Fibromyalgia

raeh

Good morning everyone

welcome to new people if i havent said welcome to you all

i havent time to read back over all the posts i missed til later so i hope everyone that wasnt having a good day yesterday has a much better one today

its a very wet day today here and dull but because its my day off [rest day supposedly!] im not going to let the weather affect my mood. I have never, ever would have said i got 'depressed' and still wouldnt use the word for myself as i know people suffer terribly with it, but after lurking in other threads, reading, im suprised how many symptoms i recognise in myself and behaviour patterns?? the weather has a huge effect on how low i feel at the start of a day and whether its dull and grey or bright outside [obviously pain levels have the greatest effect on my mood]
oops came to say good morning and waffled on right ds2 is stood with lunch bag glaring at me so must dash, im going to potter over to home bargains today and see how much i can spend on stuff i didnt really need but was said bargain from name

make it a good one everyone

ps im going to smile at everyone today ... not in a mad woman way so they all back away from me but cheerful <--- theres my first one

bigzippy

Morning guys. I'm actually up before 12! :eek:

Nice to see we've picked up another troll, we must be doing something right..? :rolleyes:

Trialia I hope you don't despair too much. Thinking of ya.

Raeh make sure you actually have some rest on your "rest" day!

I'm off to see the [strike]wizard[/strike] wedding dress I saw again, this time with SIL. I figured I could put it off til I was better...but where's the fun in that? I may regret it later but for now, here goes...

Catch ya later gang

Careful_with_that_Axe

Raeh, thanks! Your post made me smile a lot
I totally understand about the weather affecting your mood. I'm exactly the same - everything seems a little less of an effort when the sun is shining. Have you looked at SAD at all??
I've had bouts of depression since I was a teenager and have really resigned myself to being on anti-d's for the rest of my life. I prefer the numb feeling to the lows.
That being said, I manage fine most of the time, and have "trained" my brain to find humour.

Sun is shining here at the mooment which is lovely. Nothing like pulling back the curtains and seeing a blue sky to lighten the day.

bz, Do we get more photos of the dress then?? I hope they all love the dress as much as we do - and you do too, hopefully!
Take it easy for the rest of the day. Have you finished the anti-flybotics yet?

Love to all.

raeh

afternoon

CwtA wrote:

everything seems a little less of an effort when the sun is shining. Have you looked at SAD at all?

i read that first and thought daft woman of course iv looked sad :rolleyes: then read it again and realised it said looked AT sad :rotfl: that would be just another name to add to a long list though eh?? i just sometimes have those sort of days. You know making sure i smile works though just lifts your mood

I went to pick up a parcel and now will be 'resting' all afternoon have a staff metting after school though which annoys me when i have to go back on my day off :rolleyes:
is it the same dress we saw then bz or a different one?? photos would be very nice

i hope everyone is resting themselves and having a reasonable day - still havent read back over all the last posts but im itching to get doing some comps

kompess

Hi

Im not sure if I have posted a reply on this thread as can't for the life of me remember.
I was diagnosed with Fibromyalgia in Oct 2008 after suffering symptoms for years. I have a long list of symptoms and my quality of life is severely affected to the stage where I think to myself that Id be better off not even being here.
I think the worst is the chronic fatigue, so bad that sometimes its hard to even lift my arms as they feel so heavy and have no energy to do so.
I dont really have anyone to care for me, so I starve as I cant stand up to go get something from the kitchen etc.
Im so depressed with this illness and do feel like taking my life sometimes. I use to be so energetic, loved my job (resigned Nov 2007 as couldnt do it anymore) and enjoyed nights out dancing.
Here are all my other symptoms
- Widespread Musculoskeletal Pain (muscles, joints, tendons and ligaments)
- Tender Points
- Nausea
- Dizziness
- Lightheadedness
- Fainting spells
- Chronic Headaches (migraine and tension headaches)
- Cold Extremeties
- Swollen Extremeties
- Paresthesia (numbness or tingling sensations in the hands and feet)
- Restless Leg Syndrome
- Difficulty Concentrating
- Temperomandibular Joint Dysfunction Syndrome
- Jaw and Facial Tenderness
- Raynaud's-like symptoms
- Skin complaints, such as itchy skin, dry skin and tender skin
- Depression
- Myofascial Pain Syndrome
- Stiffness upon waking in the morning or after staying in one position for too long
- Sleep Disorders
- Muscle Twitches
- Muscle Weakness
- Extreme Fatigue
- Cold-like symptoms
- "Fibrobog": Cognitive or Memory Impairment
- Anxiety
- Irritability
- Chest Pain
- Hypoglycemia
- Heightened Sensitivity to Lights, Sounds, Smells and Motion
- Muscle Tension
- Irritable Bowel Syndrome
- Frequent Urination
- Lowered Immunity to Infections
- Chronic Nasal Congestion
- Face Flushing
- Insomnia
- Unrefreshed Sleep
- Intense PMS
- Uterine Cramping
- Hair Loss
- Heartburn/Acid Reflux
- Dry Eyes and Mouth
- Tinnitus (ringing in the ears)
- Night Sweats
- Heart Palpitations
- Increased Sensitivity to Medications
- Increased Sensitivity to Changes in the Weather
- Mood Changes
- Reduced Tolerance for Exercise
- Muscle Pain after Exercise
- Impaired Coordination

