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The (not so old) Crocks Cafe
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Good morning everyone ... or is it still night? I have been up since 3am Argh! I am feeling wrecked - anyone else?
bigzippy, you're amazed! A comprehensive letter? ... well it was two and a half page (typed) letter but I still don't understand ... especially after all I've read on the forum about re-considerations etc. I wasn't expecting this! Anyway, we shall see what the outcome is!I'm amazed! It must've been a comprehensive letter
Well done
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Hi all; Happy Thursday to you all. (Yes, Jennihen, it is Thursday):D
Not really energetic, just that with the help of the Flylady lists I am absolutely determined to get this place up to scratch; it is just so unfair for Mr LW to do all the housework when he works a full time job as well. Don't worry, he still does all the stuff that's beyond my capabilities, but I have to make some effort, or I'll feel forever guilty.:)Hi everyone, how are we all today?? Lamewolf, have you finished all the washing and cleaning yet? You are feeling energetic today ... I'm feeling exhausted just thinking about it!;)
I don't want to rain on your parade, but tbh I'd be inclined not to read anything into that response. It sounds very much like a "standard letter" to me, and all it really says is that they have your letter safely. (I was a Civil Servant for 20 years, albeit not with the DWP). Don't want to put a downer on it for you, but don't want you to get all excited prematurely either.:) Fingers firmly crossed that when they do look at it properly, you'll get a favourable response.Well today I had that dreaded brown envelope through the letter box! Don't laugh but I couldn't open it for about 2 hours! They thanked me for my communication asking them to look at my claim again. They say they are looking at all the information they have and can take 11 weeks for a decision to be given.
I can't believe that they are looking at it again without me having to fill in another form or something! What do you make of that then?!
Oh.... whenever we get Dreaded Brown Envelopes I can't get them open fast enough - I want to know the worst straightaway! I guess we're all different.:D
Ooh - fingers crossed for DH that he gets that promotion.:o Hope the house sells quickly too; that'll be one more millstone off from round your necks.Well suep we would be thinking about it...if we had any sodding money! :rotfl: We've just put DH/MIL's (joint ownership and joint homeowner loans) house on the market, so very much hoping that it sells quickly, we get MIL settled into sheltered accom, and pay off all the debts. Also hoping DH gets the promotion he had an interview for yesterday (or a decent payrise another way so he doesn't have to work 2 jobs anymore). THEN we can think about it
It's something we want, but we're trying to be sensible/responsible 
*Waves* to everyone else. I've just washed the front doormat - it was filthy. Luckily it's one that can be put in the WM.:DIf your dog thinks you're the best, don't seek a second opinion.;)0 -
Waves to everyone....
Eldest sons appointment with the local general physio went well yesterday..he got told off for over extending the knees, told off for stopping cycling and going to walking (he only cycles in the winter for some unknown reason) and given some new exercises to do....she wants a situation report in a month. It was great fun organising to go up to see her again as in the next month he has a shoulder specialist appointment, hand specialist appointment and GCSE's starting with easter in between!
Youngest sons asthma seems to have settled back down and his peak flows are nearing normal again (big phew here, I had visions of being back in hospital with him again) and it is his 12th birthday today! Where did the time go?
Now trying to gee myself up to clean the kitchen ready for a gas safety check tomorrow...I really can't be bothered, my back hurts and I am lacking very much in sleep but it really does need to be done.We made it! All three boys have graduated, it's been hard work but it shows there is a possibility of a chance of normal (ish) life after a diagnosis (or two) of ASD. It's not been the easiest route but I am so glad I ignored everything and everyone and did my own therapies with them.
Eldests' EDS diagnosis 4.5.10, mine 13.1.11 eekk - now having fun and games as a wheelchair user.0 -
I don't know if I'm coming or going this week and I've been asleep at my desk this morning. The blokes in the workshop are taking the mick no end. They're asking if I've got sleeping sickness or narcilepsy. The thing is I'm still tired!!One life.0
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I loved my steroids at the beginning, but the effect seems to wear off over time. I've been on them for about 3 and a half years now at doses ranging from 5mg to 20 mg. I have to admit naughtily to sometimes stopping taking them for 10 days or so to get the bonus of them when I start again iyswim.
