Fibromyalgia

Careful_with_that_Axe

Hi all.
I'm sleeping loads this week so not getting started til very late.
I can't remember who said what, but .....
I spoke to Rheumy about supplements such as Glucosamine and Evening Primrose Oil (which I used to take regularly) and he advised that they wouldn'y really be helpful for me. However, as I've mentioned before, I don't have Fibro, so it may be effective for others.
Every so often I have a 2 year old tantrum and stop taking my BP tablets - it's baulking against taking so many tablets and they're the ones that I don't feel any benefit from IYWIM. However, by is tregularly 187/146 p 102, so do really need to take them. Have to see Cardiologist next week about some other stuff and hope to maybe just have one tab for BP rather than a mix of 4 different ones. "Managed" to forget to take steroids last night, so not so comfortable so far today.
My pet hate is people telling me my pulse is high because of anxiety - I'm one of the most laid back people I know, but they won't listen.
Re painkillers, I can't tolerate Tramadol as it gives me terrible headaches, but mix Co-codamol, Diclofenac, Paracetamol etc according to level of pain. am lucky that I have a v high pain tolerance anyway. Was offered Morphine, but would prefer to keep that as a last line of attack for if things get really unbearable. also don't like the idea of addictiveness as I have a v addictive personality.
Someone mentioned pain in wrists and hands - I get this and more so in the cold weather. I use Neophrene wrist splints from the Physio which help greatly as I also have no strength in wrists and no grip in hands.
Wish I had the spacey feeling you talk about with codeine, sounds rather nice to just let things wash over you!
Have never been allergic to anthing in my life before, but since probs raised their head have a whole list of meds I can't take as they send me into a sortta slow-onset anaphylactic shock. Anyone else find this?
Sun keeps trying to break through here, but I think I'll stay inside today.
Hugs to all
Jo
x

Careful_with_that_Axe

p.s. For the mind fog - lists, lists, lists!
I carry pen and paper with me all the time to jot things down when I remember them!

Careful_with_that_Axe

:rolleyes: p.p.s.
We've talked about pain and depression, but what came first? The pain or procrastination?

aliandy

Hi all, I'm shocked as to how many of us have Fibro, it is a condition where I thought I was alone. Can't remember now how many years ago I was diagnosed, but my first reaction was to say that I didn't believe in it and it was just something they said when they couldn't find anything else wrong.
It started with back pain at 16, and from then on all the trigger points joined in. I know can't make my hands work properly in the mornings as they are so stiff and sore and also have to walk flat footed for a little while before the backs of my legs are streched out, and the pain eases.

I take Butrans patches for the pain which are changed weekly, I would have said they didn't work until they fell off on holiday and I had a nightmare flight home due to the pain, I wished I could've sat on the loo all the way home (forgot to mention I have coccydinia also). Also take Dosulepin, an antidepressant, which initially I did have for depression but it helps with the sleep side of things,
Look forward to getting to know you all in the future, I've been lurking here for a while, Ali

somebody_else

Unity wrote: »

Are you affected by the weather? Over the years I've heard a lot of people with fibro say this. I can always tell when we are in for a damp spell, but that may just be down to the arthritis.

Erm... I'm probably a bit of a fraud in this thread 'cos I don't actually have Fybromyalgia. For many years it was thought that I had ME, but I've since been told that it doesn't present with abnormal blood tests. It has been suggested that I might have SLE, but the tests aren't conclusive. What doctors won't admit is that I probably have a combination of organo phosphate poisoning and some neurological damge from the brain haemorrhage. One of my blood tests show positive for anti-bodies that normally show up after a transplant (rejection), but as the only foreign object in my body are the coils in my brain...

Yes, Unity - I'm like a bluddy barometer - every time the air pressure starts changing my whole body throbs like I've got an all over toothache. When the air pressure is high I end up with a raging headache and when it's cold my joints ache like hell.

Apart from that, I hardly notice the weather.:p

Careful_with_that_Axe

s/e you are not a fraud! And I for one am glad you're here. Some of the things you have said have helped me greatly.
I don't think anyone on this thread think that if you don't tick "these" boxes you shouldn't be here.
This thread has been to me such a warm place of understanding, advice and support to me and I'm not a Fibro sufferer either!
I'm glad you're here.
Jo
x

somebody_else

Aw, thanks Jo.

tatty

Hi hope everyone is well ,i hate this time of year as back really plays up and the raynaulds takes over even been known to wear gloves when indoors with the heating on !! This forum is a great place to come to share advice and talk to people in similar situations i am so pleased to have found this site .I had my consultants app this morning (results of MRI) he found i have a prolapsed disc in lower back which was what my gp thought it was ,he has told me that i need to have a small operation to remove disc so its eases off the nerve which is causing the pain he told me it wont cure the pain from fibro which i knew but would help me to function again as i cant do anything at the moment which is hard with 2 kids (7yrs + 14 months)husband has to do everything !!!!! feel a bit scared of operation but hopefully will improve my quality of life take care claire x x

RoxsiScotland

very nice to know i am not alone in suffering this horrible problem. i am very low at the moment as my partner of 3 years walked out on me last night. just packed up his stuff, told me he didnt love me and left. we hadnt been arguing or anything, not a word of warning. got a really big shock. i cant help but wonder the reason he doesnt love me if because i am ill, cant do much, am a bit boring cos i cant go out much or anything, and he has to look after me. im hardly a vibrant loveable dutiful partner i suppose. so now its just me and the cat. not a good day.

fluffyb

I don't have fibromalgia myself but have some friends who do.

I know they belong to a support forum for sufferers to help and support each other and find it very helpful.

Here is the link to the forum http://www.fibro.org.uk/index.php?act=idx and I am sure any of you who joined would be made very welcome. They are a great, friendly bunch and very helpful too

I hope that helps