Fibromyalgia

bigzippy

Lol @ you yelling in the cinema raeh.

I know exaclty what you mean about the eye film/floaters. My optician said floaters were normal so that was that.

I don't have a lot of ulcers, but I have had one this last week and my pain etc has been worse, so I deeply suspect there's a correlation.

Everything takes ages to heal with me too. I got scratched by OH dog (by accident) about 8 weeks ago on my hand and it's still not healed! I've got a scar where I'm sure no "normal" person would have one from such a scratch...:rolleyes:
(Is it sad that I'm only bothered about it cos it's on my left hand and I know we'll have wedding ring photos taken? :rolleyes:)

Careful_with_that_Axe

bigzippy - you should be able to cover the scar with some make up if it bothers you.

Yes, yes and YES to scratches and cust taking ages to heal and then scarring. Do you also find that little cuts just bleed and bleed.
With the scarring on my arms from a feral cat, I look like an ex-junkie!
Bad night last night - only managed 4 hours and am out taking Dad to lunch today, so will probably spend tomorrow in bed.
Does anyone else find that they have really vivid and disturbing dreams? I get so angry in my dreams and wake myself up shouting. Unfortunately, I'm rather angry with 2 family members about things that I will never get "closure" on and I act this out in dreams, kicking and shouting!
Off to down caffeine and drugs of choice to wake me up!
Stay warm all.
Jo
x

TOBRUK

Hi raeh and bigzippy, I was the one who mentioned mouth ulcers, and quite often I have cold sores, so it could be because I'm run down although I believe it's part of M.E. Sore and swollen glands seem to be the norm also, not sure if anyone else suffers with this.

somebody_else

Morning folks.

With regard to the cuts and scratches (and I'm going to open it up a bit) burns. I'm fortunate(?) [raised eyebrow] in that I appear to have an over-active immune system, which means that when I do injure myself I heal very quickly. I ended up in A&E back in March having tried to catch a couple of glasses before I knocked them off the counter - okay, I should have let them hit the floor, but I didn't actually expect them to break in my hand - had the usual inspection, x-ray to check that there was no glass in the cut, superglued the cut and in 3 days you wouldn't have realised that there had been an inch long cut there.

As for the dreams - yup, been there as well, very vivid, very real seeming dreams, to the point I'm not sure if I've dreamed it or it's really happened. It's about half and half at the moment whether I'm woken up by the pain in my joints, or I've woken up because of weird/peculiar/frightening dreams. Oh to be able to sleep all night and then wake up feeling like I've had a good night's sleep.

ailz95

I take ages to heal too, and get the mouth ulcers, and the light sensitivity. You realise that between us we could help the doctors write up a much better list of symptoms for fibro.

I also struggle to type nowadays. I used to earn my living as a secretary, but the number of typos I make sometimes amazes me. Mainly because one hand will be reacting faster than the other (I think) so I get keys out of order or an extra one of one hand. My reflexes/reactions seem to be unbalanced and one side of the brain (not always the same side) will overwork for anything, not just typing.

My eyes are so itchy today, but at least my hair, fingertips and a couple of other silly bits don't seem to be hurting today.

And I'm grateful for:

My central heating
My husband
The internet, without which I wouldn't have this forum
A sense of humour - we fibros' need a good one!!!

Careful_with_that_Axe

My motto today must be "I must ask for help when I need it". Have just knackered various parts of my body trying to lift a dishwasher onto a counter. If I wasn't so stubborn, I wouldn't hurt myself so much.

*limps off clutching back with handfull of pain meds*

somebody_else

ailz95 wrote: »

I also struggle to type nowadays. I used to earn my living as a secretary, but the number of typos I make sometimes amazes me. Mainly because one hand will be reacting faster than the other (I think) so I get keys out of order or an extra one of one hand. My reflexes/reactions seem to be unbalanced and one side of the brain (not always the same side) will overwork for anything, not just typing.

I too, used to be a secretary. I also used to be able to do shorthand. As the relapse got worse both my typing and shorthand went to pot - to the point I was writing gibberish in the meetings and then typing gibberish when I tried to transcribe it.

Tell you what, if I ever get well enough to get another job, I'm not admitting that I could ever do shorthand. Apart from the fact that I'd already had to learn it twice (I'd just got to the point that I was reasonably fluent with it, when I had the brain haemorrhage and when I was well enough to get back to it, I couldn't make sense of any of the stuff I'd already done. And when I had the last relapse I lost most of my shorthand because I'd become quite seriously dyslexic in longhand as well as shorthand), I did discover that because I could do shorthand I was the only one who was expected to take notes during meetings - no matter how many secretaries were at the meeting. I have no problems with pulling my weight in a job, but I do object to carrying others as well.

somebody_else

Careful_with_that_Axe wrote: »

My motto today must be "I must ask for help when I need it". Have just knackered various parts of my body trying to lift a dishwasher onto a counter. If I wasn't so stubborn, I wouldn't hurt myself so much.

*limps off clutching back with handfull of pain meds*

Yes, that an' all. It took me a long time to learn to ask for help. It is easier these days (to whit, 1 cleaning lady who does my heavy cleaning for me, 1 son who does my heavy shifting/lifting, Groceries delivered 'cos it takes so much out of me doing the shopping in person, even if Son comes with me and pushes the trolley and does all the lifting), but there are still times when I come over all stubborn and "I will do this, even if it kills me!"

Take your meds with a black coffee - they're more effective that way (or coke or similar will have a similar effect), and let yourself recover a bit before you try to do any more.

Magenta

I too take tramadol for the pain and used to hold out taking them until I couldn't stand it anymore, but then I was told to take them all the time and with 2 5oomg of Paracetemol at the same time. I was also prescibed morphine but stopped taking it after a week as I was afraid of getting addicted. I must say that I don't take the paracetemol always with the Tramadol for the same reason.
I have IBS and find it almost to take supplements and things unfortunately.
I have M.E too and am really bothered by noise and light and always have mouth ulcers. I too have a problem with the TV when the image moves quickly or if there are flashing lights and things.
Until now I thought that I was the only one with all these things but am now comforted to find that I am not alone.

TOBRUK

somebody_else wrote: »

Yes, that an' all. It took me a long time to learn to ask for help. It is easier these days (to whit, 1 cleaning lady who does my heavy cleaning for me, 1 son who does my heavy shifting/lifting, Groceries delivered 'cos it takes so much out of me doing the shopping in person, even if Son comes with me and pushes the trolley and does all the lifting), but there are still times when I come over all stubborn and "I will do this, even if it kills me!"

Take your meds with a black coffee - they're more effective that way (or coke or similar will have a similar effect), and let yourself recover a bit before you try to do any more.

I can relate to the typing - I am also disabled (lost the use of right arm) and learned to type one handed and took all the RSA exams. I too was working as a secretary/script typist/PA! When I was asked to take notes or type dictated letter, as soon as they had said a sentence I had forgotten what they had said at half sentence and would ask them to repeat it - not once, but a few times! It was awful. As a typist your hand/hands go into automatic mode but now my hand gets stuck and I don't know which key to press! Do you find this?

Asking for help! Me??! I think it may be something in our personalities! I have become more inclined to ask for help when I have to :rolleyes: