Fibromyalgia

Careful_with_that_Axe

Hug to you sharon, it'll be fine. Will send you good thoughts.

Afraid to say that I think you're just gonna have to keep going until after the move now, bz. Maybe try to get some naps in.

Have not done too bad here today, but have to get up mega early for apt with GP tomorrow.
Have the usual stinking end of day headache, but will try to force myself to get an early night tonight.

Unity

Careful_with_that_Axe wrote: »

Sue, sorry I forgot to ask about your Dad. The chemo has a sorta cumulative effect, so side effects tend to get worse towards the end of a course. Also, I think you get worn down after a while - we all know how that feels, right!
They're threatening to try a new course of chemo on me, but I've been looking it up and it's a fairly aggressive one, so I'm going to hold fire for a while and see what alternatives there are.
So sorry to hear about your daughter - how awful for her! Have to keep a close eye on how her health is for a while and watch for any developing signs.

Unity, now i've stopped sulking at my lost post, I'll try again. *grin*
I have a problem with any organisd religion (not religious myself,more spiritual) that's basic tenets are founded on guilt and eternal punishment/damnation for any behaviour that steps outside of that approved by the church. So that will be catholicism the. *grin*. Apologies if I've offended anyone.
on the subject of your onset of depression, I know a clinical psychologist who is a firm believer that this can stem from traumatic events to a child who is befofre the development stage of being able to vocalise their distress/upset. To extrapolate - it's also thought to be the base cause of subsequent self-destructive patterns of behaviour as emotional development at a sub-ego/id level can be arrested at the point of the trauma. Does that make sense??

I had to go for Tilt Test today to see if they could bring on and record arytthmia. Always makes me sick. Still, anything that assists weight loss *grin*.

I hope your tilt test went well and the medical bods got the results they were looking for .

Yes your reply did make sense, although according to book kept by late dear mum, I began to speak at eight months - not just a word, a sentence, after stubbing my foot - I said: "Oh my toe!" and hence I have been moaning ever since :rotfl:. I am glad to see that Raeh also remembers being three, so I'm not the only weirdo here .

As to religion, I realised at senior school that I don't take well to being a sheep:o, shepherdess yes, but sheep no and I couldn't abide all that Eastern death/sin culture. I guess you could say I'm a 'Born Again Pagan' since non of the major monotheistic faiths seem to recognise the feminine input in creation, plus it seems to fit with my respect for Mother Earth, the tides and the seasons.

Speaking of self-destructive traits - I have just finished knitting one of these hats http://www.ravelry.com/patterns/library/wedge-hat there's no real pattern to it - it's meant to 'grow organically' with the idea that you learn as you go. Well, I've learned that some things grow even if you don't water them:rotfl: as this one is far too big. At least when I am in the mood, I can unpick it back to a reasonable diameter and continue from there - but when that mood comes around again is anybody's guess..

Welcome again to all the newbies - you do realise that with my memory (or lack of it) I will never remember who is who - but then I can't even remember whether it is tonight or tomorrow night when my durogesic patches get replaced .

I hope everyone has a relatively peaceful night and if you pray or send good vibes then feel free to say/send some up this neck of the woods as a good friend is having a radical mastectomy tomorrow :eek:. This is the friend who was told some months back that it was just a benign lump - unfortunately it is stage 3 Sarcoma, but we are trying to keep positive. If you hadn't guessed she was the fit one between the two of us!

Goodnight for now.

Trialia

Unity-- sounds like you might enjoy attending a Unitarian service you should try it, maybe. I'm Unitarian/Buddhist/Earth-centred pagan, myself.

kassandra

I have a memory from when I was a baby! I must have been laid in a cot or moses basket and I can see my grandad looking down on me and behind him there are lights travelling across the wall. Like when cars are driving past. I only recalled this memory when I saw him standing behind me one day in a mirror. No, I'm not weird!!! I had never met him properly, he died when I was a baby and I had never seen any pics of him. I saw him that day in the mirror and then recalled that memory. The funny thing is though that I don't have any other memories until I am 11!!! Yeah ok, I might be weird!!

Oooh, Unity I'm Pagan too. I was brought up in a household where my Father and eldest sister were Catholic and my Mother and other sister were Protestant. Talk about confusion :rotfl: .

Well, must get sorted for school now. Have a good day everybody!!!:beer:

Careful_with_that_Axe

*wanders in rubbing eyes and blinking in the light*
So this is what morning looks like!
Tis funny, neither myself or my Sis have any real memories of our childhood - not coz anything traumatic happened that I know of! I think it's possibly coz we moved around so much with Dad's work.

I am attracted to the buddhist philosophy of life - sort of, first do no harm approach and gotta love karma!
We've done sex and now religion, about the ony thing left for us is politics!

I have GP appt this morning and then taking Dad out for lunch (give me strength and patience).

