Aspergers/ASD support thread

Savvy_Sue

Sammie_03 wrote: »

Thanks for your replies. We had patents evening next month so I think I will speak to his teacher and make a dr's appointment. I will write a list so I don't forget anything!! I forgot to add on here he does not like large groups, he prefers to play with a couple of people and also he is extremely clumsy (not sure if that's just him though !!) he will fall down stairs, trip over coming in the door etc regularly.
I will read through the thread today as I'm sure that it can help me. Thanks again.

I really would suggest NOT waiting until parents evening and then taking a list! You get such a short time, and there's little privacy (at least when mine were smaller).

If you've got concerns, ask for an appointment now. They've been back at school at least a month, and if things haven't settled down yet then it seems to me that this should be discussed.

debbieblueeyes

I hope you all don't mind if i join this thread as i have a 9 year old aspergers son. He was finally diagnosed last july, it took them 3/4 years to get the final diagnosis. Weve only received his statement of sen 2 weeks ago (after waiting 6months).
Ive always thought there was something different about my boy,he was a very good baby, quiet, didn't play like all the other kids at nursery,he learned the alphabet in 2/3 days :T , he started to get really grumpy at infant school and started the meltdowns,he hit himself, banged his head on the wall or floor. We found out he was being teased,goded,folowed,made fun of,by the other kids especially one certain boy, my son started punching this certain boy, and my son was excluded (because they don't tollerate violence or bullying, i know go figure) this certain boy was running home to mummy saying that my son was punching him for nothing. Anyway i finally changed schools as they were not doing anything about it. Started in year 2 absolutly fine he was settling finally. and then one day a boy came to the same class who looked like the boy who was teasing ,goding my son in the last school, of course it wasnt him, but it bought back everything that happened .it took 6 weeks to calm my son. anyway the problems have carried on,my son hasnt hit any of the other kids but hes tipped tables ripped work off the walls,year 3 was particularly bad as the teacher "turned a blind eye"to what the kids were doing to my boy. my son has been excluded quite a few times now in this presant school. the headmaster has left and the year 3 teacher(bad ofsted report)we have a better teacher in year 4 now but my son is still having problems,still no 1-1 support as yet. Now i want my son to go to a SEN school but im going to have another fight to change the named school on his statement. Anyway i have to go n collect my boy (hate collecting him as i dont know wether im going to be called in "for a chat") so ill log off for now.:) BE STRONG To you allxxx

Purleygirl

My son has AS and when he was little he refused to wear tops with "claws" in them. What he meant was labels but they felt like claws to him. As people with AS have very sensitive skin it could well be the labels that is bothering her, my son is now 18 and all labels are taken out as they still bother him. Maybe if she chose the underwear herself and if you cut out the labels that might help. Just a thought.

seven-day-weekend

More good news for my son, he is now being considered for fishmongery at Morrisons, which is a much better hourly rate than Oven Fresh where he is at the moment and there is also a chance that his hours may be upped to full-time (he does 24 hours at the moment). Keeping everything crossed!!

couponchaos

Hi all, my DS has been recently diagnosed with Aspergers after a pretty traumatic few months behaviour wise after starting secondary school. He also has ADHD which was formally diagnosed at 6. I received my report from the psychologist and child psychiatrist who diagnosed him a few days ago, and really am wondering where do I go from here? I've arranged an appointment with his SENco at school next week, do I need to do anything else, or wait until after that. Any advice would be great.

Savvy_Sue

Personally, I'd get a copy of 'Asperger Syndrome: a guide for parents and teachers' - if I remember who by I'll drop back but no time to look it up. Very readable and helpful.

Also look at resources on NAS website for Aspergers. You may find yourself going "Ah! so that's why he ..."

couponchaos

Savvy_Sue wrote: »

Personally, I'd get a copy of 'Asperger Syndrome: a guide for parents and teachers' - if I remember who by I'll drop back but no time to look it up. Very readable and helpful.

Also look at resources on NAS website for Aspergers. You may find yourself going "Ah! so that's why he ..."

Thank you, I will have a read of the website, and the book sounds good. Am also trying to research local support groups etc, but not finding too much for where we live.

Savvy_Sue

OK, the book is actually called Asperger's Syndrome: A Guide for Parents and Professionals, and it's by Tony Attwood.

You'd be able to order it from your local library, of course, but you might well want your own copy!

exarmydreamer

Jessica kingsley publishers sell this books as well as other really good info on the autistic spectrum. https://www.jkp.com they are specialists in selling ASD information.

sulkisu

Can anyone help with this please? My son is 25 months old and not talking as much as he should be. He has about 35 words now and not putting two words together, so has been referred for speech therapy. I asked for him to be tested for autism, as it's the first thing that comes up whenever I Google search speech delays. However, apart from a few occasional stimming behaviours - walks on his toes and flaps his hand when excited - the only other sign of Autism is that he doesn't point to things.

He plays well with other children, makes eye contact, eats a wide range of foods, doesn't line up toys obsessively, sleeps well and doesn't need to stick to a particular routine. Although he doesn't point at things, he will takes me by the hand and leads me to things or he brings them to me. If we look at a book, he doesn't point to pictures. Every book says that this is a red flag for Autism. My doctor doesn't think that he is, although she has agreed to him being tested.

I can't find anything which explains the significance of not pointing - is it a physical problem which suggests autism or is it more complicated than that.