Fibromyalgia

LameWolf

Afternoon folks.

Today will prob be the last you'll see of me for a bit. Mr LW is using up his annual leave next week, so I'm not likely to get online much, if at all.

CwtA good that you got the freezer moved - you did get some help, didn't you??

I've never used Shopmobility, although we have it in Central MK, as Mr LW is always with me to push wheelchair. I'm far and away too nervous to go out alone, even if I could get into town. CwtA I know what you mean about not being "with it" enough to drive. I don't have my own car any more, but I used to worry about going out somewhere and being too fogged out to get home!:eek:

somebody_else

Careful_with_that_Axe wrote: »

s/e
Shopmobility has just opened near me, but I'm sure you'll understand that I always think it's there for someone who has real problems, not me :rolleyes: . I will bear it in mind though for next theatre trip to Plymouth as that had me on my knees.

I quite understand - which is why I don't use it as often as I probably should.

Careful_with_that_Axe wrote:

Also, I'm afraid I'm a bit of a petrolhead and would be oh so tempted to try a handbrake turn etc - no I wouldn't do it of course, but it would cross my mind. As I've said before I have a deplorable excess of mischief.

The only thing I would warn you about is the tendency for the electric wheelchairs to take off on their own if you hit a bit of a slope. I'm afraid it happened more than once with me, which scared me a bit so I went over to using the scooters instead.

Careful_with_that_Axe wrote:

Grim for your Mum. Thank goodness you stepped in to help. I'm sure most us would rather with things like that that they just go for it rather than taking twice the time and trying not to hurt us.

What was even worse, was after they'd taken the cast off the Physio kept telling mum there was no reason for her not to be walking properly after a few weeks. This went on for some time 'til Dad paid for a private x-ray to be done - which showed that there were a couple of small bones in her foot which were still broken. So she was effectively being told to walk on what was still a broken foot.

I don't suppose I've posted here about the time I went to see the GP I was registered with, 'cos I was in so much pain, and I'd lost one hell of a lot of weight. First question she asked: are you on a diet? :wall:

LameWolf

Makes you wonder about some of the medical bods, doesn't it?

Not long ago, I mentioned some weird (and quite scary) visual disturbances I was getting, totally different from the "aura" I get preceeding a migraine, to my GP, and she just shrugged, said she didn't know, it was probably stress, and not to worry about it!

bigzippy

Careful_with_that_Axe wrote: »

BZ - I do get little spots of blood from my nose and it's always bunged up in the mornings. Part of the reason the window in bedroom is open come hell or high water.

I wake up to lots of little blood spots on the pillows and it takes me ages to work out where they've come from.
I'm convinced its a side effect of sommat.

I'mbunged up pretty much every morning too. My dad has little blood spots that appear here and there - most noticeable on his shirt. He reckoned it was cos of his meds.

Somebody_else wrote:

Are you using any kind of nasal spray (beconase, decongestant, etc) at the moment. I've been suffering a bit recently with a bluddy nose - as you say, not a 'proper' nosebleed, but a repeat dribbling. I've decided that it was because I'd used beconase 2 nights running when I was feeling decidedly bunged up.

I've resisted the temptation to use it since Monday night and it seems to be clearing up now.

Oh, and if you're taking ibuprofen (neurofen, etc) that can also thin the blood a bit and encourage bleeding at times.

Not using a nasal spray (supposed to for my hearing, but actually don't bother:rolleyes:). It's not even really a dribbling - it's just that the inside of my nose seems to kind of scab up but then I blow my nose and the process starts again, iykwim?
Not taking ibrobufen or whatever regularly enough I wouldn't've thought..?

Well I'm off to take MIL2B for her blood tests so I'll catch you all in a bit.

somebody_else

LameWolf wrote: »

Makes you wonder about some of the medical bods, doesn't it?

Not long ago, I mentioned some weird (and quite scary) visual disturbances I was getting, totally different from the "aura" I get preceeding a migraine, to my GP, and she just shrugged, said she didn't know, it was probably stress, and not to worry about it!