My GP has me on Efexor - depression, Pizotifen - anti migraine, rizatriptan - migraine attack, tramadol - pain, paracetomol - pain and these new ones for pain but cant remember name but they are also used for epileptics.
I always have pain and these only take the edge of it but sometimes I get sharp shooting pains from anywhere up my legs, fingers, knees or other body parts.
I am very rarely out the house and usually only go if I need to see my GP or for food.
Sorry if I have rambled on but you guys are probably the only ones who understand me.
Im on incapacity benefit long term and have been awarded DLA low rate. I was going to appeal the rate but didnt have the energy so grateful for the little that I do get.

Unity

Careful_with_that_Axe wrote: »

Raeh, thanks! Your post made me smile a lot
I totally understand about the weather affecting your mood. I'm exactly the same - everything seems a little less of an effort when the sun is shining. Have you looked at SAD at all??
I've had bouts of depression since I was a teenager and have really resigned myself to being on anti-d's for the rest of my life. I prefer the numb feeling to the lows.
That being said, I manage fine most of the time, and have "trained" my brain to find humour.

Sun is shining here at the mooment which is lovely. Nothing like pulling back the curtains and seeing a blue sky to lighten the day.

bz, Do we get more photos of the dress then?? I hope they all love the dress as much as we do - and you do too, hopefully!
Take it easy for the rest of the day. Have you finished the anti-flybotics yet?

Love to all.

Hi CWTA and Raeh,

I just wanted to butt in and agree on the dreaded black dog and SAD. I find that I am not quite so bad, now that I don't work and I think the reason is that I don't get up until it is light. I don't stay in bed until late, (that dreaded [strike]guilt[/strike] word again ) due to being brought up in strict northern matriarchal society where it is imperative your house is tidy, fireplace cleaned, doorstep washed and 'step-stoned' before anyone comes to call. Not that anyone ever does of course - so one gets out of the habit, the place gets untidy and then someone arrives unexpectedly :rotfl:. If I am out of bed by between 8.30 and 9.30 that's good enough, the sky is light and I can pull the curtains back so that it doesn't look like a nest of vampires live here .

Okay, I wandered . I remember at the pain clinic being asked by the trickcyclist when I had started suffering from depression and being able to pin point the start of my 'lows' to around age 2/3 when we moved home. He said this was extremely unusual as most people don't remember much before the age of six! I can't believe this - I remember quite clearly the flat we lived in prior to moving - in the October before my third birthday on December 1st. I also remember being bereft at losing my dear grand-pa when I was six. He had dementia finally and pneumonia in old age although he had never really recovered after the Battle of the Somme (came back with lily-white hair although he had forged his birth certificate to join up as he was too young).

Pehaps being Catholic had some bearing - well hell of course it did (no offense to any Catholics ) but I lived through the constant harrassment and guilt inducing mind games and only managed to escape this when I married, moved away from home and found my spirituality elsewhere.

I now manage with Prozac - like CWTA I prefer the numbing effect to the lows - although I can't take Gabapentin or Lyrica because there's something in there that can affect moods in some people, including me. I had not read the leaflet, as I think it is easy to see yourself with any number of side-effects, but when I mentioned it to my GP he showed me the problem in his Formulary.

I have found I'm helped by a magnifying craft lamp with a daylight bulb and also one of the Lumie alarm clocks.

Suep, how's your dad doing on his chemo?

BZ hope you still like the dress when you see it again - it's lovely.

Whoever asked about FMS and the DDA - well, I have a friend working at the local hospital and it is classed as a disability by the HRM section there, so you would think they would be up to date on that sort of thing.
It is lovely bright sunshine here at present :T, but I am not up to going out again today. We went out on Monday and dropped off DS back at uni - then called to Lakeland for some new baking sheets, and an eight inch square cake tin (on three for two) in which I have brownies cooking as I type - thanks to my Bamix which I can't manage without these days .

