Fibromyalgia

Unity

Evening all,

PCL I am very pleased to report that I am much better now that the increased dosage on the patch has kicked in. The only side-effect that I notice is increased itching - all over . I felt really bad at increasing them - even though it is only 12 microgrammes, but I shouldn't really beat myself up over it as I am still on less than half the dose I was originally prescribed :eek:. I've more or less shelved the idea of the methodone, until I get a definite answer on whether (and if so, how often) I can have the facet joint injections.

BZ I reckon pain is pain is pain - we all go through it and some days are better than others. Some research claims that those with fibro have a lower pain threshold than normal - but I don't think that's true at all. Just as an example - I have a couple of tattoos, one on each foot and even some blokes I know (including the tattooist) have said I must be 'hard' to have had these done as it's one of the most painful places since it's a really bony area! In all honesty I didn't really feel much at all apart from a mild tickling/scratching sensation.

Yes Raeh, it can be a bit of a beggar this narcolepsy type thing. I saw a specialist some years ago and my symptoms are pretty classic in that I am far worse when emotional. I look absolutely ridiculous when I cry as it provokes a fit of uncontrollable yawning - very inconvenient at a funeral . However I didn't fit in with his pet theory as he believed only people with a certain blood type were affected - this doesn't help when I'm sitting there scalded and bemused though :rolleyes:.

sharon59 wrote: »

Im 5 ft 5 1/2 -my MIL was 4ft 10 with size 1 shoe bless her!
Hope your feeling better Unity pain just gets so debilitating in the end.I am sitting in a Tramadol fog for my back/sciatica -in a fog but still in pain -it all just seems to never end for us all-real c**p illness we got.When l found l had breast cancer l did think well l wont complain about anything again- but l do!!
Big hugs for all-lets have a weekly group hug -starting tonight.
xxx

Well Sharon and Suep - here's one from me :grouphug:. Yes Suep I watch 'Demons' too - but haven't seen this week's episode yet as I'm just catching up on 'Celeb Big Bro' and will probably watch it tomorrow as it's on the Sky+ planner. I think the scariest thing about it at present is Philip Glenister's fake American accent:eek:.

Well, I don't think it will be long before I go to bed tonight as I am totally shattered due to the bad night last night, so I'm hoping to get a relatively decent sleep - if I can just stop itching . At least the pain won't be keeping me awake.

Oh, one last thing - it has started to get quite blowy up here too and it's quite scary:eek:.

Good night to you all :wave:

suep

Thanks BZ Im fed up with feeling crap and I keep daydreaming about lazing on a hot sunny beach with a tall cold drink beside me lol, I need a holiday

Careful_with_that_Axe

sue, sending lots of hugs and sunshine. You're having a rotton time at the moment, so not suprised you're a bit low.
Hope you can do something nice for yourself this weekend to give you a boost.

Trialia

Demons? Heck no... lol... I have issues with that show. Mostly that it's a rip-off of Buffy in more ways than I can count.

My connection sucks like crazy, so I've been *cough* acquiring the newest Battlestar Galactica episode ever since this morning, and finally have it, but have to go out before I have time to watch it all at once... ahhh! So I must wait. So impatient.

purplecatlover

Careful_with_that_Axe wrote: »

p.s. BZ, why not check out the competition threads and see if you can win yourself a Wii?

yes well i shouldnt have taken that advice.....i didnt even make it past last posted in this morning threads lol so so many, so annoying filling in the forms over and over again which is proabbly why i never regularly visit that board.


glad your feeling better unity might be worth trying some magnesium for the itching, for some reason it works when i get generalised itching like that, as well as for restless/twitchy/jerky legs caused by other drugs.

hope everyone gets a good nights sleep and feels better tomorrow.

bigzippy

Trialia wrote: »

Demons? Heck no... lol... I have issues with that show. Mostly that it's a rip-off of Buffy in more ways than I can count.

My connection sucks like crazy, so I've been *cough* acquiring the newest Battlestar Galactica episode ever since this morning, and finally have it, but have to go out before I have time to watch it all at once... ahhh! So I must wait. So impatient.

I'm with you on the Demons thing Trialia (besides the awful name too, lol). Haven't got into BG, but it doesn't help that everytime me and OH went to his best friend's he had it on (in an ignorant way) but halfway through series etc, so I had NO idea what was going on - and therefore quickly lost interest.

We might've had this convo already, but how old are you (if you don't mind me asking!)?

raeh

:grouphug:and a :coffee:then another :grouphug:.sue i hope you feel better soon, i think its a good few weeks of sunshine we need xx
Iv been feeling pretty low at the moment, does everyone else do the constant, 'yeah im fine thanks', to people when they ask and really want to scream at them 'how the f&*ck do you think i feel'? im not usually like this but iv been really grumpy and just dont feel like speaking to anyone or bothering which much at all :rolleyes: thank goodness for t'internet so i can be honest about how i really feel.

bz give the comps a go i have no concentration at all at the moment but i can sit and wade through days worth of comps for some reason, i sort them into finishing date order then auto fill each one lol. Im determined to win a few good prizes this year. i used to do comps and won some good prizes but then stopped when i couldnt sit at the pc for more than 10 minutes but now i have the laptop im ok

i hope everyone manages a good nights sleep tonight [well you never know :rolleyes: ] and has a nice relaxing sunday xx

ps sorry for this ending up a complaining post i just read back and realised it sounds rather me, me, me [as a friend and i call it!!]

pebbles88

hello everyone,

i hope no one minds me posting here. would like some advice if anyone can help.

