Fibromyalgia

somebody_else

bigzippy wrote: »

This CBT woman can go take a running jump methinks. It keeps occuring to me that since I mentioned you lot on here helping me along, and she showed a keen interest in finding the forum, she might come on here and work out my psuedonym :o Eeek.

But if you're not seeing her anymore, then it won't matter if she does work out who you are, does it?

bigzippy wrote: »

I just don't know how any health care professional, let alone someone who regularly works with people who suffer from Fibro and similar, can have such little empathy or (seemingly) understanding for what they deal with! Add to that that we blatantly have spent quite some time working out how we can or can't deal with the symptoms and the condition(s) and what works best for us, I just don't know how she can expect me/us to willingly just hand over all control to them in the vague hope that there might be some slight improvement.

Oh dear, zippy. So young, so inexperienced, so naive. Sadly there are many health care professionals out there who don't have any empathy with their clients/patients. I'm sorry you've found out the hard way, and I hope if you can get another therapist you get one who will listen to you.

bigzippy

Careful_with_that_Axe wrote: »

BZ, have been trying to think of some positives regarding having to move;
1. You can have a good old clear out and sell stuff on ebay for a little extra pocket money
2. You may get a winter let which will be cheaper
3. Rents are really starting to drop and by the time you sign a new lease for somewhere they may be significantly lower.
4. New place may be easier to heat than current one and logistics of layout easier.
5. You can have a house warming party and invite all your Fibre mates!

Not trying to make light of it - you know my heart goes out to you, but silver linings and all that?

I hope that in a couple of days you will be able to say "Right, I won't let this beat me and I'll show them".

I know you're not making light dude. And I know that if it had been when we were planning for it to be happening and I felt like it was my choice and under my control then I'd be a lot less stressy about it. But I am a self confessed control freak. It doesn't help that it's a good few months than we were planning on, and that it's so close to the madness of Chrimbo. I just hope I get some willing volunteers to help me out, but I doubt it :cool:.

The clearout would take longer than I actually have to pack everything up, I fear. I think it'll be more like after the wedding that something as messy and therefore stressy as that might happen. I am however really hoping that this current "gobal economic downturn" will have a knock on effect on rental prices. I suspect that the bungalow market round here will remain pretty stable, but I can but hope.

I do think that a bungalow (esp properly insulated) will be better to heat (It surely can't be worse!) - and even if it's not at least all the rooms are on one level so I can go round turning down the appropriate radiators so I only heat the rooms in use.

As for my new Fibro mates: between all our aches and pains etc we could never have a paint party or similar could we!! :rotfl: But "Fibre mates" are even funnier :rotfl:

bigzippy

Careful_with_that_Axe wrote: »

I bet you splattered the puter screen when you did that

But of course!
My OH is going round telling everyone and everything to F off! Not in a nasty way, and it is quite funny when he just walks up to the unsuspecting and very cute dog and tells him, for no particular reason to Foff!

Cwta wrote:

s/e, you are absolutely right (as always :rolleyes: ) about calling cleaner and I'm going to get her in for as many hours as takes to get things straight and then perhaps monthly after that. I will phone her as soon as I'm up tomorrow and that's a promise.

Careful, you've made a promise AND in writing now! We expect results first thing Axe.

raeh

hello everyone hello to natashasprite and pamaris and bushbaby....this little group seems to be growing every time i come on.

iv noticed hypermobility mentioned a few times and dont actually know what that is but im going to have to google and look what problems it causes as when i used to do yoga i was exceptionally bendy? the yoga teacher commented on it as i could bend into positions others couldnt get near!

also i realise other people seem to get much more help from their gp, i always feel im being a nusiance when i go? Once the consultant at the hospital formally dx fibro after about 18 months of every test imaginable i was just sent on my way to 'learn to cope with it' as it was put! iv had to ask for every medication i get rather than it be offered..... time to make a fuss maybe

well my day off wasnt so relaxed as i was feeling better today and decided to go xmas shopping, I still havent gotten all i need :rotfl: back to t'internet and if i cant buy it on there we arent having it and then [i know Auntie Axe and BZ are going to shout here ] i stripped some of the wallpaper off in eldest sons room, hubby is converting the loft to a play room and the extension part of the house had lower ceilings than the old part so we have lowered the ceilings in the bedrooms and everything needs plastering and redecorating. yeah .. yeah i know .... just before xmas :rolleyes: So now im exhausted and need a lie down and a nap with some painkillers and a cuppa. I never learn you know, as soon as i have a day feeling ok i do far far too much and then .... well you all know the rest.

pamaris its terrible you arent given anything for the pain?? i do find that during the day paracetamol takes the edge off so i can cope and i have pregabalin at night which is really helping after amitryptlene[sp] and gabapentin left me a zombie!! i could take pregabalin in the morning but then i dont feel right to drive and i have to drive to get to work!
and i know just what you mean about people saying they are tired! we have had conversations on here about people 'thinking' they know just what we are feeling like! [takes me back to my neighbour and her chapped lips :rotfl: ]

bz i hope that you find the perfect bunglaow to rent and as Auntie Axe says look for all the positives in it xx

ok iv blathered on for far too long, take care everyone and il be back after a rest

bigzippy

somebody_else wrote: »

But if you're not seeing her anymore, then it won't matter if she does work out who you are, does it?