No doubt I'll be back later when the brain is working properly. But who knows when that might be *grin*

suep

WOW! only just caught up with the posts again , I was on here last night for a while so havn't been away long

Welcome to the newbies, its great to have you here. Fairydust I have a friend who was dx with Fibro at 14 and I've heard of younger children having it too.
BZ I love the dresses, they are so cute, you've got to have them. Im really looking forward to seeing all the wedding pics next

CWTA I hope you dont have to wait too long for the results of your tilt test, I dont even know what it is, but it sounds uncomfortable.

Sharon I hope the hip jab does the trick

Kassandra It only sounds like we have the fibro under control as most of us have had it for a long time now, I was dx 12 years ago, at times I feel like I'm on top of it all and then I get a day like today when the pain is really severe and I dont know what to do with myself, I come on here to take my mind off it. I've tried Gabapentin but it didnt suit me so now Im on Pregabalin which is better, Im not sure it's helping the pain but Im too scared to stop taking it incase things get worse.

Unity I definitly remember being under 3, I remember asking my Mum to carry me up to bed and she said she couldn't as she had a baby in her tummy, it was then I noticed the big lump which ended up as my sister I was 3 when she was born. Im sorry about your friend, how awful for her, Im doing some distance healing (Reiki) this afternoon and will send some her way if you like.
I think thats everyone, Im sorry if I missed someone out.
take care all
sue

MTPOCKET

Hello, I cant beleive I have found this thread on this horrible condition, I was diagnosed about 3yrs ago & have basically thought i had to just get on with it.
I thought I knew about my condition but reading these posts "I dont think I do" I work & look after my children & hubby & have times when I have all the energy in the world & clean, change the house around...then suffer with exhaustion, pain, lethargy etc for anything upto a week or 2 after.

I take diclofenac & codiene for pain but they dont always help, does anyone find swimming helps? I am fed up of popping pills etc & cant really afford acupuncture as previously mentioned by someone else.

LameWolf

Hi everyone.

Welcome Fairydust, Saffiedale and MTPOCKET. I have to confess to being a bit of an interloper here – I actually have Lupus. But the pain is just as those actually dx’d with Fibro describe, and the tiredness is totally bonecrushing at times (more often than hot if I’m honest), so that’s my excuse!:D

I feel a little bad in that I tend not to ask about peoples’ specific situations – I really do care about you all, but I am so bloomin’ foggy these days, that I can’t get straight in my mind who has said what, and by the time I’ve gone back to re-read, I’ve forgotten what I wanted to say. *sigh* Sorry for being such a useless baggage.

Someone (was it Kassandra?) mentioned something about the fingers sort of locking up at the knuckle; I get something very similar, only it’s the joints at the base of the fingers that lock (don’t know the proper name for said joints). Drives me nuts!

Careful_with_that_Axe wrote: »

We've done sex

Now I'm worried!:eek::eek::eek::rotfl:

bigzippy

Careful_with_that_Axe wrote: »

Afraid to say that I think you're just gonna have to keep going until after the move now, bz. Maybe try to get some naps in.

Think you may have a point there....I got woken up at 10.10am by a very panicky OH who'd overslept!! So had to take him to woke, then had to (of course ) pop in on Hobbycraft on my way home as they had a sale banner up outside and I still needed the butterfly punch for the invite making... £8 later :eek: I've done my research though and couldn't find it anywhere else n'mind any cheaper. It's tucked safely in the "wedding drawer" ready for action when everything settles down...whenever that might be! :rolleyes:

I've got an appointment 14 miles away in an hour so can't really get on with much before going, and I've managed to sort out a delivery of bday present to a friend...under the guise that I can't break it in the move then :rolleyes: ...Nothing at all to do with stalling packing, obviously! After the panic of this morning, OH has cancelled his shift tonight at job no. 2 so at least he should be around tonight to help...even if he does have to stay late tonight to make up for this morning's lateness.

Thanks for your kind words about the dresses guys... maybe I'll even show you what the invites etc look like finished...if you're very lucky

Welcome MTPocket :wave: Glad you've found us

I should get going I guess... (see the enthusiasm!)

P.S. I'm a "Born again" Christian... but I can still agree about the Catholics

bigzippy

LameWolf wrote: »

I feel a little bad in that I tend not to ask about peoples’ specific situations – I really do care about you all, but I am so bloomin’ foggy these days, that I can’t get straight in my mind who has said what, and by the time I’ve gone back to re-read, I’ve forgotten what I wanted to say. *sigh* Sorry for being such a useless baggage.

That sounds very like the G word that we're not allowed to utter LW so I suggest you get it out of your head right now! And be told, lady! You are neither useless nor baggage!!

And I'm sure we all know that feeling of not knowing who did/said what when...I certainly do!

You been told yet?