System Failure !

doingitanyway

Guinness is just as good for you as coffee and nice to see you socialising

I hope you are enjoying the home office?

Hope all is ok with you.

another_casualty

doingitanyway said:

Guinness is just as good for you as coffee and nice to see you socialising

I hope you are enjoying the home office?

Hope all is ok with you.

Thanks DIA 😼 . Yes, it's true what you say . Keeping socialising up is always good whatever I consume 😸

another_casualty

Time for another update I guess...

On the positive side , I have still been meeting up its local friend for coffee ☕️Or Guinness more or less on a weekly basis . Coffee ☕️more so these days . 

Still hanging in there regarding my sessions with mr trainer 🏋️‍♀️ and home workouts etc
Still walking , but have recently decided to shift my backside more often when I can .
crisps have gone for the last week  or so . Still having fun on my synths and occasional bass playing . Universal credit have left me alone for the time being 🤐
Flat in best shape it has been in , but a couple of things outstanding as always .

on the more negative side , sleep patterns gone back to being  random .🛌
Myasthenia flare ups .  Extra £80 universal credit payment stopped ( not surprised and I'm not getting dramatic about it ) Mr Trainer telling me off more about my food 😿.He has given me alternatives which I'll mention below ..

Regarding My Myasthenia ; The 4 of us finally met up in Brockenhurst 2 weeks ago.Great time . Speech slurring though . When I went to bed 🛌I I ended up having 3 very painful and uncomfortable days . Mr trainer 🏋️‍♀️Basically said that I should count this a a bonus as other people with my condition would probably be in a wheelchair by now let alone train as I do .  He thinks I'm one of the very best and not a lightweight like others who make excuses. My body aches in different places at different times . More noticeable in my hands for example . I still can't do normal things everyday , like I used to .
The good thing , is that my friends noticed me looking a lot trimmer on face / chest / shoulders ..

Rengarding Myasthenia / my surgery / universal credit :: I have received a few messages from UC advising me to log in . When I log in now, the system has changed . They will send me a text with a no. To type in after logging in . The messages are advising me that they are doing face to face appointments again 😷😷. Also about the £80 loss 
The good thing is they don't want a new fit note ..yet ! When that is requested then I contact surgery for another 6Monthly . However, today I found out that mrs Doctor 🩺has retired . I found that out , by the lack of medicine received from pharmacy 2 u .
I apologised to them for maybe being difficult . So, I have a new Doctor 🩺but Dr who?
Mr specialist from st Thomas's will be giving me a phone consultation next month.
So, what will possibly / probabky happen is that when UC want a fit note , that's when the fun starts and I have to prove that I have Ltd Capability for Work from scratch , fill forms in and be assessed , then be declined/ appeal and so on . I'll cross that bridge when I get to it . 

Regarding Mr trainer 🏋️‍♀️He is dissecting a lot and is looking for replacements for some of my bad habits . The latest one I'm about to try hopefully next week is ...baking cakes 🍰🥮🍰! Apparently , it's to ween my off the amount of chocolate that I have🍫
I have to order from the Amazon over the weekend . He is trying his hardest to get me off of bread 😾🥖🍞. I did it a couple of years ago . Mmm..

My memory has been up and down still . Too much to mention here , but I'm coping with it more . 

Broadband has been patchy last couple of days . I may contact Vodafone .

This post is getting too long , so I'll leave it there 🌕🌞

another_casualty

And another update ..
Met local friend on Friday ☕️☕️. He was thinking of joining me for a walk tomorrow 🐾
it's supposed to be raining 💧🌧so we'll see . 

When I spoke to the receptionist at the surgery , it was down to one of the other dr.s 🩺who seemed to be counting tablets 💊💊rather  than using common sense . 

