Fibromyalgia

sharon59

not been online today so popped in to say hi to everyone.Am shattered but have managed to do shopping and ironing today and make tea so quite pleased with myself-will probably pay for it tomorrow but never mind!

Careful_with_that_Axe

raeh, I have a Bzzz Iron too! Great isn't it. I either put on my tens machine for my back or apply a Neurofen patch before tackling it. and I agree about this thread being a sounding board. You can complain without fear of being misunderstood or castigated. People here understand which is great. Well done for all you've achieved.
s/e - thanks, I think you're right about keeping a constant level of pain relief as the only time I really relax in is the evenings when I inevitably have enough pain relief on board.
Well done sharon for what you have done today. It's easy to be negative and think about the things that haven't been done, and we forget to praise ourselves for what we have managed.
Hello to anyone I've missed. I, too, skim read but am v guilty of typing long posts - I think it comes from living on my own and not using up my daily allowance of words. although the cat is a good listener :rolleyes:

TOBRUK

Careful_with_that_Axe wrote: »

Hello to anyone I've missed. I, too, skim read but am v guilty of typing long posts - I think it comes from living on my own and not using up my daily allowance of words. although the cat is a good listener :rolleyes:

I understand what you mean, I too live on my own and can go days not seeing anyone!

I do not have Fybromyalgia (as far as I know!) but have ME an skimming through this thread I can't believe how similar the two are!! Infact I looked up a fybro website to have a look an found this:

Chronic fatigue syndrome (CFS). A condition characterized by excessive fatigue that seriously impairs the patient’s ability to function. Many physicians believe that fibromyalgia and CFS may be different manifestations of the same underlying disorder. Both conditions share a large number of symptoms (e.g., headache, fatigue, pain) and similar physical abnormalities (e.g., reduced blood flow to key areas of the brain). Also, brain scans of fibromyalgia and CFS patients display very little difference

I hope you don't mind that I as an ME sufferer come in on your thread.

TOBRUK

Sorry, for those who don't know ME is otherwise known as CFS!

raeh

welcome to the thread TOBRUK :wave: the more the merrier , i think this has taken over as my social life lol

CwtA you have just really made me think, i am like you and am careful about the amount of painkillers i take, the gp tells me to take them constantly and i just dont. Theres many i cant take as i have a stomach ulcer [due to popping too many pain killers whilst i was told the pain was imaginary probably!!] but i have realised i am often most comfortable at this time of an eveniong and thats as i take painkillers after work to combat the pain!! if i took them earlier then maybe i could lessen it more all day

and yeah i think we should be proud of the things we manage every day no matter what they happen to be i think i am constantly apologising at work and at home for the things i dont manage to do and now i think s*d them ... they dont all live with this pain, they dont understand how it really feels to not remember a day without it! i know that they look at me and dont really believe it as i manage to do so much but you have all helped me see things far more clearly - im not apologising for what i cant do any more, i will be happy with what i do each day

i do seem to type very long posts too but its like an outlet once i start lol

xx

bigzippy

Hi guys, I'm on quite late cos OH left me to sleep all day, and then was in a rush to do the things that should've been done during "normal" time...

raeh wrote: »

bigzippy my sister wore white crocs under her wedding dress

oh the depression, i have always said im not depressed but as someone else said its more frustration... i carry on and on and try to be everything i feel i should be to dh and to the kids and then it all gets too much and i flip i cry over silly things and just feel like i cant go on, iv never actually said this to anyone else but i sometimes just feel at those times that they would be better off without me

kickboxing??? :eek: the energy to get upstairs without almost crawling some days would be nice

White crocs eh? Awesome... I think I may just go with the comfiest thing... I can't be bothered standing on ceremony - esp on "my" day

I'm the same about the frustration. I have freak outs every now and again and OH looks v confused and concerned but then all returns to normal... til the next time

I'm glad you guys had the same reaction as me about the kickboxing!! :rolleyes:

bigzippy

TOBRUK wrote: »

I understand what you mean, I too live on my own and can go days not seeing anyone!

I do not have Fybromyalgia (as far as I know!) but have ME an skimming through this thread I can't believe how similar the two are!! Infact I looked up a fybro website to have a look an found this:



I hope you don't mind that I as an ME sufferer come in on your thread.

Tobruk - If you make noises about the pains you suffer enough (and of course assuming the are the same sort as fibro-pressure points etc) I deeply suspect that it wouldn't be long before a doc (of some description - mine was an OOH doc that suggested it at first) mentions the dreaded word fibromyalgia. It was the same with me - I was first "officially" an ME patient... I feel your pain.
I found your quote interesting too - could you PM me with where you got it from?

As for not seeing anyone for days, if I didn't have my OH now I think I wouldn't see anyone for weeks never mind days! It seemed as though as soon as my friends got turned down once or twice on the grounds of my (dis)ability to do something, they just stopped asking... anyone else found that? It was actually the biggest thing that got me down in the beginning - I am sooooooo not an alone body!

Btw - sorry Unity - "dude" wasn't supposed to be gender specific - everyone becomes dude with me at some point (I didn't check your profile if that's the pic you meant either... I'm too lazy for that )

I think I was supposed to say something else too.... but it's gone now... so I suppose I should too :rolleyes:

bigzippy

I remembered what it was... about the painkillers... I've been told a few times that I should take a steady stream of painkillers rather than waiting for the worst pain and then giving in... but I get to the point where I'm so sick of popping pills all the time, and searching for fresh boxes of pills, asking for more from GP continually, waiting in chemists etc etc etc that I can't be bothered.

Does anyone else feel like that?

septemberblues

bigzippy wrote: »

I remembered what it was... about the painkillers... I've been told a few times that I should take a steady stream of painkillers rather than waiting for the worst pain and then giving in... but I get to the point where I'm so sick of popping pills all the time, and searching for fresh boxes of pills, asking for more from GP continually, waiting in chemists etc etc etc that I can't be bothered.

Does anyone else feel like that?

I've been to a pain clinic, and they reckon you should keep taking a steady stream of painkillers, rather than waiting until you are in agony and then taking the pills (which is what I do). I always worry that the painkillers won't work if I keep taking them continuously, and then the hunt is on for a new painkiller that works.

So what painkillers work for you all?

somebody_else

septemberblues wrote: »

So what painkillers work for you all?

Well, I'm restricted to paracetamol and 30 mg, dihydrocodeine. Cos of the brain haemorrhage I'm not allowed to take aspirin or ibuprofen, and I was on morphine for a while but it sent me 3/4s of the way towards loopy, so I had to come off that.

I also take 25 mgs amitryptiline around 6.30 pm which helps me stay in bed at night.

Sorry, must dash for a while - I've got a grocery delivery coming in an hour and I really ought to get dressed before it arrives.