Progress not Perfection

ladyholly

Unforunately these days the only people who seem to get the help are the ones who make a nuisance of themselves. If you wait for them to get in touch you coukld be waiting a very long time. I would suggest you ring the falls team at least weekly and preferably more frequently and put in a complaint to the urgent care team to point out they must contact you as well as Mr SA to get a proper picture of what is going on. I realise you are very busy but you need the help now and certainly will in the future a you both get older. At the very least there should be regular proper assessments. A few minutes making contact now could save an awful lot of hassle in the future.

Sorry if that sounds bossy it is only concern for your health and that Mr SA gets the support he needs.

Makingabobor2

Reminds me of my mum with her brain tumour. The care home would call the GP as she had symptoms or complained of being unwell and when he arrived and asked how she was, she would say she was fine. 

Willowtree222

My nana was being discharged from hospital when my mum arrived to speak to the Dr.

Upon questioning the dr, she was told that she could go home as my nana had told them all about how my grandad takes care of her and looks after her. They said she had a really strong support system until my mum pointed out that my grandad was dead. They soon changed their mind. 

It's amazing how they can convince people when they want to.

Hope you are able to contact the care team yourself. X

EssexHebridean

Just a thought, but you've said how good the consultant team are - can you go to them with your concerns about the falls etc and needing more help? After all, the condition is what is causing the falls, and you *might* even be concerned that the increased number of falls could indicate further issues? They are probably in a far better position to get the message across to the urgent care team than you are, though. 

Sun_Addict

EssexHebridean said:

Just a thought, but you've said how good the consultant team are - can you go to them with your concerns about the falls etc and needing more help? After all, the condition is what is causing the falls, and you *might* even be concerned that the increased number of falls could indicate further issues? They are probably in a far better position to get the message across to the urgent care team than you are, though. 

We've already done this they just say it's the brain damage not the condition that causes the falls and there's not a lot can be done. However if he starting displaying symptoms of the tumour again this is where they'd come in. Since Covid the yearly appointment with the consultant is now a phone call, although this is better in some ways as we could often be sitting for over an hour in a waiting room if they were running late, then there would be taxi fares to fork out. 

Sun_Addict

ladyholly said:

Unforunately these days the only people who seem to get the help are the ones who make a nuisance of themselves. If you wait for them to get in touch you coukld be waiting a very long time. I would suggest you ring the falls team at least weekly and preferably more frequently and put in a complaint to the urgent care team to point out they must contact you as well as Mr SA to get a proper picture of what is going on. I realise you are very busy but you need the help now and certainly will in the future a you both get older. At the very least there should be regular proper assessments. A few minutes making contact now could save an awful lot of hassle in the future.

Sorry if that sounds bossy it is only concern for your health and that Mr SA gets the support he needs.

No not bossy at all. I plan to call the social services number again and ask them what's happening with the falls team as he's been in A&E since the last time I phoned them. I need to find a quiet room at work on Wednesday to phone them as I don't want him listening in the background.

EssexHebridean

Definitely explain to them that he will underplay things if they speak with him as well - that needs to be put on file by the sound of it! 

Sun_Addict

That's Monday done. Worked in the office until after lunch and finished up at home.

I wasn't feeling the love for work this morning. I couldn't believe it when the alarm went off at 5. I fell back to sleep and didn't wake up until 6.  I'm on flexi time but like to be there by 7.30 but didn't leave the house until after 7. I found a positive in running late though and took the opportunity to drop off a bag of textiles for recycling in Primani. 

Isn't it typical. Lid! always have packets of seeds in their foyer as you go in and the one time I deliberately go in to purchase some they're nowhere to be found! Not a wasted journey as I needed some other things and I pass it on the way home anyway. I've now hit another target and got a free condiment, herb or spice item plus a free cookie. Picked up the free pretzel today. 

Did my Monday finance check, the last week in my current budget period. There should be an underspend but nowhere near as much as last time. 

Today's exercise is walking to/from work and I'm going to give the live hooping class another go at 6pm. Determined to master that hula hoop 😆

Tonight's dinner is salmon with rice and stir fried veg. 

Jobs for tonight: Spanish lessons, surveys (if any around) and finalise tomorrow's Mr M order. Might as well add fall asleep in front of the TV 10 minutes after I've sat down to that list 🤣

milann

Hope you get results from the phone calls on Wednesday 🤞

Sun_Addict

Morning, happy Tuesday.

WFH today. Just waiting for the Mr M delivery to arrive which is due any time now. 

Exercise plans are dog walking later this morning, bums & tums at lunchtime and resistance bands tonight. 

Tonight's dinner is a portion of a red cabbage thing I made a few weeks ago from freezer stocks with veggie sausages although there is a chance this might change if my planned fridge sort out shows something needs using up urgently. 

Cleaning job is to give the kitchen a good clean to include fridge sort out.

Just waiting for payday now (Thursday) so I can do the money shuffle. Viewed my payslip and have a whole 20p more than last month 😆

8 weeks today we go to Lanzarote, on a proper countdown now 😎