The receptionist asked me to phone weds / Thursday on progress but to my amazement the missing tablets 💊are on their way . It's a good job I'm not rude to receptionists 📞🗣

I spoke to Vodafone regarding broadband 🖥📲 . The advisor was helpful ,and took his time etc. However, he was pushing a possible sale for an upgrade and I'm not interested .
The wifi is not as bad as it was , but trying to relocate the router a few feet away should improve things . One thing to note about all broadband providers , is that they always blame walls and furniture 🛋. They don't do this when  advertising and selling their products 

The weekend was productive on the music side of things . It will be a tad more expensive in December though. The reason for that is that I have to buy an expensive application to record properly (£170 🙀although it was £200 for a long time ) from Apple 🍏
I have the demo version installed yesterday which is free for 90 days . I am now in the mindset of trying to learn this new application from the basics slowly and take my time over it . I was going to start today. However I had a tough time being awake since around 3am 🛌. Fell asleep around 5.30 and had to jump out around 7.45 incase Ocado come early .

Today after tidying kitchen and bathroom , I had one job I was putting off but needed doing ...I finally decided to tackle the large holes where the new boiler was installed last spring just before covid restrictions 😷
It may sound straightforward , but not when I had to decide what to use and around pipes etc. 
I already purchased expanding foam . I have some wire wool . I have some  thing metal grating mesh .I have filler . 
In the end , I went for the wire wool/ gorilla tape 🦍 plus thin metal grating .
It was laborious and a pita ! In all honesty, I'm surprised and delighted no visitors had already appeared 🐁🐁🐁🐭. I have a plug in repellent , but furniture may disrupt the signal . That gorilla 🦍tape was from a dodgy batch . Not helped with me spraying mouse repellant down the holes . It's basically a patch up job until James or someone can fix permanently when the boiler gets boxed in so to speak 🥊🥊
It's something I have to monitor , and hopefully all will be well till James or someone is available . 

There was blood on my hands and carpet , and it looked worse than it was 😸

When myself and my friends were at the new forest , they were telling me that maybe I should get a cat 🐈 98% of me is saying no ..

I haven't eaten anything just yet 

I'll leave it there 🌤⛈

Humdinger1

Hey AC, so glad I found your new diary! You are doing well, negotiating your way round UC advisers and doctors; they all plainly like you.  Looking forward to following you on this stage of your journey.   Humdinger 

another_casualty

Humdinger1 said:

Hey AC, so glad I found your new diary! You are doing well, negotiating your way round UC advisers and doctors; they all plainly like you.  Looking forward to following you on this stage of your journey.   Humdinger 

Hello @Humdinger1😼
Thank you so much !  I can't believe I have another follower after so many pages of ramblings 😹
I think regarding the situation I'm in , is that I am  very lucky that I got sorted out onto the universal credit computerised system before covid happened 😷and I feel sorry for those who are in total confusion over the last 2 years or so . 

I just go by instruction , and do what I'm told .  Not be stroppy 🗣.Not looking forward to the assessments as and when I have to justify a ' hidden disability '  so to speak but so far so good .
It's nice if you stick around ..

Humdinger1

Ac I will! Have subscribed and really enjoy your diary.  You have a very distinctive voice; given your adoring public on here, that could be an avenue worth exploring?

another_casualty

Thanks @Humdinger1😼

An eventful couple of days ..

I have just received a message from Universal Credit . I have a phone appointment 📞in the afternoon of Tues 19th Oct 🙀. It's with the new job coach , wanting to know what I've been doing to try and get back to work . This is where the fun starts again , as obviously I haven't been doing anything as I'm not fit for work . What  will probably materialise from that discussion is that I will be asked to provide another ( probabky 6 monthly ) fit note from my new gp 🩺. . This will eventually lead to a new assessment with the up dr 🩺who will deem me fit for work. I will then have to appeal, until I go to a tribunal / court etc .
One thing at a time .  On a slight tangent , myself and my friend were discussing the retirement of mrs doctor 🩺who is not near retirement age in our opinions . She was my friends daughters gp. We think that she didn't like the way shore medical amalgamated and swallowed up our surgery with a few others . Since that happened the service has deteriorated somewhat . I may be able to request my fit note online . There is the option.
However, my new gp may want to see me if he's not snowed under still ⛄️

I received an email from the new health secratary  mr javid regarding my vulnerable state and covid 😷. Not mr Hancock .

