The Ultimate Hard and Fast debt clearing mission

Hey guys. Just an update and unfortunately not a good one. They got the results of Grace's lung biopsy back yesterday, and she's been diagnosed with Alveolar Capillary Dysplasia. It's a very rare disease which kills 99.9% of babies who have it within the first couple of weeks of life. So the fact she's made it so far and is showing no signs of going downhill is the good news - she's the rare type of the rare disease. However from here on it's a case of watch her and pray she stays strong. If the new lung tissue she grows is normal she may be able to live with it, if it is abnormal she will start to deteriorate. There is a chance of a lung transplant maybe when she's older, but only 2 have ever been successfully completed on babies with this condition. I've spent the last 24 hours in floods of tears, terrified we may loose her. Today the doctors have calmed me down a little, and told me just to enjoy each day we have with her, and hope for the best. So that's where we are, I can't begin to put into words how I'm feeling, so this post may come across as cold, but anyone and everyone pray that Grace grows strong lung tissue as she gets bigger and can be the miracle who makes it long enough to get new lungs.

She's growing new tissue every day as she grows bigger, the assumption is she has a reasonable proportion of healthy tissue mixed with the non-functional stuff, hence how she can breathe on her own now. If the new stuff she grows is healthy, then she has a chance. Usually the non functional tissue is throughout all the lungs, but they think with her it's patchy, hence why she's still alive.