Fibromyalgia

somebody_else

bigzippy wrote: »

No, but I've not told her that yet - so I'm still freaking quietly! I bet that's why she was a bit more impatient this week, cos she'd checked it out already (mind you, to be fair, I hadn't said much about her til this week) Funny thing is, I'm sure I've said more on here than I've said (or would) to her :rolleyes: Says it all really doesn't it?

P'raps she was a bit impatient 'cos she'd seen what I had to say about CBT and ME/Fibro. The thing is, it's up to her to develop the therapeutic relationship and from what you've said it's not happened in this case. She's not exactly gone out of her way to make things easier for you, has she? You know, things like making appointments at time that would mean you're more receptive to the whole idea would be a good start. Even my Rheumatologist has taken on board my difficulty with early morning and late afternoon appts. Just that simple thing (giving me time to wake up and get properly mobile in the morning, and not having to worry about getting caught in rush-hour traffic or having to drive in the dark) make one hell of a difference to how we are when we're at the appointment.

bigzippy wrote: »

I knew I shouldn't have told you my age. :rolleyes:
I know that there are LOADS of "professionals" that don't - but I'm still, apparently, round eyed enough to think that a therapist who specialises in working (and is the head of the dept :eek:) with people with ME & fibro and also works with (childhood) sexual abuse cases would at least have an empathetic bone in her body. *Sigh*

Oh dear - I wonder if she's one of those therapists who are convinced that all physical problems are psychosomatic and stem from 'issues' in childhood. It just seems like a slightly odd mix of specialisms to me.

Careful_with_that_Axe

p.s. if you go up to Thread Tools, you can click on the subscribe to thread option.

Off to clean keyboard now as I swear all the accumulated biscuit crumbs are creating some typos.

RoxsiScotland

:hello: hi to all the newbies! you'll always be welcome on here. Hope everyones not feeling too crappy.
Zippy, argh what a nightmare about the move! I hate moving house its such a hassle. Just try to think of it as a nice fresh start and a good excuse for a clearout
I would love to get a cleaner but I just know I would be clearing up for her coming! Always promised i wouldnt turn out like my mum in that respect but here we are!

raeh

bigzippy wrote: »

I have my suspicions, Raeh, that as you are still working that you have more of a struggle to find appointments that slot in as easily? And that you have less time to squeeze everything else in, so inflexible doc appts get pushed down the list? And because you're still working, and seemingly functioning, you feel less of a right to be there, almost - iyswim. Not that that's true, but that doesn't stop how you feel about it, does it?
I definitely think you need to make a fuss when you need something.

yeah all the above :rolleyes: to keep me sane i need my little part time job but then it does make people have the opinion of how can things be as bad as she says when she works! they dont see me at home

bigzippy wrote:

Consider yourself SHOUTED AT!!! :cool: You'll only have yourself to blame. :rolleyes:

CwtA wrote:

Oh dear Raeh, I actually tutted out loud when reading your post. :rolleyes: But then I can't really get on my high horse when I'm guilty of doing the same sort of thing.

its hard not to do too much when i feel ok?? then i remember why i usually cant do that much

bigzippy wrote:

I think that feeling wears off after a week or so Raeh? I used to feel really sleepy when I first started taking them, but I don't feel like that now.

i think i just associate them with me now sleeping better at night so presumed id feel sleepy in a morning? i think il up the dose over xmas when i dont need to be driving anywhere i have the instructions from the gp of when and how to increase it if i felt the dose wasnt enough after a while [another reason i felt she just didnt want me going back again]

Roxsi i would be the same cleaning up for the cleaner coming :rotfl:

ok 'nother cuppa needed for eastenders then holby

see you laters

somebody_else

raeh wrote: »

i have the instructions from the gp of when and how to increase it if i felt the dose wasnt enough after a while [another reason i felt she just didnt want me going back again]

Rae, have you considered the possiblity that she did that to save you a bit of time and energy? Why take up another appointment, if she trusts you to be sensible with your drugs?

My current GP will even prescribe things for me (like flamazene) to save me having to go to A&E when I burn myself severely enough to require some treatment. She knows I have the sense to know when I need medical treatment and when I'm capable of treating myself.

somebody_else

RoxsiScotland wrote: »

I would love to get a cleaner but I just know I would be clearing up for her coming! Always promised i wouldnt turn out like my mum in that respect but here we are!

