Fibromyalgia

Careful_with_that_Axe

Aww Cutie dresses BZ. What did SIL think of your dress??
Did you like it more this time?
No worries - I have T-Cell Lymphoma and have been allergic to all chemo so far. I hardly ever think of it a it troll (grin) along in the background. It's only low grade and, to be honest, I prefer to leave well alone.
Tilt Test was OK, but it really upsets your balance (doh!) so it's not particularly pleasant. Have to wait quite a while for results as cardiology dept is snowed under. Was 12 weeks before i got results of 24 hour heart monitor.
Hello newcomers - cant think of anything sensible to add to what BZ said until I've had my bacon and cheese sarnie.

saffiedale_2

just hope i can join you all? iv been laughing with you and crying with you for weeks.feel i know you all. found out i got fm and ankylosing spond last march, that just was another kick in the teeth. i have arth in spine and most joints. also cervical spondo. take sevredol for pain and oramorph when the pain is severe:eek: my doc says he dont want to put me on ami, rec it sends you daft? think i am already. forget who i was talking to the night before, never mind what about? let him have the pain for a few days and he may change his mind?:T . i let my hubby read threads that you put on and he says my god, you got that ect. i realy thought i was being lazy cuz even to wipe round the kitchen or bathroom just makes me tired. i hop you all get some good sleep tonight.big hugs to you all:o

Careful_with_that_Axe

raeh I hope you had some rest on your day off. I absolutely agree to a genetic disposition to depression. My Sister, Dad and I all took part in a study for Kings in London about genetics playing a part as we all suffer from it. To be honest, I'm happy saying no to chemo at the moment as things appear pretty stable.
Hi to saffy and fairydust, sakara etc
This thread has made an immense difference in my life - I don't get support and validation IRL, so it's wonderful to come here, laugh, moan, mope and know that you are amongst people who understand and gently support you.
Safe to say I'm addicted and ain't going anywhere! *grin*
I break my day up into chunks and come on here at the end of almost every chunk to get my fix.

fairydust07

Thanks for the welcome!

I have an appointment with my GP tomorrow for a referral to a pain clinic so I think I'm going to ask him how I can get this clarified. I also attend an NHS Homeopathic hospital and am constanty blown away by their knowledge, compassion and understanding when it comes to Fibro this consultant insists the original diagnosis is correct. I'm just going to keep pushing till I get an answer!

bigzippy wrote: »

Hi Fairydust and welcome :wave: glad you've come in to join us
One thing I need to pick up on "the new doc decided I didn't have fibro as I'm too young"...erm as far as I'm aware, from what I've read and been told, there's no age limit to Fibro! Children have been diagnosed with it! I would challenge it if I was you chuck... especially if it's making you feel uneasy not knowing if you're coming or going...?

I hope you get somewhere with your tribunal and they see what you're struggling with. If not though, take heart that there are still other options available, even if it is the last thing you feel like!!

fairydust07

bigzippy wrote: »

Hi Fairydust and welcome :wave: glad you've come in to join us
One thing I need to pick up on "the new doc decided I didn't have fibro as I'm too young"...erm as far as I'm aware, from what I've read and been told, there's no age limit to Fibro! Children have been diagnosed with it! I would challenge it if I was you chuck... especially if it's making you feel uneasy not knowing if you're coming or going...?

I hope you get somewhere with your tribunal and they see what you're struggling with. If not though, take heart that there are still other options available, even if it is the last thing you feel like!!

Thanks for the welcome!

I have an appointment with my GP tomorrow for a referral to a pain clinic so I think I'm going to ask him how I can get this clarified. I also attend an NHS Homeopathic hospital and am constanty blown away by their knowledge, compassion and understanding when it comes to Fibro this consultant insists the original diagnosis is correct. I'm just going to keep pushing till I get an answer!

sharon59

hi all and so pleased to see so many newbies here.
sorry not around much as l have visitor staying so trying to be entertaining!Its flipping shattering though just to keep being sociable and preparing food to time-she is 76 and fab so dont mind.
Still got lots pain and walking is difficult am pinning my hopes on the injection tomorrow into my hip joint-scared though!
well will report back tomorrow and everyone send me nice thoughts at 4.20 tomorrow!

bigzippy

Careful_with_that_Axe wrote: »

Aww Cutie dresses BZ. What did SIL think of your dress??
Did you like it more this time?

Don't know about more but still is a good start!!
SIL approved and said "it'll be hard to beat this one!"

Cwta wrote:

Hello newcomers - cant think of anything sensible to add to what BZ said until I've had my bacon and cheese sarnie.

That's cos I'm ace and you can't beat me!!

Welcome Saffiedale :wave:

I'd write more, but I have to drag OH away from the tele to do more packing!!! Argh! When will it end??? Still, only 2 days to go :j

kassandra

Oooh bacon and cheese sarnie......I'm gonna have that for me brekkie.

This was just a quick look in. This forum moves way too fast for me, I come back a few hours later and I can't keep up!

When I read about how other people have other things on top of FM I feel a mixture of guilt and hope. Guilty for being so pathetic with myself but hopeful (and proud even though I don't know you) that I too can find a way to manage if other people can.

I have IBS too and that has caused me to get Diverticular Disease. Has anyone else had strange things going on with their hands? My fingers bend back and seem to lock into place at the knuckle halfway down the finger. It freaks me out every time it happens and I was just wondering whether it was part of the FM or I am just a bit strange *manic smile*

Sharon59 I don't think she will be visiting again if you're giving her eels hee hee!

I didn't have the energy to go into school. I was so tired all of a sudden so I came home and laid on the sofa with my eyes closed from 3.20 until 7.30!! I am now going to bed, my leccy blanket should have it nice and warm and my new memory foam pillow (bought from the car booty for a tenner!) will keep my head and neck comfy. OH wants me to take him to work in the morning so need to be up at six.

I am drowsy on a morning so my doctor said to take my meds a bit earlier and see how that affects me. She mentioned she might put me on Gabapenthin (think that's what she said) does anyone know what that is?

xxxx

sakara

ive been on gabapentin..its similar to Lyrica (progabelin) neither sadly worked for me, but others have had succes with them

bigzippy

Kassandra glad to see that your doctor mentioned this first I think Gabapentin is from the same family as pregabalin (and another gabalin that I can't remember). I'm on Pregabalin (aka Lyrica) and it's a drug originally used for people with epilepsy.

(Man, my typing is lousy today...I've done FAR too much and will be FAR too knackered to face the day, let alone the journey and wait and journey back, never mind actual appointment(!), tomorrow for seeing Endocrinologist that originally dxed me...can't remember what I actually asked for a re-referral for now!! Eek!)