System Failure !

another_casualty

Howdy !
A new year pending , and also a new decade. The last decade was 75% approx awful . However , in Nov 2016 I quit everything , due to a strange and annoying condition called Myasthenia Gravis . This is an auto immune and motor neurone condition . Thankfully , it is a mild version and am getting it under control . More below .

When I say 'quit everything ', I quit the job I detested which I had to keep as there wasn't much about in 2008 when I became permanent from temp. Also, of course I had to pay bills , mortgage , overdraft etc
Plus I had a homeowner loan on my flat at the time also . How sad was that ? Also very dangerous .

I didn't get myasthenia until 2014 /15. The stress of everything caught up with me obviously . I quit London also , having lived and worked there all of my life .

So, diary 2 was rest . I didn't know how long for . I was approx 25 stone due to prednisolone ..a very evil but essential steroid.
Hardly able to do much , and looking like a huge gas balloon I actually had no idea of length of recuperation etc.
In this time , I rented a flat for six months in Dorset and after that bought a flat around the corner from there . Yes , it's leasehold but it's all I could afford . Living on my own and knowing virtually nobody I didn't want to stray too far . London is 2 hrs away when south worsen railways provide a service .

Diary 3 was restart.
This meant I lost 10" from my waist size and 10kg plus I quit prednisolone . I'm now 45" waist from 55":eek:
My weight is 120kg . Not too sad at 6' .
I want to lose 10-20 kg this year. I will cut down on bread as from Monday 6 th jan , and cut down on crisps
I also became debt free..for now!

Diary 4 system failure
In jan last year I had to sign up for universal credit . Got first payment of £317 pm in March . Very generous .
I applied for ltd capability for work . This has obviously been rejected due to the impersonal ways universal credit works . Ive been assessed etc.
I put my appeal in via citizens advice and am awaiting an appearance in court .

I'm glad I didn't go to universal credit before jan last year as I just wasn't ready for obvious reasons . I've had friends and family telling me that I should do it , and eventually I did .
This has caused me to go near the limit of my overdraft . I had to go into my private pension but I'm free of debt for now .
I am on a work related programme , and I get regular appointments with the job coach by phone and in person . Plus I go to poole job club on a Tuesday . ( Thanks moo121)

This would put many people off , which is what whatever gvt is in power wants . Having said that , as I'm mortgage free I only require part time work . That is a problem and will take time .
This basically means that I'm broken and need fixing .
If I can get a part time job in the mornings that is good , then great.
However , with myasthenia I also have dysphragia and dysarthria which is slurred speech when I get tired . Plus my left eye collapses . This means I can only do morning work only . Even then I'm not sure how long it will take for me to get back into a Working pattern albeit part time

There are many people worse off obviously .
Main things for the new year: get a nice part time job , get the lcw
And make sure I can still afford to see mr trainer and get my health back on track .
Life is crap , but I won't give in just yet ..

Happy new year !

harz99

And a link back to ACs previous thread

https://forums.moneysavingexpert.com/discussion/comment/76664280#Comment_76664280

dreaming

What a journey you've been on AC, and still more to come. I shall no doubt dip in and out from time to time to keep an eye on you. You have done very well and although sometimes been a bit down you really should congratulate yourself on your progress and keeping going through the setbacks. To completely change your life takes a lot of courage so bravo!

Best wishes for 2020 from me and Alfie cat.

another_casualty

Thanks Harz
Very speedy

another_casualty

dreaming wrote: »

What a journey you've been on AC, and still more to come. I shall no doubt dip in and out from time to time to keep an eye on you. You have done very well and although sometimes been a bit down you really should congratulate yourself on your progress and keeping going through the setbacks. To completely change your life takes a lot of courage so bravo!

Best wishes for 2020 from me and Alfie cat.