I've lost count of the number of times some of my symptoms have been put down to either stress or depression.

It would have been nice if, just once, that particularly GP had acknowledged that there had been something seriously wrong with me for some time. I have no problems with a doc who admits they don't know the answer to something (current GP is more than happy to refer me on if there's something going on that she's not sure about. Like my eyes - looked a lot like conjunctivits, but she wasn't 100% convinced so sent me straight up to the eye hospital as an urgent case), what I object to are the ones who insist they were right, even when it's been proved that they had got it horrendously wrong.

If you see a neurologist (or a Rheumatologist, come to that) it might be worth mentioning the visual disturbances to them. Can't guarantee they'll take more notice, but it's possible.

somebody_else

bigzippy wrote: »

Not using a nasal spray (supposed to for my hearing, but actually don't bother:rolleyes:). It's not even really a dribbling - it's just that the inside of my nose seems to kind of scab up but then I blow my nose and the process starts again, iykwim?
Not taking ibrobufen or whatever regularly enough I wouldn't've thought..?

I'm not sure you've got to take it for very long - if T/S takes more than a couple of doses spread over 3 or 4 days, he'll bleed profusely from the slightest scratch.

Or it could just be that you've got very weak blood vessels in your nose and they'll just ooze on a fairly regular basis. I know it's possible to have them cauterized if it's causing a problem. Might be worth mentioning to your doc at some point.

Careful_with_that_Axe

On a diet?!! I know they have to check the "if it looks like and duck and quacks like a duck....", but that takes the biscuit.

October time here is called The Killing Fields as it's when the newly qualified Registrars start their rotation at the Hospital. My first appointment with a Rheumy was at that time of year, but I have to say that I have never had such a thorough history taken. It took about an hour and she came up with a plausible dx before calling in Consultant.
Was particularly impressed with her.
Whereas this last appointment was with a Registrar who, when I said I was thinking of apply for DLA looked shocked as hell and asked if I had enjoyed my last job.
After a disastrous appointment with a GP locum early in the week who seemed to want to blame my weight and panic attacks (which I don't get) for everything, I really began to think that people didn't believe me that I was unwell. That's something I still struggle with a little bit as symptoms are so myriad.

Careful_with_that_Axe

Lamewolf, I hope you have a wonderful time with OH.
Errr, no I moved the freezer on my own but went about it slowly and very carefully and only ill effect was that it stressed my neck a little bit.
You don't need to say it, I know, I know!!

Please do see GP about visual disturbances. That sounds distressing and worth looking into asap.

LameWolf

somebody_else wrote: »

If you see a neurologist (or a Rheumatologist, come to that) it might be worth mentioning the visual disturbances to them. Can't guarantee they'll take more notice, but it's possible.

Nah, the rheumy didn't take any notice either.

But I've got an optician appointment on Monday, so I'll tell them about it. They call me back once a year instead of every two years, because I'm on Plaquenil, so maybe they'll be a bit more clued up/interested.
CwtA You Bad Girl!! :eek: I hope you haven't done yourself a mischief. *SIGH* There's no telling some people, is there?

somebody_else

LameWolf wrote: »

Nah, the rheumy didn't take any notice either.

I know that one as well. Several months after the brain haemorrhage I asked the same GP why I still had such a thumping headache. "Dunno" Says she "Ask your Neurologist." So next appointment I asked the Neurologist why I still had such a thumping headache. "Dunno" says he "Ask your GP." He did decide that I was recovering well and that a lot of residual symptoms were being caused by the ME. Which was bluddy clever, seeing as I didn't have ME.

LameWolf wrote: »

But I've got an optician appointment on Monday, so I'll tell them about it. They call me back once a year instead of every two years, because I'm on Plaquenil, so maybe they'll be a bit more clued up/interested.

In my experience Opticians seem to be more clued up about this sort of thing. Apparently, they can diagnose all sorts of things just by looking in your eyes.