The (not so old) Crocks Cafe

Trialia

Heh. If I stopped drinking caffeine altogether, I'd have a six-month migraine - I tried it once, and that's what happened. Me + caffeine withdrawal = not fun. I'd rather have the jaw pain, the caffeine helps me stay awake when I need it, which is most of the time!

Tipsy is good.

jennihen

Trialia wrote: »

Heh. If I stopped drinking caffeine altogether, I'd have a six-month migraine - I tried it once, and that's what happened. Me + caffeine withdrawal = not fun. I'd rather have the jaw pain, the caffeine helps me stay awake when I need it, which is most of the time!

Tipsy is good.

It took me a good week to get over withdrawal but I'm glad I did. The jaw pain was miserable - I've had pain in every part of my bod but this was the worst - I rarely cry but I was in tears for nights on end.
I never drank water befoer I gave up caffine - Tipsy no good for spelling!!
Had a lovely night - hope you did too!
JH x

The_Dragon

Happy New Year everyone - here's to 2010 bringing us all better health, more wealth and more happiness! :beer:

LameWolf

Trialia wrote: »

Heh. If I stopped drinking caffeine altogether, I'd have a six-month migraine - I tried it once, and that's what happened. Me + caffeine withdrawal = not fun. I'd rather have the jaw pain, the caffeine helps me stay awake when I need it, which is most of the time!

Tipsy is good.

Urrrghh, same here. Can't start the day without my caffeine fix. I even resort to ProPlus tablets if I'm desperate.:eek:
Hope everyone's got off to a good start to the year.:o

Invasion

Wheelchair gloves. The just about only time I push myself for any distance outside is college, it's about 60m and half of that's outside, my hands get so cold they loose all power to them and become pathetic... I have fab fingerless gloves that have the mitten tops to them, which I love, but aren't suitable for wheelchair wheeling as they have no grip... What I'm thinking it fingerless wheelchair gloves (because the ones with the full fingers look like they're for hit men!) and pretty turquoise- or similar- full fingered normal gloves underneath.. Think it'll work?!

Hope you're all feeling as well as poss after new year and general family crazyness!

Invasion

Oh BZ, sorry about the footage upsetting you, *hugs* coming your way...

Trialia, sorry that you didn't get to sign papers, and that you had a migraine to stop you! I've found Maxalt melts to be helpful. Rizatriptan. Not advising, just saying!

Jaz, please re-apply for your DLA/fight for it. It's a hideous system, after 2 recondsiderations (I said I was going to appeal, and they come first!) I went from "you are entitled to nothing" to LRC LRM, and then with help from my OT- they sent her a form to fill out about my needs, and she came over so I could help her fill it in, after all she doesn't live with me! I got HRM, LRC, which got me my BB - if you're under 65 with mobility needs, and without HRM it's just about impossible to get in this county.

My aunty does benefits advice and when she came to stay (obvs she got to see how I need help over the course of the day etc) she said I should be getting MRC at least... Which would mean would get IS to top up and save over £100 a year on prescription season ticket alone! Next time maybe... If I've not improved. Due for renewal in November this year. Definitely will try the diary advice next time- everytime through the day you needed help/care you write it down, whether you got help or not!

Have gone for magic gripper gloves with little dots- fingerless, and other magic gloves- full fingers- to go underneath, cheaper than wheelchair gloves and we'll see how they go.... otherwise can wear them in the house- always got cold hands and can't hold a glass with gloves on!

Enough rambling from me! Oh, and Happy new year (personally I find it somewhat irrelevant but not wanting to be impolite! )

Trialia

Invasion, I'm already taking naratriptan, but the hormonal migraines like that, no medication I've ever tried can get rid of. The triptan handles the other ones - I was in a state of constant daily migraine for almost a year before they gave me that, and it broke the cycle in a way sumatriptan wasn't able to.

jazabelle

Invasion wrote: »

Jaz, please re-apply for your DLA/fight for it. It's a hideous system, after 2 recondsiderations (I said I was going to appeal, and they come first!) I went from "you are entitled to nothing" to LRC LRM, and then with help from my OT- they sent her a form to fill out about my needs, and she came over so I could help her fill it in, after all she doesn't live with me! I got HRM, LRC, which got me my BB - if you're under 65 with mobility needs, and without HRM it's just about impossible to get in this county.

My aunty does benefits advice and when she came to stay (obvs she got to see how I need help over the course of the day etc) she said I should be getting MRC at least... Which would mean would get IS to top up and save over £100 a year on prescription season ticket alone! Next time maybe... If I've not improved. Due for renewal in November this year. Definitely will try the diary advice next time- everytime through the day you needed help/care you write it down, whether you got help or not!

Have gone for magic gripper gloves with little dots- fingerless, and other magic gloves- full fingers- to go underneath, cheaper than wheelchair gloves and we'll see how they go.... otherwise can wear them in the house- always got cold hands and can't hold a glass with gloves on!

Enough rambling from me! Oh, and Happy new year (personally I find it somewhat irrelevant but not wanting to be impolite! )

Thanks Invasion. I have reapplied, but pretty sure I'm going to get turned down. I don't mean to be negative, but I'd rather be prepared!

They phoned me a few weeks ago, but I wasn't in, so they started asking my mum all these questions. They asked whether I worked, and said I worked four days. She didn't get a chance to explain we work in the same office and things, and so is still there all the time as my carer. She also said I walk with a stick, and they were like "oh so she can walk then?" But I never said I couldn't, just that it wasn't far and was very painful - which is different to not being able to walk at all.

They were asking things like how far can she walk - but it will all put on the form - so it was like they were trying to catch us out. My mum didn't read my application, as I did it with a care advisor. I mean nothing was said differently from what I put, as I just told the truth - but I just got the impression that because I work they're going to say I don't have care needs.

It just makes me feel ill thinking about it, and I just can't cope with them turning me down again.

jazabelle

When it's wet, my walking stick slips on the ground and gives no help what-so-ever. I assume there are things you can put on that can help grip - has anyone had any luck with them?

Trialia

Jazabelle: I don't use anything extra on my stick, but in snow and ice I use a wooden staff-type thing that was custom-made for me, so I can't be much help there, I'm afraid.

As far as the DLA goes, the general guideline with fibromyalgia is that if you are in pain all the time, you should qualify for HRM under the "severe discomfort" rule. I do. Sounds like they're giving you a far harder time than you deserve.