I also popped into Lush but didn't see any of those bags:o - maybe it is a Southern thing . Anyway I got a Babyface make-up remover bar and so far it's even removing Max Factor Masterpiece mascara. We then went to the cinema on the way back - but only saw 'Underworld - Rise of the Lycans' which wasn't very good at all - and DH bemoaned the fact that Kate Beckinsale isn't in this one as he loves her in the leather gear :rolleyes:. We also popped into Argos to pick up a new brochure and found a Matalan clearance store had opened a few doors down, so had to pop in there :rolleyes:. Quick call to both daughters resulted in a new case (very large with wheels and handle) for £7 for DD1 and shirts for other DD's boyfriend (plain blue, non-iron, good quality) for £1.96 :T.

Yesterday we went to see Valkyrie and that is definitely a 'must see' for those who like plenty of action and suspense. So I think you can see why I am a tad on the exhausted side - slapped wrists for not "pacing" - but my belief is "use it or lose it, do what you can, when you can and worry about it later :rotfl:." If I didn't do things this way I wouldn't attempt them at all .

Love,
Unity

kassandra

Well I was in tears again this morning feeling so useless and crap but reading through the posts I was howling! :rotfl: Thanks for cheering me up!

The doc's went ok thanks, she has upped the Ami and asked for another diary in two weeks. I started crying and felt so stupid but she has written me a letter for school so hopefully that will help. They won't let me come into the car park and the school is on a hill. I just can't manage it so bring the kids to school 15 mins late on a morning so I can get near the school. I went in to see them about it and the head basically said that anyone could pretend to have something wrong with them and unless I had a blue badge (which I am applying for when I get the energy to get my photo's done!) he didn't have to let me in. I then got a call from someone else in the school a few days later asking why the kids were always late :mad: Couldn't face going in with the letter today until you lot cheered me up. I shall go and see them at end of school and be strong!

Kompess I, and I'm sure many others, truly know how you feel. Whereas I wouldn't consider taking my own life because of the pain and guilt it would cause others, I have wanted it all to end. I was in the bath only last week crying and wishing the powers that be would just end my misery. These are the times that you need to come on here or other support forums and let others help you.Although I must advise you don't do it in the bath! I really hope you find the support you need on here.

CWTA Don't be silly, I wouldn't have you covering any costs and of course I don't blame you for being wary. PM me with your address and I will send them through. Do you know how Western Union works? It's just I would have thought you would prefer it that way with not knowing me. You don't need to give me any real details if we have a password and the money is there instantly. Oh actually, I'm not sure if they ask for a phone number.......anyway whatever you're comfortable with is fine. I'm just grateful you have such a kind heart to do this for people. Thank you :T

Although I must advise you don't do it in the bath! Oh and before that is picked upon- No I am not a psychiatrist or an expert on electrics and its affect upon water. I'm obviously presuming that if being electricuted by power supplies in water happens to one person then it just may be possible for it to have the same effect upon another person in the same situation! :eek:

Well i think that's my little rant done for the day. I shall go prepare for my battle in the school playground lol

LameWolf

Hello all.

Welcome Kompess and Sakara.

Short post from me today, as I'm cream crackered; Mr LW and I were at his pal's house last night for Dungeons & Dragons.

But I wanted to just check in with a ((((HUG)))) for my friends here.

Careful_with_that_Axe

Just typed a long post and lost the flamin thing.
Oh well - back later.

Ditzy_2

Thanks Unity - it was I that asked about DDA - yeah you would think that most HR depts would be up on it - but the HR bint couldn't even get my name right!!!

Kompess - gets yer down dunnit. I have been through hell and back in the past and never really thought of ending it until I got really ill - think it is the tiredness mainly - get so sick of it and wish you could sleep forever and never wake up just so you can be left alone. It wasn't till I finally got some decent support from a good GP and my friends finally seeing that this is not a short term thing that you can come to terms with it yourself - and smile that you not have to prove anything to anyone. Chin up - stay positive - think positive.

Hit s you harder when you see what you were like and did to now - but humans are clever and you adapt - when you come to terms with it more it is surprising how you can move on. I am truly saying this from the heart as it has only taking me to now to do this (dx 1999) and hopefully manage things but in a different way.

I probably won't be going skiing - or trekking through mountains but doesn't mean I cannot do anything ever again.

Day going so far so good - signed up to a NVQ course today - doesn't envolve essays or major exams so think I can manage OK and told them I have FM - so don't push me!!

Wish I could do cinema's - find chairs uncomfy and too noisy - and can't take my blankie and snuggle up!!! Wait for the DVD!

Kassandra - some schools are like mini dictatorships aren't they?!! My DD implement walking to school and trying to introduce restricted parking everywhere - I told my girl soon I will have to scoop her up and she will have to jump in while the car is moving screaming go go go!! so it would mean technically I have not stopped and parked!!!

Keep warm and movin'! (typed mooning for some reason!!!!!!) cor shoot me now!!