Got up early today to take Dad out to lunch so empathise with everyone who is tired out.I must go, I have lives to ruin and hearts to break
My attitude depends on my Latitude 49° 55' 0" N 6° 19' 60 W0 -
An ex-nurse friend pointed out to me recently about the thirst hunger thingThanks BZ, hadn't thought of the thrst hunger thing... I shall be drinking before I reach for the yummy food
I also take ami, 20mg, can't go up atm as it makes me feel sick, and then with the dry mouth in the night, I can't drink or I feel/am sick and so it's a horrible circle! The day time nausea from the ami has pretty much resolved now, but it took me ages when I went up to 20mg. Have you tried halves, or even quarters? Also, I think it takes 6 hrs for it to be at it's max. in ur bloodstream, and then it's there for another 8, so I try and take mine at 6pm and that way it's easier in the morning, though harder now i'm on less pregab!- that seemingly helps me wake up hugely! x
I haven't tried splitting the 10s no - my gp was saying I could get a pill cutter but that it wasn't very reliable and I don't think I could be arsed. I had a lot of success with the pregab&ami combo in the beginning, but it's not cutting it anymore, unfortunately.:o
Unfortunately lw may have a point. You'll just have to see how it goes I guess. Hopefully it'll all pan outbigzippy, you're amazed! A comprehensive letter? ... well it was two and a half page (typed) letter but I still don't understand ... especially after all I've read on the forum about re-considerations etc. I wasn't expecting this! Anyway, we shall see what the outcome is!
Thanks lw I hope so too. He's been off sick today and just checked his emails and HR wanted to see him this morning - so it seems the decision is back....he should find out tomorrow! Freaky! The house thing would definitely be a massive millstone removed - from all of us. Really want to see MIL settled in somewhere more suitable for her too. Even just to make life easier for just the two of us, it would be far more enjoyable to live as a newly married couple with less stress and enough money to go out every so often...and then we would be able to make the decision about familyness, rather than it being taken out of our hands because of money issues, iyswim?Ooh - fingers crossed for DH that he gets that promotion.:o Hope the house sells quickly too; that'll be one more millstone off from round your necks."I am indelibly stained by hope and longing" - Nuts in May0 -
Swift post as Mr LW will be in for his dins any sec.
I just wanted to wish Auntie Axe all the very best for tomorrow; I'll be thinking of you.If your dog thinks you're the best, don't seek a second opinion.;)0 -
Swift post as Mr LW will be in for his dins any sec.
I just wanted to wish Auntie Axe all the very best for tomorrow; I'll be thinking of you.
[Raises arm, waves, jumps up and down, yelps with pain and promptly has to sit down again with a nice cup of tea and a bunch of painkillers before she hurts herself again]
MEEEE TOOOO!
xxxI could dream to wide extremes, I could do or die: I could yawn and be withdrawn and watch the world go by.Yup you are officially Rock n Roll
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Careful_with_that_Axe wrote: »I loved my steroids at the beginning, but the effect seems to wear off over time. I've been on them for about 3 and a half years now at doses ranging from 5mg to 20 mg. I have to admit naughtily to sometimes stopping taking them for 10 days or so to get the bonus of them when I start again iyswim.
Got up early today to take Dad out to lunch so empathise with everyone who is tired out.
When I first moved to my current GP he whacked my steroids up to 40mg. I took them at 5.30 pm and by 8.30pm that evening it was like I'd been reborn. No pain or stiffness, complete mobility, yards of energy. I had to reduce the dose slowly back to 7.5mg but the overall effect lasted weeks. Because of the nature of the steroids I have only been allowed to do that about twice a year in the last 3 years but as the body gets accustomed to them I haven't had the same brilliant reaction the last 2 times we've done it. Next time it will be 60mg or 80mg for the general Lupus inflammation or hospitalised for a higher pulsed dose on a drip if I have another crisis.
If I miss a dose I know within a couple of hours!!
Hope you had a nice lunch
JenOne life.0 -
Well suep we would be thinking about it...if we had any sodding money! :rotfl: We've just put DH/MIL's (joint ownership and joint homeowner loans) house on the market, so very much hoping that it sells quickly, we get MIL settled into sheltered accom, and pay off all the debts. Also hoping DH gets the promotion he had an interview for yesterday (or a decent payrise another way so he doesn't have to work 2 jobs anymore). THEN we can think about it
It's something we want, but we're trying to be sensible/responsible 
Gutted to hear about GS. I'm sure when she's not so raw about DS's betrayal she'll come round *insert dodgy hug here*;)
Im pleased to hear your getting MIL into sheltered housing, hopefully it will make life a bit less stressful for you both. Also hope you can have that baby asap.
I've brought a pressie for gs for Easter and am going to send it to him with a note for ex dil , Im hoping it does the trick and brings her round, am trying to stay positive, but I miss him so much.
Thanks for the hug BZ, I need it today, I got a call from Dads wife yesterday to say he had taken a turn for the worse, I went over to theres and spent some time at Dads bedside, he came to a couple of times and spoke to me, but it wont be long now. I knew it was coming, but didnt think it would be for a couple more months yet. Excuse me if Im quiet over the weekend
Real stupidity beats artificial intelligence every time.
Terry Pratchett ( Hogfather)0
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