I suffer very badly with a yet to be accuratly diagnosed nerve/muscles pain in my right arm, fingertips up to neck . my GP thinks its a RSI type pain, my orthapaedic surgeon was convinced it was carpal tunnel, and the best help my neurologist has so far offered was that it was possible a number of factors causing me pain and that i have to just ge on with it on tak ethe usual meds for life. I have had an MRI that showed bulging discs at the top of my spine, but no one can say for def yet if thats whats causign my pain.

at present i am on 75/100 mg of doxepin a night (recently changed over from amytriptyline as i got too tolerant of it), 6-8 remediene tabs (500mg paracetamol/30mg dihydrocodeine) and 3, 50mg dicolfenac daily. which just about manage to keep the pain at bay.

the gp i was seeing before my present one (he retired), did diagnose me as having fibro, this was before my pain in my arms really kicked in. roughly 12 months before.

what i was wondering is. as my gp has never mentioned anything when i told him, was that even though i am in pain with my arm etc each day, that some days i wake up and literally wanna cry straight away as im in so much pain all over. ti the degree that even my toes and fingers feel broken for want of better words.

do yo think i should speak to my current gp more about this??

i was on incap ben from feb this year as i had to leave work following 2 long periods of sick and a redeployment which didnt work out, following my pca they have decided i get nothing, so i am now on jsa (i am appealing).

i am having a terrible day today pain wise. i think it may be due to stress at mo, as my nan is in hosp and has been since oct and is pretty sure to pass away soon, and last night my mum fell and broke her hip, so she is due for operation to replace it tomorrow.

i have never been offered any treatment or further advice from my initial fibro diagnosis, does it get worse with stress?? is it for life. i know i need to speak with my gp, i see him in a few days anyway but just wanted to ask.

some of what people have described on here about how people dont understand how the unseen pain can be is so true to me. i have even had family members tell me i am putting it on and had old work colleagues turn against me saying i am making it up etc. yes cos of course i would 'choose' or 'make up' this pain!!

sorry for the rant.:o

black_paw

hi pebbles ,welcome i suffer from fibro + chronic cervical spondylosis , yes with me it does seem to get worse with stress and colds weather , i have tried the tablets your on but allergic to them ,as allergic to chemicals . even a mild headache turns me in to zombie :eek:. i was told to go at my own pace , which means saying in doors for a day or two to build up energy to go out . just a trip to get shopping feels like a marathon and only going to one shop as well , on returning i put shopping away and go to bed for a few hours ,like in a coma so worn out. i find to do some thing for 20 mins then sit of lay down to rest is best . i.e. put washing in machine turn on then lay down for 30 mins, so i can get up to get it out and on airier then lay down again so on. some days my arms feel like there broken and if anyone touches them i ahhhhhhh trouble is the pain comes and goes at different times , most nights in bed i stiff as a board , and roll out on to floor to get up , i try to stretch exercises to get going in the morning . i have been to see to several specialist , but they can't do any more. i have to make shaw not to over do it or it means a total day in bed asleep to recover. touble is some times i have a day when i feel 100% cured , go out round 6 shops in town then get home , i pay for it , head feels like its going to blow up , im in tears not knowing what to do, all my limbs are twitching about and v.painfull , just take to bed for days , so even on a good day try not to over do any thing .my best good times seem to be 1-4 in the afternoon , which then go down hill . hope this has been some help to you , rather long moaning letter sorry if become boring :EasterBun just need chocolate !!

[Deleted User]

Hello there Pebbles and welcome

I'm a (fairly) newbie on this thread too :-)

Sorry to hear that you're in so much pain and distress. I'd always say to be as open and honest with GP as possible. It's frustrating having to go over everything esp if you think they're not 'hearing' you. But don't give up. Is there more than one doctor in the practice? perhaps someone who may be easier talk to, even a nurse?

How far along with your Benefit Appeal are you?

I think the pain in the arms/wrists/shoulders etc is quite common. I was diagnosed with carpal tunnel, the re-diagnosed with raynauds. From the little I know fibro is notoriously hard to pin down and some folks go years b4 they get a firm diagnosis, if there is such a thing.

Stress does make things worse, so try not to get too angry with yourself for feeling low or because of the limitations your condition puts on your life (yep I know it's easy to say).

I don't know about your meds, I'm on different ones by the sound of it. But I'm sure some of the 'fibro-veterens' here may shed some light for you. There is a lot of knowledge, experience, and support here (lots of laughs too!)

Try to get some sleep if you can, it's one of the best things you can do. Hope things go well for your Mums op, and that you get a good night's sleep

All the best sorry I can't be of more help