Aspergers/ASD support thread

Savvy_Sue

ivfmummy wrote: »

Just thought this might be useful to someone.

http://www.autism.org.uk/living-with-autism/at-home/coping-with-christmas.aspx

Have a restful Christmas.

It could indeed: with younger children I'd stress the importance of finding out what they're hearing from school, we had much wailing from DS1 the first Christmas he was at Nursery, because he'd been told that you wake up in the morning, and come downstairs, and there are lots of presents under the tree for you. Sadly we were at his grandparents, where we didn't do things that way, and there was nothing more under the tree than when he'd gone to bed the night before!

seven-day-weekend

ivfmummy wrote: »

Just thought this might be useful to someone.


http://www.autism.org.uk/living-with-autism/at-home/coping-with-christmas.aspx


Have a restful Christmas.

That is very useful, thanks

ivfmummy

I'm glad you found the link useful. I thought it was good.


sh1305 - The National Autistic Society website is really useful for information. They also have a helpline you can ring. Another forum is The Wrong Planet you might find lots of support and help there. It must be a relief in a way to have a diagnosis. I wish you all the best and hope you can with the right support return to college.

Indie_Kid

ivfmummy wrote: »

I'm glad you found the link useful. I thought it was good.


sh1305 - The National Autistic Society website is really useful for information. They also have a helpline you can ring. Another forum is The Wrong Planet you might find lots of support and help there. It must be a relief in a way to have a diagnosis. I wish you all the best and hope you can with the right support return to college.

Thank you. Have tried NAS before and they were useless. I asked them about advice for college and they sent me to the wrong department. After pointing out it was an education issue and not benefits, I received no further help from them.:mad:

Having spoke to a friend, he said that NAS tend to help parents of Autistic children, rather than Autistic adults.

I was a member of Wrong Planet for a while. I then had to leave because they decided to bring in that stupid captch thing, which is inaccessible to me, as I am hearing and sight impaired. I did mention on the forum that it's inaccessible and was told to click on the icon so it talked instead. I then got no response when I pointed out that's no good because of my hearing.

Dontknowanymore

Hi
I'm after some friendly advice, I have an almost 10 year old son who has issues, to cut a long story short, 4 years ago we had to flee DV, and moved around a bit due to social services making us, we have now been settled back in my home town for just over 2 years now and he has been attending the same school for about 18 months (he previously had 4 or 5) Now I know this would have an impact on his behaviour and development but the issues I am focusing on have been going on since befor I even got with my violent ex.
Last March/April after a very emotional parents evening (me breaking down and telling the teacher the difficulties we have at home) the school SENCO thought it a good idea to get a referral to the peadeatritian as she thinks there may be an underlying element to his impulsive behaviour. For a while I had it in my head for possible ADD, but then I am always second guessing myself in my head, I don't want to be seen as labelling my son unnessisarily.

Fast forward to 2 weeks ago, and a meeting with the SENCO, school teacher, deputy head, peadiatritian, home school link worker and another speacial needs type lady who does one to one sessions with my boy, it was a bit of an eye opener and I was quite gutted to hear how hard my son finds it to 'fit' in at school, he seems to be the target of a couple of the so called popular kids, who subtely wind him up until he explodes, then he gets in to trouble. He doesn't have many 'friends' as such as his social skills are extremely poor, he is almost unable to sustain friendships, (infact he seems to get on better playing with younger children) cannot join in with games without it blowing up (although the teacher said some of the children do often change rules and such like to enable him to join in) he can come accross as extremely selfish and self centred, literally if it doesn't interest him then it doesn't exisit, has a huge sense of injustice and really struggles to control his temper, he's not violent often, he mainly runs off, at school he runs out of class, at home he runs out of the room.
He obsesses over things, right now it's Harry potter, he has watched the box set over and over, reads all the books over and over and knows so many facts on it, the last obsession was the delorean car and back to the future, LEGO was a huge obsession until he got the Xbox, and Minecraft is something that would be his main obsession if I let him on the Xbox for more than 1.5 hours a day.
Even I struggle to have a conversation with him, no eye contact, he seems so awkward and regularly starts his conversation/sentance with "no, but" which I don't get? He constantly interupts and seems not to even realise it's wrong, often pulling apart what someone has said, disecting it, then repeating it as if he needs it confirmed in laymans, when it's been said in a simpler term in the first place. And one which does actually grate on me, he will ask the most random questions mid conversation and sometimes will ask me the same thing numerous times in a small space of time even though he knows the answer (such as what time we are going out, where we are going, what are we having for dinner etc etc) oh and he will ask me on a monday morning, what we are doing the next day?

Anyway, the other day I receieved a questionarre to fill out regarding aspergers, I had alomst no knowledge of this so had a look around, and he does rate quite highly on a lot of it, more so than the ADD to be honest.
I dont really know where to go from here, I got the feeling the doctor just seems to think his difficulties are due to our past history, infact it was the school link worker who spoke up for me and mentioned looking at other avenues too, thats when she sent out the aspergers booklet.
I just dont really know what to do, we struggle at home (I have a 5 year old who is just awful at home sometimes, yet a model pupil at school) and I feel like I am constantly telling them off, just now my son has come in from playing outside on his own, he's dropped his match attack cards in the mud and demands I buy him a new set, I refused and explained to him that he shouldn't of had them outside but he wont have it, now it's the muds fault???????? total meltdown and I feel like throwing the poxy things in the bin.
Why I have posted this I don't know, I don't even know if there is anything wrong with my boy, I am seeking help from a DV outreach team to see if we can get help regarding the past.

xxlouisexx56

My 8 yr old dd (8 last month) got her period on Friday.u

She's been diagnosed with asd since she was 4.

I am heartbroken

Indie_Kid

Dontknowanymore wrote: »

and he will ask me on a monday morning, what we are doing the next day?

He may be doing this because many Autistic people need routine. It hopefully means for him, you're not telling him at the last minute "we're doing this now".

Anyway, the other day I receieved a questionarre to fill out regarding aspergers, I had alomst no knowledge of this so had a look around, and he does rate quite highly on a lot of it, more so than the ADD to be honest.

Can you talk to the school regarding the questionnaire? You probably find he has issues that you may not know and by asking the school, you're getting a better picture of his problems and needs.

Dontknowanymore

Indie_Kid wrote: »

He may be doing this because many Autistic people need routine. It hopefully means for him, you're not telling him at the last minute "we're doing this now".



Can you talk to the school regarding the questionnaire? You probably find he has issues that you may not know and by asking the school, you're getting a better picture of his problems and needs.

Thanks.
The school have been sent a questionnaire, it was actually the school SENCO who suggested he be seen by the doc last year.
We had a big meeting a couple of weeks ago, this is where the aspergers questionnaire has come from.
Routine? He had a hissy fit this morning because I asked him to make breakfast 15 mins earlier than is on the 'timetable' we have. My fault, I have recently started a new job and haven't changed it

Dontknowanymore

But then other times I watch him and he seems so 'normal' for want of a better word.

Indie_Kid

Dontknowanymore wrote: »

But then other times I watch him and he seems so 'normal' for want of a better word.

He's probably faking acting normal. Some of us do this.