Fibromyalgia

bigzippy

Careful_with_that_Axe wrote: »

Off to clean keyboard now as I swear all the accumulated biscuit crumbs are creating some typos.

But of course they are. Yup. *Nods* Of course!

Not.

RoxsiScotland wrote:

Zippy, argh what a nightmare about the move! I hate moving house its such a hassle. Just try to think of it as a nice fresh start and a good excuse for a clearout
I would love to get a cleaner but I just know I would be clearing up for her coming!

Ta dude, I thought so. I am trying to think of it as what it essentially is - getting to my marital home that bit quicker. I just wish it were on my terms! and with a hundred extra helping hands!
I'm the same with the cleaning, but I figure it'll make me do the surface stuff every fortnight (which might be an improvement!) and then the stuff I'm then too knackered to do after doing that stage will be done by someone else BEFORE all the clutter reappears and it needs clearing before the cleaning can be done, yet again.

Welcome to jubro, before I forget :wave:

[QUOTE-Raeh]i think i just associate them with me now sleeping better at night so presumed id feel sleepy in a morning? i think il up the dose over xmas when i dont need to be driving anywhere i have the instructions from the gp of when and how to increase it if i felt the dose wasnt enough after a while [another reason i felt she just didnt want me going back again][/QUOTE]
I know what you mean - I thought the same thing, but it did get better after I'd gotten used to them. Try it out, see what happens? I can understand you waiting til you don't have to work though, good thinking Batman
I'm with S/e on the saving time and energy for you thing. Listen to us. We always know best

Careful_with_that_Axe

I would have a healthy mistrust of anyone who would refuse to explain how their particular field would be of help to someone. And as you (both) seemed to be having problems setting up a clinical relationship, I would have thought it would have been in everyone's best interests to say, look this obviously isn't going to work for you. That way, you could potentially be offered something that might be of help and the appointments you weren't using be offered to someone who might benefit.

I know it will take some time, but now you have made the decision not to go back, you can start to put it behind you. I will try very hard not to mention CBT at all in case your head explodes!
p.s. BZ, just a thought, are you on the register with your local Council for housing? Or any Housing Associations?

bigzippy

Careful_with_that_Axe wrote: »

I would have a healthy mistrust of anyone who would refuse to explain how their particular field would be of help to someone. And as you (both) seemed to be having problems setting up a clinical relationship, I would have thought it would have been in everyone's best interests to say, look this obviously isn't going to work for you. That way, you could potentially be offered something that might be of help and the appointments you weren't using be offered to someone who might benefit.

That's essentially what's happened. Only she made out like it was my unwillingness that was the problem, which is understandably infuriating. She wanted me to let her know by the end of the week whether I was "willing to commit" or not. *Sigh*

Cwta wrote:

I know it will take some time, but now you have made the decision not to go back, you can start to put it behind you. I will try very hard not to mention CBT at all in case your head explodes!
p.s. BZ, just a thought, are you on the register with your local Council for housing? Or any Housing Associations?

Oh I've pretty much put it behind me - in the sense of I'm not actively stressing about it. I was wound up yesterday and I know it's had an effect on me today, but I'm just kind of glad it's over, cos surely a session of the one thing offered as treatment shouldn't leave me more wound up etc than I was before...? :rolleyes: It's the house move that's really tensing me up now. And that won't really go til it's all in hand, iykwim?

Not on any lists no, but know I wouldn't be a priority case: young, no kids, no dependants, etc etc. Plus I really want it to be a home that starts our married life, with a drive and gardens for the dogs and it to be a bungalow, you know? I can't see the council or HA offering us that, especially 5 mins from his mum's in a nice area, can you?

Careful_with_that_Axe

Probably not the Council, no, but no harm in being on their list?
It might be worth checking out the HA's though. Nothing to lose eh?

You've been through a lot of stress the last few weeks; tooth, OH's work etc. I hope you can schedule a quiet day with a little girlie pampering. Give yourself a nice manicure and your nails will grow back in no time at all.
Hope you have a peaceful night.

bigzippy

Careful_with_that_Axe wrote: »

Probably not the Council, no, but no harm in being on their list?
It might be worth checking out the HA's though. Nothing to lose eh?

You've been through a lot of stress the last few weeks; tooth, OH's work etc. I hope you can schedule a quiet day with a little girlie pampering. Give yourself a nice manicure and your nails will grow back in no time at all.
Hope you have a peaceful night.

No harm, except if I've already come to the conclusion it's a waste of time/energy I will have a look see though, I noticed a HA shop in town today I'd not noticed before tbh.