I'll let you into a secret Roxsi. I have a cleaner. Once a fortnight I go round the house and empty bins, tidy up the clutter, unload and reload the dishwasher with dirty dishes (okay, that gets done a bit more often than that), etc. When my House Fairy arrives, after she's had a cuppa and a bit of a chat, she goes through my house like a dose of salts - dusting, polishing washing floors and tiles and vacuuming. She does in 2 hours what it would take me 2 or 3 weeks to do. If you keep the clutter under control, the cleaner can do the heavy stuff leaving you with more energy to do the things you enjoy doing.

Unless you happen to enjoy doing housework. If that's the case, all I can say is...



Weird!

Unity

Careful_with_that_Axe wrote: »

p.p.s. pamaris, soluble painkillers seem more effective that those in tablet form.
p.p.p.s. Unity, I was born in Bishop Auckland. Family all come from Manchester area and are of Irish descent.

Well I never! I have two cousins near Bishop. Both married farmers and now live in Hamsterley and Butterknowle respectively. It's a beautiful part of the country that we try to get out into whenever we can. The only problem is it doesn't take much for them to become cut off when it snows.

See - this is what happens when I'm awake during the night - I sleep during the day and you lot leave me behind!

I meant to say - if anyone else uses the morphine patches - I used to itch badly with them, but found out from a friend of a friend that the nurses in the local hospice found that if you spray the area with a Becotide inhaler (normally used for asthma) the small amount of steroid in them stops the itching :T. Did I mention I may be coming off these - at my own suggestion since I no longer know if they are working? I'm going to wait until after the festive season and if I find I have a bad flare up I will be back on them as I'd rather that than be back in the wheelchair. The pain clinic consultant is prescribing methadone as it can be reduced with a lot more precision than the patches as the smallest is 12 microgrammes. Anyway sorry if I have mentioned it before my fog is of the London pea-souper type tonight.

Welcome to all the new peeps, good to see you all :beer:.

raeh

somebody_else wrote: »

Rae, have you considered the possiblity that she did that to save you a bit of time and energy? Why take up another appointment, if she trusts you to be sensible with your drugs?

My current GP will even prescribe things for me (like flamazene) to save me having to go to A&E when I burn myself severely enough to require some treatment. She knows I have the sense to know when I need medical treatment and when I'm capable of treating myself.

you could be right i just felt she was in a rush the last time i went and hurried me out and wasnt really listening? i only have about 4 appointments a year so im not always there? its probably just me feeling a bit touchy about things :rolleyes:

Careful_with_that_Axe

raeh, do you feel that you could bring this your with your GP? Explain how you feel? It could improve your relationship immeasurably.
I mentioned to my GP that I felt I was always taking up so much of her time and, rather than just an off the cuff answer, she went back through all my appointments and assured me that every one of the times I had seen her was for a valid reason.
I wonder if GPs feel a little awkward/guilty if they know there's nothing they can really do to help.

bigzippy

Careful_with_that_Axe wrote: »

BZ, the curse of the typo again!
And I think you will find that I very carefully didn't mention offering to paint or anything

Teeheeheehee

Somebody_else wrote:

The thing is, it's up to her to develop the therapeutic relationship and from what you've said it's not happened in this case. She's not exactly gone out of her way to make things easier for you, has she? You know, things like making appointments at time that would mean you're more receptive to the whole idea would be a good start. Even my Rheumatologist has taken on board my difficulty with early morning and late afternoon appts. Just that simple thing (giving me time to wake up and get properly mobile in the morning, and not having to worry about getting caught in rush-hour traffic or having to drive in the dark) make one hell of a difference to how we are when we're at the appointment.

I couldn't agree more,as soon as I went in I mentioned things about the room and the chairs on offer etc that just don't work for me - eg. the lack of arms on the chairs, as it meant I actually had to use the muscles in my arms to hold them in place, which is very tiring for an hour's session and completely unnecessary. Not only that but of course there's nothing to help you push up off the chair when you get up either. :rolleyes:I told her immediately that I didn't do mornings etc etc and I have told her before too. "Very frustrated today aren't you" *sigh*

Somebody_else wrote:

Oh dear - I wonder if she's one of those therapists who are convinced that all physical problems are psychosomatic and stem from 'issues' in childhood. It just seems like a slightly odd mix of specialisms to me.

It does to me too. I suppose if you think that CBT is the only psychological tool worth anything, then that's what you'd apply to everything...?

I did ask her how CBT even works for people with chronic conditions, as opposed to some kind of phobia or short term trauma, but the only answer I got was that I had a "reductionist" view. *sigh* I wouldn't mind, but it was a question that even my SIL pyschotherapist had!