No, but I've not told her that yet - so I'm still freaking quietly! I bet that's why she was a bit more impatient this week, cos she'd checked it out already (mind you, to be fair, I hadn't said much about her til this week) Funny thing is, I'm sure I've said more on here than I've said (or would) to her :rolleyes: Says it all really doesn't it?

somebody_else wrote:

Oh dear, zippy. So young, so inexperienced, so naive. Sadly there are many health care professionals out there who don't have any empathy with their clients/patients. I'm sorry you've found out the hard way, and I hope if you can get another therapist you get one who will listen to you.

I knew I shouldn't have told you my age. :rolleyes:
I know that there are LOADS of "professionals" that don't - but I'm still, apparently, round eyed enough to think that a therapist who specialises in working (and is the head of the dept :eek:) with people with ME & fibro and also works with (childhood) sexual abuse cases would at least have an empathetic bone in her body. *Sigh*

jubro

My mother, sister and brother all have fibro. I wanted to subscribe to this thread to see what was being posted but couldn't find a way to do so without posting (if you know how please send me a PM).

purplecatlover

somebody_else wrote: »

Sadly there are many health care professionals out there who don't have any empathy with their clients/patients.

that is so very very true. its such a shame.

good luck with finding a bungalow bz and all the stress that goes with moving.

somebody_else

jubro wrote: »

My mother, sister and brother all have fibro. I wanted to subscribe to this thread to see what was being posted but couldn't find a way to do so without posting (if you know how please send me a PM).

As far as I'm aware, the only way to subscribe to a thread is to post on it, so consider yourself subscribed.

Welcome to our little world, jubro.

bigzippy

raeh wrote: »

iv noticed hypermobility mentioned a few times and dont actually know what that is but im going to have to google and look what problems it causes as when i used to do yoga i was exceptionally bendy? the yoga teacher commented on it as i could bend into positions others couldnt get near!

T'other one (forget who) said double-jointedness? I took it as read

Raeh wrote:

also i realise other people seem to get much more help from their gp, i always feel im being a nusiance when i go? Once the consultant at the hospital formally dx fibro after about 18 months of every test imaginable i was just sent on my way to 'learn to cope with it' as it was put! iv had to ask for every medication i get rather than it be offered..... time to make a fuss maybe

I have my suspicions, Raeh, that as you are still working that you have more of a struggle to find appointments that slot in as easily? And that you have less time to squeeze everything else in, so inflexible doc appts get pushed down the list? And because you're still working, and seemingly functioning, you feel less of a right to be there, almost - iyswim. Not that that's true, but that doesn't stop how you feel about it, does it?
I definitely think you need to make a fuss when you need something. I went it and swore and stamped my feet when I was being delayed (and what I felt to be messed about and given the run-around) with my dx. Over the couple of years or so me and GP have built up a rapport, and I even took the micky out of his choice of psycadelic (sp?) socks this time Naughty Zippy

Raeh wrote:

[i know Auntie Axe and BZ are going to shout here ] i stripped some of the wallpaper off in eldest sons room, hubby is converting the loft to a play room and the extension part of the house had lower ceilings than the old part so we have lowered the ceilings in the bedrooms and everything needs plastering and redecorating. yeah .. yeah i know .... just before xmas :rolleyes: So now im exhausted and need a lie down and a nap with some painkillers and a cuppa. I never learn you know, as soon as i have a day feeling ok i do far far too much and then .... well you all know the rest.

Consider yourself SHOUTED AT!!! :cool: You'll only have yourself to blame. :rolleyes:

Raeh wrote:

i could take pregabalin in the morning but then i dont feel right to drive and i have to drive to get to work!

I think that feeling wears off after a week or so Raeh? I used to feel really sleepy when I first started taking them, but I don't feel like that now.

Raeh wrote:

and i know just what you mean about people saying they are tired! we have had conversations on here about people 'thinking' they know just what we are feeling like! [takes me back to my neighbour and her chapped lips :rotfl: ]

bz i hope that you find the perfect bunglaow to rent and as Auntie Axe says look for all the positives in it xx

Lol - don't get me started on the chapped lips again! :rotfl:
Thanks dude, I'm actually really looking forward to living in a bungalow, esp as I'll be leaving a cold, mouldy (not too bad but enough to raise an eyebrow at times), ant riddled (in summer), slug riddled (all the time!) terrace. I want a drive, and a garden or too, in a nicer area and with NO stairs! It's just the cost and the effort and energy required to make it happen that's stressing me out. And the stress of the landlord/lady/family fiasco. That really doesn't help.

Careful_with_that_Axe

Oh dear Raeh, I actually tutted out loud when reading your post. :rolleyes: But then I can't really get on my high horse when I'm guilty of doing the same sort of thing.

BZ, the curse of the typo again!
And I think you will find that I very carefully didn't mention offering to paint or anything

I have prevaricated long about the cleaner so really will do it tomorrow and a bunch of other calls I have to make that have been on the list for too long.

s/e I know flooring will look good, just that the bank balance won't :rolleyes:

later all
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