Yesterday , my washer / dryer has decided no to dry . I spent most of yesterday trying different settings and reading the manual,RTFM .Not good so far .
I currently have more washing in machine now to see if there is an improvement .
It's probably busted and I'll have to get another . Hotpoint sucks🖕🏻

Yesterday,I trained solo 🥵🏋️‍♀️. Today back is killing me .

Myself and my friend walked 🐾to Bournemouth beach via Westbourne . This comprised Of 4 Guinness and total journey was approx 5 miles . I'm glad I kept up .
I may do this as a regular thing once weekly . 

I rescheduled mr trainer 🏋️‍♀️from today till Friday .

I won £10 on postcode lottery . 

My back is still troublesome inspite of me stretching before the walk🐾
I'm a bit tired as expected .  

I'm in the middle of a film that I recorded on the eye player on sat 👁
The kings choice . A really good Norwegian 🇳🇴film about when Germany 🇩🇪invaded .
superb acting . But subtitles may put some off .

Anyway, I'm rambling again so I'll leave it there 🌞

MuffinTops

You sound like you're doing well AC, other than the potential stress of having to go over the proof again that you're unable to work.  

How are you getting on with baking cakes? What sort of cakes are you being recommended by your trainer to bake?

I once had a washer/dryer - never again.  The dryer quickly broke and then the washer was no longer particularly effective. The worst appliance I've ever bought but I can't remember the make of it.

Well done on your get up and go attitude and how well you've been doing with everything.

another_casualty

Thanks MT 😼
Where do I start today ? ...
after sucessfully managing to keep my eyes open till bedtime 🛌, I tried the washer /dryer again on a different setting . Success ! It took an eternity , as I did a wash and dry together 
This morning  I repeated the process with a couple of other bits and bobs . Over 4 hrs later more success . Hopefully that's the end of that and a soap opera is not created 🧼🧴

So this morning , after a nice sleep I tried to get out of bed 🛌 . I had to do that by holding onto walls . My lower back was extremely painful. Plus my right leg 🦵
Going to the bathroom and showering, I was staggering like an aggressive drunk .
Having said that and gingerly moving around ( despite the fact I'm not ginger ) The pain is slowly turning into a manageable bruise like feeling . I'd say I'll be ok tomorrow .
Mr Trainer 🏋️‍♀️is giving me a phone chat session instead of a live workout so I'll discuss with him . 

Yesterdays walk 🐾was 6.9 miles according to my friend . No wonder he crashed out on the  sofa when he got home .🛋 He did ask whether we should get a bus 🚌back , but I thought it best to not do so as I wanted to see if I could manage the distance . 

If I decide to do this on a weekly basis ,I think it would be a great step forward for me but I would get a bus 🚌back. There is a bus stop 🚏a few yards from my home but only one bus an hour . Not great . If I was to get a more frequent bus 🚌 there would be more people and a bit further to walk🐾. 

Regading the cakes etc 🍰🥮Mr trainer 🏋️‍♀️ Sent me a few recipes such as sponge cakes ..and chocolate brownies  . As I am a semi novice , he sent me a list of tools I need to get me started plus recommendations of cake mixes. I will be ordering from the Amazon shortly. I have most of the ingredients ..I just have to get the tools . 

I will be using the halogen oven that I purchased last xmas 🎄time .( sorry );

One other thing regarding food ..there is no way that I can quit bread 🥖. Reduce, yes . Quit , no ! Even that emoji is making me hungry . 

So my day has started well and relaxing . Watching nature relaxation films with music on you tube when I get up beats breakfast 🧇🥞☕️🍳Tv and radio any day imho
For some reason there are less adverts on these you tube videos 😼👍

Things I have to do soonish ; print a list of notes to tell the specialist at st Thomas's 🩺who will be phoning 📞me in oct . Same with the new job coach for universal credit interview .  I also will keep an eye 👀out for a kitchen bin 🚮that does recycling as well as food rubbish etc and isn't too big or small. If I can get that, then I'll phone council up and pay them to collect the bins I have now .

I'll leave it there ...☁️