The (not so old) Crocks Cafe

poohbear59

Hi blackpaw. Seems quiet here. Hugs for you and your brother.

Thanks for your hugs. Things are getting worse rather than better here. DH is so depressed and now my siblings all have problems. I just wish and pray I could do something to help them all. Seems like our family is imploding since parents passed away. Siblings are all in their forties and I am the oldest and trying to hold everything together for them all.

jazabelle I have heard of green metropolis but haven't used it.

I put loads of stuff on ebay yesterday and charged postage. Not books though.

You have just reminded me of something. I am going pink thinking of it. At the beginning of last week I got orders for two books on Amazon. DH posted them first class so I lost money, then I got two e mails on Wednesday. I sent them the wrong books. I checked four times before I put them in the packet as I am renowned for making fibro mistakes.

My rating is about to sink so I will have to try to find another way to sell our thousands of books.

LameWolf

Afternoon all.

Oh boy, I am tired! Mr LW moved a whole load of carp out of the loft yesterday, and long story short, we have four pink sacks of shredded paper, plus two full of unshredded (leaflets, accompanying printed stuff and other assorted bumph) to dispose of. I swear I heard the rafters breathe a sigh of relief! LOL

Careful_with_that_Axe

Hello Pooh. Sorry to hear things are carppy. I am sure if you explain on Ebay feedback people will be OK with it.
Hope life improves soon.

paw How awful for you - hope you are OK now. Did you dream the egg was part of Farmville?!
Fingers crossed your Brother is doing OK.

lw It's satisfying doing a clear out isn't it. I'm pleased you have Mr LW as I tend to run out of energy half way through and leave the place in more of a mess than when I started. I've just started cleaning the kitchen and walked away with it half done as I'm so "mehh"y at the moment.

Jo, Jaz and Morag. Lots and lots of 'ugs to you.

The_Dragon

Sorry I haven't been around for weeks/months even, I got into a hole of "I'm not worth bothering about" ness to the extent that when an insect bite on my leg got infected and ulcerated I didn't think I should bother the medical profession because "other people deserve it more than me". Add into that the fact that my Chronic Pain took another turn for the worse and I got flu and well .....

I have tried reading the mails but can't seem to take stuff in - so just hugs for those that need them really

suep

I went to the cinema with dd on Friday evening to see New Moon, there was a massive queue and I was the oldest person in it it seemed to be mainly full of teen girls I counted 2 lads !, when they opened the doors most of the girlies started screaming and rushed forwards to get the best seats, me and dd ended up at the front :rolleyes:, they were all squeeling with excitement and a worker had to come in with a megaphone and threaten to throw anyone out who made a noise during the film, she needent have bothered though, no one wanted to miss a word of it, apart from the odd shriek when either male lead took his top off :rolleyes: it was the quietest film I've seen, I thought it was hilarious, until I tried to stand up at the end and my legs wouldnt work as I'd been sitting too long, serves me right, next time I want to see a film I'll wait for it to come out on dvd

Invasion

Tehe, good on you Sue I know far too many boys who are into the twilight books/films... I never got into them, I'm far too much of a wuss
Pooh I'm sure that the buyer of the books will be reasonable with feedback, and even some neutral explainable feedback is unlikely to put many off
Jaz could you just add the postage into the price for the books? Or try Amazon Marketplace maybe? I buy as much- if not more- from Amazon used, as Ebay.

Had another appt today, Friday's one got booked with the wrong person!

Saw the clinic physio who told me my muscle problems were currently being caused by muscle deconditioning, and that the less i did the less i'd be able to do, and to get an exercise bike (I nearly fell off my chair in shock at that ) and a gym ball.

Today went to see the dr original appt should have been with who advised AGAINST that, looked shocked, and said to be very very careful- which sounded much more useful.... prescribed me pregablin (yay!!) and is ordering many tests (6 vials, taken with a baby butterfly pin and syringe as my one good vein was hiding...!)

she's thinking that I may have myasthenia gravis as my muscles don't behave like "normal" ME/CFS patients' do, which would mean that what physio said was utterly utterly wrong. I just can't believe that he said that...

I don't know what to think right now, MG would mean hopefully much improvement with treatment, but would also mean steroids/immunosuppresants for life... and that it'd be permanent... It doesn't fit all my symptoms, so despite the fact it's something that's meant to be ruled out for ME dx it seems that you can have both.

jazabelle

poohbear59 wrote: »

jazabelle I have heard of green metropolis but haven't used it.

I put loads of stuff on ebay yesterday and charged postage. Not books though.