Girlie pampering these days is managing a shower/bath and drying/straightening in the same day! I might try it tomorrow though, while OH is at work. Then I really do need to get stuck in and start sorting out all the paperwork that's started inexplicably absorbing every surface in the household...:rolleyes:

black_paw

feeling down --- found this site to cheer me up ! pain in arms and hands just so ahhhhhhhhhhhhhh today spent day in, had a warm up dinner, really wanted the spud mash today ahhhhhhhhhh !! but unable to do them .perhaps tomorrow ! good moan does some good ! bless you all

bigzippy

Sorry you're feeling pants Jamla. Read through this thread and you'll find we can all relate...and have some humour along the way

PM if you wanna

Careful_with_that_Axe

Morning chums

Slept fairly well, but woke up looking like one of the living dead lying in a coffin; flat on my back, laid out with my arms crossed over my chest, hands on opposite shoulders!

Freaking slightly as my lovely man confirmed that he'll be doing flooring on Friday! Eeek!
He's going to wokr round the larger furniture that I won't be able to move and has offered to help me clear the room, but I'm too ashamed of the other rooms that it will have to go in to let him help me!
Will have to be done today as have to take Dad out for his weekly lunch tomorrow which takes hours and exhausts me. It's hard when people suck the positivity and energy out of you. Have to tiptoe round him in case I "say something that upsets him and sets off a depression which means he'll start drinking more". Sod him, what about me!
Will phone cleaner in a mo (promise s/e)and get her to come after Steve has done floor - good excuse as to why things are such a mess.
Bonus is that Steve (Flooring bod) is a very, very pretty to look at 26 year old. He should have been a Chippendale. I wonder if he'll take his top off if I turn the heating up high? No harm in looking, eh?

BZ, I understand about wasted energy with calling HA's etc. When I typed that it was an "I opened my mouth nd my Mother spoke" moment. Sorry.
I think the masculine side of my brain is quite strong - I always have to try to find solutions for other people's problems rather than just support and listen to them.

Sorry you're feeling rough Magenta and Jamla. These things too shall pass and you will have better days.

Right, one more cup of tea and then get to it.
Hugs to all

pamaris

Wow, this thread is hard to keep up with! I have had random thoughts and questions as I read through it (just the past 5 pages! haven't even started with page 1!).

First thing- the GP issue. I guess I am not the only one to have mixed feelings about my GP. I feel mine has done the right thing by referring me to the rheumatologist, and I understand her cautiousness in giving pain meds, but I am thinking now is the time to go and make my case. I am going to tell her that I've done my time. I've had 2 appts with her, and 1 with the consultant over the past 5 months- so now I have a diagnosis. My pain is twice what it was when I first went to see her, and now it is so disruptive there are days I can't get out of bed. There are days I don't know if I will be physically able to collect my children from school. Our morning school routine is running later and later because I move so slow now. So... maybe she'll throw me a bone!

What else... I am still pondering the DLA thing- was wondering whether anyone had been approved without including a letter from their healthcare providers? I'll do it if I have to, but I just wanted to know if I have to.

My mom also has fibro, and she has been going through every available therapy for it under the sun. She has tried CBT, acupuncture, nutritional therapy, massages, yoga, physio and just about every medication even slightly related to fibro. At this moment she doesn't appear to have benefited much from these things. This is really a strange condition- there seems to be no rhyme or reason to the way we feel or what we can or can't do.

The one thought that I have again and again is "What is wrong with me". I think that I am going to have to break that tape because now I have a dx and I know what's wrong with me.

I was the one who mentioned "joint hypermobility syndrome". Yes it''s a fancy name for double-jointedness. I was reading yesterday and found some great articles here: http://www.hypermobility.org/. A good resource for pain relief is here: http://www.hypermobility.org/hmspain1.php. The tips are also helpful to fibro sufferers.

I hope everyone has a great day today.

tatty

Hi everyone havent been on for a while as the pain has been so bad and i cant sit for long .I go in hospital tomorrow for a discectomy for my disc prolapse and sciatica and i am terrified i have had a fibro flare up everything is hurting ,i got about 2-3 hours sleep last night and i am shattered.I keep crying everytime i think about the op and am feeling really sorry for myself.i worry abut everything so you can imagine what is going through my head -will i be ok for christmas, will my children be ok while im in hospital (they are 8yrs and 1yrs old)will i spoil christmas for everyone .I have a wonderful husband ,parents, family and good friends ,so i know that everything will be fine but i cant help feeling this way i have never had an op since i got my tonsils out when i was 11 yrs old .Hope everyone is ok and sorry for sounding so sad and down .claire xx p.s i too have hypermobility and raynaulds x x