Fibromyalgia

Careful_with_that_Axe

Oh No! I'm gonna miss the BB finale! I knew there was a reason why I don't go out

Have decided to treat myself to dinner out before theatre tonight. There's a sole-woman friendly Bistro near me that does a pre-theatre 3 course dinner for £12 including glass of wine. It would be rude not to

Raeh, If there's one thing that's guaranteed to make you feel over the hill ........
I'll have to learn to stand up in the boots before I wear them out! They're very high for me, but I feel quite sexy in them till I catch sight of myself in the mirror :rolleyes:
Friday night traffic is a nightmare. I certainly dfon;t miss my commute when I lived in London and a 3 miles journey could take up to an hour.

LW, I hope you're feeling a little brighter and that the drugs of choice are helping.

BZ, I'll order an extra dinner and get it sent to you. But isn't that what OH's are for?? Feeding you when you're in bed?

lewt, no harm in having a look. Post the details?

Tamaris, I agree - when I think of the times of absolute pain before any kind of dx and all the tests, I sometimes wonder how I got through it.

Right, time to put some slap on. Apologies to anyone I've missed. Hope you all have a decent evening.
Laters
x

LameWolf

Raeh, you have my sympathy re getting stuck in traffic! Our car is an automatic, as I can't cope with a clutch these days.

I occasionally had to drive Mr LW's old BMW (when he worked in Rugby and used the train, I used to go to the station with him and bring the car home) and just a two-mile journey had me in agony for hours at a time.

Btw, I'm better than I was, thanks for asking, folks:o The pub visit tonight is to see his pal's BIL who is a furniture restorer, with a view to getting our scruffy, tatty, but comfortable and solid kitchen chairs spruced up.

LameWolf

Ooh - forgot to say - enjoy your evening CwtA.;)

raeh

LW i never drive far so we decided the manual was better, i only really go to work, the supermarket and mums but the 10 minute journey took nearly half an hour edging along slowly :rolleyes: i would have loved to have had an automatic today

CwtA the finale will be repeated enjoy the meal, sounds fab

suep

I love the boots CWTA they are lovely, I hope you have a good night tonight and dont worry about the BB final, I expect its repeated tomorrow.

LittleTinker

suep wrote: »

I really wish you'd been with me when I saw the physio, what I didnt say is that he doesnt believe in fibro and was trying to convince me that all the side effects are normal for any pain condition, I was in a lot of pain and foggy myself and couldnt come up with anything valid to get back at him with. I've refused to see him any more :mad:

That must be horrible to be sent to a Physio who doesnt believe in your condition....how can he possible be beneficial for you?

I should think you have refused. Tell your GP that you would like to see someone else. Or perhaps you can try Occupational Health instead.

If you wander on over to one of the Fibro sites, you can pick up lots of info there on the 'fog' and how to manage it.

sometimes all you need is patience.....or maybe its actually other people who need it more! lol

Careful_with_that_Axe

Forgot to say raeh, I bet the parcel is a compo win *grin*

LameWolf

raeh wrote: »

LW i never drive far so we decided the manual was better, i only really go to work, the supermarket and mums but the 10 minute journey took nearly half an hour edging along slowly :rolleyes: i would have loved to have had an automatic today

CwtA the finale will be repeated enjoy the meal, sounds fab

TBH I haven't driven for ages - I can't go out alone as I need help once I get where I'm going, and it's easier to slip into the "default" of Mr LW driving. I must get some practise in though, as we're going to Orkney at the end of May, and I'll have to do some of the driving (not town centres though - too scary by half).

bigzippy

raeh wrote: »

CwtA i laughed out loud at the vision of the adonis and you in your dressing gown :rotfl: that happened to me just before xmas, a gorgeous royal mail delivery blokey and me with hair stuck up on end and hot chocolate spillage down the front of my dressing gown

I answered the door last night wrapped up in towels fresh from the shower and only just as I was pulling open the door did the thought cross my mind that it might not be my friend on the other side! :rotfl:

Raeh wrote:

bz are you feeling better if you are starving?? thats usually a good sign with me. The sleep will have done you really good i hope the laptops ok? i always get panic stricken if something looks like its wrong with mine

I'm always starving Raeh, nothing new there! I'd have to be on death's door not to be hungry I think! :rotfl:
I was a bit panicky about the laptop and I'm a bit concerned that I'm not gonna've sorted out any broadband connection for my first days in the new house Might have to spend extra time at MIL2B's just for the internet!!

Cwta wrote:

BZ, I'll order an extra dinner and get it sent to you. But isn't that what OH's are for?? Feeding you when you're in bed?

Oooh, cheers. Make it steak and chips with creamy peppercorn sauce will ya? Mmmmm...:drool:
He's coming home from work and I have a suspicion that we'll be going to his/MIL2Bs for tea...? (He's just arrived and confirmed my suspicions...mince and mash methinks?)

Cwta wrote:

Tamaris, I agree - when I think of the times of absolute pain before any kind of dx and all the tests, I sometimes wonder how I got through it.

Did you perhaps mean Trialia? :rotfl:

kassandra

dolphins28 wrote: »

Hi everyone and fellow FMS-ers!

I'm 33 and been struggling with symptoms since aged 17 - brought on by glandular fever. Eventually diagnosed with FMS last October. Was sent to Rheumatologist who basically said this is what you have, take warm baths, try yoga and massage or reflexology and read up. That was it!

I'm off the waiting list so no-one cares. GP doesn;t want to know, no-one does and over the years I've been left with just a couple of true friends who understand why I say no to most of their invites out.

Due to lack of support from medical professionals and local support group to date I've been researching and trying to stay off drugs as much as I can. GP did give me 10mg then 20mg of amytriplyline (sp?) but doesn;t seem to make any difference.

But things that have been slowly helping me and could help others:

I take high strength CoQ10 supplements (expensive but unfortunately although GP could prescribe mine won't due to budget constraints)

Corvalen - a D-ribose supplement approx £30 per month - again dear but a £1 a day to feel a bit better is worth it in my book.

Also try and have reflexology once or twice a month when can afford it - a godsend and eases pain, improves my sleep and mood, helps life the fog for a few days, increases my energy levels and basically helps me feel like i'm coping for a while.

I'm a single mum with a 5 year old so I have to work to pay the mortgage and bills but like many MSE-ers have reduced income - 6 years ago I was on £19k, these days I'm lucky to clear 1/6 of that. But I'm still working on managing the fibro and always trying new things. I know many of you need the prescribed medications, I'm trying to stay away from them and their side effects as much as possible.

I rely on forums for support - check out healthypages as well - always a friendly person online. Thanks for reading and good luck!

Hi everybody,

I'm a newbie here and stumbled onto this thread today (oww). I was diagnosed in 06 but had tried for years to find out what was wrong with me. When I finally got dx I was handed a leaflet and bade goodbye!

Since then I have tried to ignore it and also tried to come off the meds but it is definately getting worse so over the past month or two I have been trying to read up and gain some control.

Anyway, I just wanted to say. The reflexology is apparently recognised as a treatment if you are in the leeds hospital fund. I know there may not be any people from leeds but I'm just letting you know as I'm sure there are the same kinds of hospital funds in other area's so it's worth checking out. I only found this out the other day so haven't confirmed it but thought i better share before the fog surrounds the idea forever!

Kass :j (wish I could do that!)