You have just reminded me of something. I am going pink thinking of it. At the beginning of last week I got orders for two books on Amazon. DH posted them first class so I lost money, then I got two e mails on Wednesday. I sent them the wrong books. I checked four times before I put them in the packet as I am renowned for making fibro mistakes.

My rating is about to sink so I will have to try to find another way to sell our thousands of books.

I had a look at green metropolis, but it seemed to have a standard charge for books? Not sure if I just read it wrong.

I put them on eBay in the end, and added the postage cost to the bidding price - but I wanted to not put them on there in protest! eBay are trying to bump up the percentage they take from sales, by making the final price more! Either that or we lose out on money, not fair.

Oh no, that's awful. Have you tried emailing them and explaining? Hopefully they won't be mean on the ratings.

The_Dragon wrote: »

Sorry I haven't been around for weeks/months even, I got into a hole of "I'm not worth bothering about" ness to the extent that when an insect bite on my leg got infected and ulcerated I didn't think I should bother the medical profession because "other people deserve it more than me". Add into that the fact that my Chronic Pain took another turn for the worse and I got flu and well .....

I have tried reading the mails but can't seem to take stuff in - so just hugs for those that need them really

::hugs:: to you Dragon. Sounds like you're having a horrible time. Please don't think that way, but I know it's easy to do so.

Invasion wrote: »

Saw the clinic physio who told me my muscle problems were currently being caused by muscle deconditioning, and that the less i did the less i'd be able to do, and to get an exercise bike (I nearly fell off my chair in shock at that ) and a gym ball.

Excercise in their answer to everything. They don't know how to cope when it's too much for
someone. It's pure ignorance.

::hugs:: to you too CWTA!

jazabelle

I didn't make it in to work today. I had an awful nights sleep, and woke up too exhausted to more, and had a splitting headache.

To cheer myself up, I've just been buying some goodies! I bought a mug saying 'Fibromyaglia, it's a pain in the... well, everywhere.' A sticker for the car to raise awareness, and my mum bought a coaster! I thought they might help with the people at work, who never remember what I have, and don't quite seem to get it.

I really like this car sticker - No, I'm not too young to park here and this one - you can have my parking space, but take my disability with it. But I went with the plain raising awareness one!

I'm supposed to be getting my MRI results tomorrow, but then she said that last week and then cancelled my appointment. But fingers crossed!

bevan840

Good luck on results jazabelle
Is the film any good suep? I keep hearing about it, wanted to see the first in cinema (and as usual never happened) and still haven't seen it
I have to have the butterfly too Invasion, apparantly my veins are too small for the usual needle
Dragon I hope your feeling a bit better soon

Hugs for all xoxoxox

Not much new with me, had both flu jabs on Sat and been in pain ever since If anyone does have the SF jab, that arm will be very painful for a while, I know someone who doesn't have ME and her arm was aching for about a week Mine has been agony but starting to ease off a bit now Kind of set me back for the weekend, wanted to get loads of housework done but as soon as I'd had the jab all the energy went too Ended up having an afternoon nap on Sat, haven't had to do that for awhile but finding that since I had that cold bug a few weeks ago I still haven't got back to my normal So had another chat/nag with DH Sunday night as I need help, so on his day off yesterday he hoovered the stairs, did most of the ironing, cleaned the bathroom, put 1 wash on and put 2 out on line He left at 4:30 this morning though and won't be back till similar time Thur Morning Just what I need on the day of my skills test, an early morning wake up! lol

LameWolf

The_Dragon wrote: »

Sorry I haven't been around for weeks/months even, I got into a hole of "I'm not worth bothering about" ness to the extent that when an insect bite on my leg got infected and ulcerated I didn't think I should bother the medical profession because "other people deserve it more than me". Add into that the fact that my Chronic Pain took another turn for the worse and I got flu and well .....

Oh dear, Dragon, that's not good. You ARE worth bothering about, y'know. (((HUG)))
I know what you mean though, that's how I feel most of the time - don't understand what the heck Mr LW sees in me.

Invasion wrote: »

I don't know what to think right now, MG would mean hopefully much improvement with treatment, but would also mean steroids/immunosuppresants for life... and that it'd be permanent... It doesn't fit all my symptoms, so despite the fact it's something that's meant to be ruled out for ME dx it seems that you can have both.

Wouldn't it be nice if we all fitted neatly into one of their little boxes.....:rolleyes:
Hang on for the results, and see what they say then. How long do you have to wait?

Bevan I've already decided I'm not going to have the SF jab; I feel that the risk of an adverse reaction is much higher than the probability of catching SF in my case. I am not, of course, saying this will be so for anyone else.:o