years have been extremely tough, I dont seem to have good days anymore.
Im so glad you found something thats helped your back.
Thankyou for replying
sue

sue i said a while back on here that its always swimming that people suggest for fms as its not weight bearing but i just cant manage it and the cold gets me however warm it may feel to other people and my arms just cant manage any swimming stroke, it leaves me totally exhausted.

a friend of a friend does reiki and she has offered to give me a session to see how i feel and im looking forward to it even if it just helps me to relax that day

yellowrock

Originally Posted by suep
Hi Yellowrock, Im nervous of swimming as my local pools have quite cold water which brings on muscle spasms, although I do agree it's probably the lesser of 2 evils as the sacroilliac pain is definitly worse than the Fibro. The heumi I see has just said nothing can be done about it, I think he's just put it down as part of the Fibro, Im not sure about this as I've only had it about 3 years, I also have interstitial cystitis which again can be worse than anything else at times.
Your reply is the nicest one Ive ever had since Ive been on this site, I would love to do a Reiki swap , I live in West Sussex, dont know where you are ? Maybe we could just send eachother distance healing. I would love to learn a few other therapies like you have, but the last couple of years have been extremely tough, I dont seem to have good days anymore.
Im so glad you found something thats helped your back.
Thankyou for replying
sue

Hi suep

Thanks for your reply, I am so glad you liked my post to you. Kindness goes a long way to helping to heal. I live in the East Midlands so distance is a bit of an obsticle, but distance healing is a great idea! I am studying flower remedies at the mo, although i have hit a bit of a bad patch with my studying - brain fog time! If I come across anything that may help anyone on the forum I will post it up! I am sure my jaw pain is down to stress and clenching! I do know I clench when my hubbie is snoring and keeping me awake from pecious sleep, I am trialing some of the flower remedies at the moment so will keep you all posted on any positive effects I have.

night to all, sending lots of healing and positive vibes,
yellowrock

Ps what a great forum, its lovely to chat to like minded and bodied! people

bigzippy

somebody_else wrote: »

Sorry to drag this up again. Saw it the day (?after) it was posted but wasn't in a fit state to reply at the time.

[So, under the circs, why hadn't he done it sooner? I've now come to the conclusion that TMftC is bordering on incompetent.]

Oh don't be sorry s/e - we like a good yarn 'ere

My only question is... did it really take you that long to come to the conclusion that he was "bordering on incompetent"? I'd say he was a bit of an idiot, imho. :eek:

bigzippy

raeh wrote: »

sue i said a while back on here that its always swimming that people suggest for fms as its not weight bearing but i just cant manage it and the cold gets me however warm it may feel to other people and my arms just cant manage any swimming stroke, it leaves me totally exhausted

I'm the same. I used to go swimming 3 times a week before I got this much worse. The cold is too much, of both the water and the ambient temp... that's before we factor in the wet hair and cold air outside etc etc. I'm wary of them being a virus breeding ground too...

Careful_with_that_Axe

bigzippy wrote: »

I'm the same. I used to go swimming 3 times a week before I got this much worse. The cold is too much, of both the water and the ambient temp... that's before we factor in the wet hair and cold air outside etc etc. I'm wary of them being a virus breeding ground too...

Sorry, not ignoring other posts, but wanted to add my twopenneth to this. At the beginning of the year I had a tumour (small thankfully) removed from my breastbone and, at the time, I was in the middle of 6 sessions of hydrotherapy. i spoke to one of the oncology nurses about whether i could keep my hydro appointment before stitches were taken out and she said absolutely not! There is one particularly harmful organism (can't remember what unfortunately) which is prevalent in swimming pool water no matter how heavily chlorinated it is. I'm not wanting to be alarmist, but I think anyone who has any type of open wound - even a deep scratch - should steer clear of swimming pools etc. Only my opinion folks.
I made the mistake of having a glass of spritzer earlier and so brain isn't processing well, but I'll be back tomorrow :rolleyes: and read the posts I've missed.
Sleep well all.
x