Thanks Dreaming and Alfie
Have a great new year . Hope the kitchen is sorted soon .

dreaming

Thanks AC. Kitchen was finished just before Xmas but as I was away for some of it have only just started using it. A few stresses due to the contractor not being very organised but quality of the actual work is excellent. Oven is quite technical so am using the booklet but have so far heated up garlic bread and pizza so baby steps.

beanielou

Happy new diary

MrsPorridge

Happy New diary AC and Happy New Year.

another_casualty

dreaming wrote: »

Thanks AC. Kitchen was finished just before Xmas but as I was away for some of it have only just started using it. A few stresses due to the contractor not being very organised but quality of the actual work is excellent. Oven is quite technical so am using the booklet but have so far heated up garlic bread and pizza so baby steps.

That's great news dreaming . Before Xmas is very impressive all things considered .
That's the thing with newer appliances ..way too many options :rotfl:Glad it all worked out

another_casualty

So, may as well update on things over the last few days ..
The Christmas tree that I bought as a quick replacement for the Dodgy one I sent back to the amazon is brilliant. The transformer is much less hotter than the other one . Looks good too .
The other guy never phoned back , as he probably realised that he sent a dangerous product and I have refund so that's all done and dusted .

I am expecting a new divan which being a double size and not king size with 4 drawers , should be ideal . Fingers crossed etc.
I looked for duvets / covers etc and found some good deals .
The winter duvet is around £200 cheaper in a sale so I grabbed it, as there were only 3 left.

This brings me onto the clutter issues . 2 days ago, I got rid of loads of paperwork from one of the various bag fulls I have . I aim to do about one a day and hopefully have most of it done by next Monday .
I may sell a couple more bass guitars next year, but if I do I want one in their place . This will make more space. Those gig bags take up room.

I got a state pension forecast sent to me . If I'm still around in 10 years time , the forecast is just over £770.per month . Obviously could change for the worst etc and not much in the scheme of things .
Looks in theory that I may have paid enough over the years I've been in employment both temp and perm. Apart from the 3 years through this life change , I has less than 6 months unemployment since leaving school . This is one of the reasons why I get down sometimes , as I always wanted to avoid unemployment , but this can't be helped .

I will be staying in tonight . I went to Waitrose and they had no hoegaarden . Thankfully I have a couple in the fridge . I do have jack Daniels and cola if I want it . Don't want a sore head tomorrow

harz99

another_casualty wrote: »

So, may as well update on things over the last few days ..
The Christmas tree that I bought as a quick replacement for the Dodgy one I sent back to the amazon is brilliant. The transformer is much less hotter than the other one . Looks good too .
The other guy never phoned back , as he probably realised that he sent a dangerous product and I have refund so that's all done and dusted .

I am expecting a new divan which being a double size and not king size with 4 drawers , should be ideal . Fingers crossed etc.
I looked for duvets / covers etc and found some good deals .
The winter duvet is around £200 cheaper in a sale so I grabbed it, as there were only 3 left.

This brings me onto the clutter issues . 2 days ago, I got rid of loads of paperwork from one of the various bag fulls I have . I aim to do about one a day and hopefully have most of it done by next Monday .
I may sell a couple more bass guitars next year, but if I do I want one in their place . This will make more space. Those gig bags take up room.

I got a state pension forecast sent to me . If I'm still around in 10 years time , the forecast is just over £770.per month . Obviously could change for the worst etc and not much in the scheme of things .
Looks in theory that I may have paid enough over the years I've been in employment both temp and perm. Apart from the 3 years through this life change , I has less than 6 months unemployment since leaving school . This is one of the reasons why I get down sometimes , as I always wanted to avoid unemployment , but this can't be helped .

I will be staying in tonight . I went to Waitrose and they had no hoegaarden . Thankfully I have a couple in the fridge . I do have jack Daniels and cola if I want it . Don't want a sore head tomorrow

Selling 2 bases and buying another seems a bit of waste, why not sell one keep the other and have a net gain with less work, or am I missing something?