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Aspergers/ASD support thread

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  • Hi ivfmummy!
    Didn't know 2nd April was Autism Day, thankyou for the info. :)
    Shelly x
  • raq
    raq Posts: 1,716 Forumite
    no me neither about the 2nd april
    :A Tomorrow's just another day - keep smiling
  • JellyBox
    JellyBox Posts: 241 Forumite
    100 Posts
    Hi, will do that, think it will help to talk to other parents in the same position, as much as I love him it is very difficult sometimes, especially when he wants to talk about pokemon non-stop for about 90 mins!
    Thanks for your advice

    For the special interest chat, would it help to have a set time each day in which you will be totally available to listen to it, perhaps limited to half an hour? That way your son gets his chance to tell you about the most exciting thing ever, but you (and the rest of your family) get to function every day without having to put him off or make him feel abandoned when you can't listen due to the rest of life! Doing this has helped me when I'm working with teens with Aspergers, I allow them a slot in which I will listen fully, but it's on the understanding (explicitly put) that that will be the only time I will listen to talk on that topic. I've found it has helped me to get on with my work, and helped them to be able to focus on something other than that one topic.
  • Thanks, to put time aside is a really great idea, I think as a family (he has a grown up sister and brother) we just stop what we are doing and listen to him as much as we can but then you find yourself drifting/switching off because it is just too much!
    Will definately do that, thanks again
    Shelly
  • ivfmummy
    ivfmummy Posts: 219 Forumite
    Happy world autism day. Hope you have a lovely day.

    xxx
  • nlj1520
    nlj1520 Posts: 619 Forumite
    I've just found this thread and am delighted! My son is 21 with autism and learning difficulties. He used to be very challenging, but now living alone with support workers 24/7 he has flourished. He was classified informally as an elective mute, but now talks whenever he is relaxed enough. It has been a long and very hard road to get to this point, but seeing him now (and i do at least once a week) makes it all worthwhile. I doubt he'll ever be employable, but he has learnt to wash up, wash his clothes, hoover and sweep the kitchen floor. He loves any physical activity.....riding his bike, trampolining, swimming, rock climbing, long, long walks etc. I think this is partly a stress-reliever for him and partly gives him great sensory feedback from his body.
    Just wondering if those on here with relatives with aspergers have explored the exercise route.....not team games obviously, but things like trampolining? It's been a huge benefit to my son and hope it might be to someone's relative on here.
    'Do not follow where the path may lead. Go instead where there is no path and leave a trail. Only those who will risk going too far can possibly find out how far one can go.' T S Eliot
  • ivfmummy
    ivfmummy Posts: 219 Forumite
    It's good to hear from people with older children with autism. It can be so worrying when they are young. I just hope the provision is just as good in the future.
  • ivfmummy
    ivfmummy Posts: 219 Forumite
    I've just ordered some seamless socks from the sock shop with free delivery. I just hope they work. Anyone tried them?
  • Frith
    Frith Posts: 8,738 Forumite
    Part of the Furniture 1,000 Posts Mortgage-free Glee! Name Dropper
    My smaller son was diagnosed with Aspergers Syndrome this morning. He is 9 and already in a short stay school so I am not shocked by the news.

    Just wanted to say hello!
  • Hi Frith,

    Sounds like you have taken the news well, you sound very brave!
    my son has been at the hospital all morning for assessment with Occupational and Physio therapist as part of his Aspergers diagnosis. They made some good suggestions such as using a grip and wedge to make his writing easier and some sporting activities that he may enjoy (trampolining).
    I wasn't suprised when the Dr mentioned aspergers but still had a little cry, think it was relief more than anything that he will get some help. My son is 9 too. Wishing you and all the other parents all the best :)
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