The (not so old) Crocks Cafe

Invasion

CWTA sorry you had such frustrating appt!

Poohbear, really sorry you're having such a horrible time, sending virtual hugs your way!

Jaz, it's so frustrating, is it worth changing GP's... I know you've got on well with her till now but if it means you get more help is it worth it? Could you ask for a referral to pain clinic? Pacing does have it good points, it would still mean she'd want you to exercise, but it's all about being careful, listening to your body and maintaining a better quality of life. It's not easy to get used to though, I spent many days in tears when my OT cut down all my "activity" when I was at my worst.

Have decided am going to start process for diagnosis of fibro, obviously I can't be sure, but I've been in so much pain recently, my super sensitivity in skin and muscles is driving me crazy and affecting the smallest things. I've just bought a FAB wheelchair cushion as even sitting hurts so bad. It cost me £100... but it's gel and air and it's bliss, and it's what the DLA is for (dad had to justify it for me, as felt silly spending that much )

Thankyou to LW and Morag for encouragement to step OUT of silly endless circle argument. It really made me very angry and I couldn't leave it... And welcome to JF... I can't remember, tis all the way at the top of the page sorry! Sue, congratulations!!

LameWolf

Poohbear I'm so sorry. (((HUG))) for you mate.

Paw good news that your brother is going to be reasonably OK. I know what you mean about getting GP appointments. Luckily, we can book online now, otherwise I have to go to the desk and INSIST that they book me in; they can't argue, as there's a note on the file that I Don't Do Phones.

Careful_with_that_Axe wrote: »

Am trying to stay upbeat in terms of mood and make sure I have a little something to look forward to which is one thing I've identified that helps me quite a lot.

I agree wholeheartedly - having something, however small, to look forward to helps no end.

We enjoyed the cinema - saw The Fourth Kind. It was weird, but very interesting (I've heard of the case it's based on before). There's one coming out in December - Avatar - that I want to see, too.

Morag I make sure not to read posts from abusive members - I don't need the massive surge in my blood pressure!;)

I hope everyone's having as good a day as they can - wrap up warm, it's a beastly wind outside! And ((((HUGS)))) to all who are not having such a good time.

Chocolate covered Birsay biscuits on the table - help yourselves.

kernowayr

There is a real "Cafe World" application on Facebook if anyone's interested relocating this discussion there - you can trade virtual foodstuffs with your friends on it too.

purplecatlover

cafe world is a game is it not? at least the one i use on facebook is.

sorry guys i meant to say earlier iim not really reading/taking stuffs in atm. so whilst im skimming through i know im missing heaps.

LameWolf

PCL we all have times when we don't take stuff in properly, no-one's going to blame you. Just look after yourself and Chloe, and pop in when you can, even if it's just to wave. (((HUG))).

kernowayr

purplecatlover wrote: »

cafe world is a game is it not? at least the one i use on facebook is.

sorry guys i meant to say earlier iim not really reading/taking stuffs in atm. so whilst im skimming through i know im missing heaps.

Yes cafe world is a game ........... but there is probably capacity to interact with each other as well whilst you are playing it.

bigzippy

*wave*
Just popping head in

purplecatlover

kernowayr wrote: »

Yes cafe world is a game ........... but there is probably capacity to interact with each other as well whilst you are playing it.

can i ask if you have read this thread and seen how much more it is than just passing virtual food around? is there a reason you are suggesting we move elsewhere?


and no you cant interact in cafe world the way you can here, unless you go to the forum/discussionnboards which is all full of add me i need more neighbours etc threads.

jazabelle

Invasion wrote: »

Jaz, it's so frustrating, is it worth changing GP's... I know you've got on well with her till now but if it means you get more help is it worth it? Could you ask for a referral to pain clinic? Pacing does have it good points, it would still mean she'd want you to exercise, but it's all about being careful, listening to your body and maintaining a better quality of life. It's not easy to get used to though, I spent many days in tears when my OT cut down all my "activity" when I was at my worst.

I don't know, it would be a hard decision.

I have been to the pain clinic three times. Have another appointment 1st Feb. No luck so far.

But what does pacing involve? Not doing too much? I already do that! I mean you can't live with chronic fatigue and constant pain without pacing yourself to a degree. I mean what activity do they cut down on? I have to go to work. I go to my appointments. And that's my life, really! Not a lot I can cut down on, unless they pay for me to give up my job!

I don't have the energy to exercise. I wish I did.

Sorry, in a bit of a mood!

jazabelle

purplecatlover wrote: »

can i ask if you have read this thread and seen how much more it is than just passing virtual food around? is there a reason you are suggesting we move elsewhere?


and no you cant interact in cafe world the way you can here, unless you go to the forum/discussionnboards which is all full of add me i need more neighbours etc threads.

And I think only one or two people do the virtual food thing anyway! Most of us are just here for support and chat, not for fake food.