The (not so old) Crocks Cafe

LameWolf

suep wrote: »

Hi LW I hope you havn't been over doing things at the weekend again
I took your advice and joined the Flylady thread, DD made fun of me :mad: but I did ok today I think. Luckily she's sort of moved out now, she stays at her boyfriends flat all week as its handy for work, and only comes home at the weekend as she likes to go out locally with her friends, so most of the time its just DH and me which means the house doesnt get as messy as it used to.
It's her day off today and we went to visit my Dad this morning, he's not doing too good now and is having a final short course of chemo to try and give him a bit longer , he's been told they cant do any more for him.
Hope everyones ok

I nearly forgot to say, Invasion, I love your funky crutches

Me? Overdoing it? I don't know what you mean.:whistle::whistle:
I saw you'd posted on Flylady; I've found it very good, and I'm far more organised than I was about housework.
Sorry to hear that your Dad's not doing well. I hope he's at least comfortable, and able to get some enjoyment out of the time he has left.

I think Invasion's crutches are brilliant! If I didn't have hazel wood sticks (one of which it topped with an antler!) I'd be tempted to do something like that myself.

Careful_with_that_Axe

Still struggling a bit to take new info in, but major hugs to suep, LW and all.
Finally have a date for Oral Surgery - this Frday at 3.45pm. Don't know if they have a plan of action already in place but have been told appointment may take up to 2 hours and will include a pre-theatre assessment. Back at docs this morning as infection hs flared up again and have, on docs orders, had to cancel planned holiday on Scillys with S/E. Were due to leave on 2nd April. Hopin to re-arrange later in the year when all has settled down.

Hugs to all.

Jojo_the_Tightfisted

Oh dear, CWTA, it's a shame, but I can't imagine what travelling with that playing up would be like. At least you're getting seen at last, which has to be a good thing.

LameWolf

Auntie Axe, I shall be sending good vibes your way on Friday afternoon. Great shame about having to postpone your holiday; but hopefully you can take it later on. Have a Wolfy (((HUG))) to keep you going.:o

jennihen

SingleSue wrote: »

Arrgggghh, I am in pain....did something very silly this morning.
Went shopping and got some cat litter, bigger bag than normal but still not out of normal scope for cat litter.....knew as soon as I picked it up that it was too heavy for me but by that time, it was too late.

Now I am walking about like an old woman with horrendous pains shooting down my legs and across my back plus unending back spasms.

Its carp isn't it - you do something you should be capable of but the repercussions are extreme. The most strenuous thing I did yesterday was hold the head collar of a pony who had more attidude than my 15 yr old daughter but he tugged my arm so much I'd happily have it cut off. I had anither early night last but couldn't sleep cos my shoulders hurt so much every I moved I woke myself up!
I'm so tired of this. I try to be optimistic but I'm losing faith. The thought that the rest of my life could be this bad or worse scares me.

suep

Careful_with_that_Axe wrote: »

Still struggling a bit to take new info in, but major hugs to suep, LW and all.
Finally have a date for Oral Surgery - this Frday at 3.45pm. Don't know if they have a plan of action already in place but have been told appointment may take up to 2 hours and will include a pre-theatre assessment. Back at docs this morning as infection hs flared up again and have, on docs orders, had to cancel planned holiday on Scillys with S/E. Were due to leave on 2nd April. Hopin to re-arrange later in the year when all has settled down.

Hugs to all.

Im sorry you've had to cancle your holiday, but Im sure you would rather get this done first, the Scillys will still be there when you've recovered and are more abe to enjoy your holiday. We're not planning to go away this year due to Dad , although I am trying to talk DH into staying in this country for a holiday, theres some lovey places here, including your end of the country, he's not keen at the mo, but Im not giving up.

bigzippy

Invasion wrote: »

BZ...The way I see it, my disability benefits are meant for exactly that kind of thing, and as I don't have a house to run on them I have more spare.

It wasn't a criticism at all, and I agree with you that I think they are meant for things like that to give us any and every advantage we can have. Unfortunately I do have a house to run tho, altho when DH&MIL's house is sold then it should free my money back up to try things like that
Unfortunately if i get too much cold going on/in the wrong places it makes me ache. So I can't win half the time!

TOBRUK wrote: »

Bigzippy, no I'm not a member of 'benefits and work' but I have been looking and reading different posts. I'm not sure if I would pay to join ... that it would be really worth it! I'm a little sceptical!!

I've not been a member myself either, but the few people I'm in touch with who have similar issues have joined it and found it very useful. I know that you mean tho, but in the absence of any useful organisations to help you it's gotta be worth a try?

Jojo words fail me about the housing. I told DH and he was using expletives! Have you tried something like sheltered housing? If they don't have anything suitable then they often have bungalows in their schemes?

I've been to my gp's today. Good news is that if I fell pregnant/wanted to become pregnant i can stay on the ami and pregabalin. Bad news is no painkillers but paracetamol unless I want the baby to have restricted blood flow in the womb and/or withdrawals when it's out. I kind knew that was likely to be the case but it's nice to have it confirmed. I'm getting a referal back to the consultant to see about an "official" dx of fibromyalgia, as the physio's wouldn't accept it from a gp *sigh*. Did want to ask her some more questions tho, and maybe retake some tests, so I probably would've asked for the referral anyway. I've been prescribed another anti-epilepsy drug to take along side my current lyrica and ami (more lyrica makes my bladder inflammed and more ami turns me into a complete zombie) so I'm hoping that helps with the breakthru nerve pain and spasms. Got a new antihistamine to try too... We'll see how that goes...

bigzippy

Oh and suep sorry to hear the news about your dad

Jojo_the_Tightfisted

The thing is BZ, I'm in my (cough) mid thirties and I've got two kids - one 17 and one 10. So I have to wait for normal accommodation and get it adapted.

Ideally, I would get a bungalow (all the flats in my area have enormously heavily security doors), but because there aren't many around (they were mostly sold off in the late 1980s), I said I'd take a house. I've had to specifically say I won't take some areas available, because of the hills and lack of transport, and they complained 'well, you refuse to look at most of our areas'

In any case, I have brief periods when I can actually do stuff - my Facebook profile has a piccie of me rollerskating (that was possible due to the wonders of steroids, a week of painkillers maxed out, with the accompanying chucking up, & sheer bloodymindedness - I didn't leave the house for five days afterwards). This makes me feel guilty when other people have permanent mobility problems.

I've fallen down carpeted stairs once and I know they hurt a lot less than concrete ones in blocks of flats, because you tend to bounce, unlike concrete ones, where you end up needing surgery because you've damaged yourself so much.

But this seems to be lost on the council.

Saversue

Morning 5.30 and still trying to get to sleep. Good luck with the Op - Careful with the Axe, what are they going to do to you?

Hope every one has a good day, I am going back to bed now with drink and picnic, sometimes a good binge eventually gets me to sleep.

Did anyone notice my post about the increase in age for bus passes? and other benefits such as free prescriptions? Another cutback that will affect lots of us. I already am untitled to a disabled bus pass for life (not that I am able to use buses) I just thought that some other people might be interested.

But now I will have to keep paying for my prescriptions for another five years by buying Pre-payments.

Its also going to effect other benefits and DLA/State Pension age and Incapacity etc.