Aspergers/ASD support thread

Happy_Girl_2

I've posted on this thread before, but I am an adult Aspie who only discovered I was an Aspie 4 months ago

I have been writing a blog about my experiences of Aspergers, and my traits as I see them

I would welcome any comme nts and observations from others who wish to read my blog. I can't advertise my own site here, so please PM me if you would like to read it, and I will give you the link

Mandles

pegasus78 wrote: »

Thanks for the replies blue_monkey and Mandles.

Things seem to get worse had in-laws over for sunday dinner,could not bring himself to be in the same room as his grandad(never been alone together has always enjoyed his company before) Spent the afternoon hiding under the table.

Eldest daughter is getting exteremely frustrated as he will no longer speak to her tells her to go away and then kicks and hits until she does,then its tears on both sides.

Doesn't have much junk to eat try to homecook and if they have puddings or sweets its rare, and we do try to avoid dairy as he has excema,

Love him to bits but am unsure how other people will take to him.

If he has got ASD you will have help, possibly financially and possibly extra help at school and lots of advice. Once mine got diagnosed everything changed. My lad has always been worse with people who look at him and try to talk to him the minute they come in the house. He is always best if you ignore him for a bit and let him come up to you. A lot of Aspies i know say the same, arriving somewhere or people arriving is quite hard and they need time to adjust to it. Maybe that was your sons problem? Too much noise, too much happening, strong smells, they all really can affect them as all these senses are higher in them than normal.

My lad used to say shut up at least every 5 minutes, every single day(no exaggertion!) Used to smash his head on the floor at home, on the car window and chair if i drove past somewhere he wanted to go to.Tantrums had to be seen to be believed. I learnt a lot of stratergies , like distraction which helped end this. Also he went from attacking me daily to not attacking me at all in one week!! (diet change, omega 3 and reducing tv may also have helped)

My lad hates his older sister now but only because she cannot leave him alone. She needs to hug him and kiss him but he is always cuddling me and his older brother as we know to give him space and time and hold back even though we would love to just grab him and cuddle him. Maybe your daughter needs to learn this although it must be hard for her .

Hopefully his communication will get better and if it does this is a really good turning point as things have got better at home for us now DS's understanding has got better.So it is early days yet for your little boy so just keep that in mind.

I am sure other people will love him too.You will always get looks from people in shops or out. I just ignore them now although he has got a bit better in shops. Maybe give your family some leaflets about ASD to help them understand him better(if that is what he has , which sounds like it)

Happy_Girl_2

Thank you to the people who have PM'd me for my blog address, and for reading and leaving comments

If anyone else would like to read it, I have now put the url in my MSE profile, so you will be able to link to it from there. The blog is me writing about my experiences and observations of Aspergers, as an adult only recently being made aware that I am an aspie. The feedback I am getting back suggests that it is helpful reading for not only those with AS themselves, but for carers and close allies of aspies too

Please do leave comments, even if you disagree with my experiences. Every comment helps to build the blog as a resource for the AS community

Thanks HG x

clumsymoo

Brenny,
I am familiar with this as have had several AS children through my Nursery. Also my son has ADHD and behavioral problems, but was origionaly tested for AS and has some AS traits including the sensory ones. I used to have to cut all labbles out of clothes and is very oraly sensitive and to loud sounds too. He is 14 now and has learned to deal with things much better.
Anyhoo enough about my son.

The stripping off can be exascerbated by stressful situations so try to as stay calm as possible. (harder done than said)

Many AS children have what is known as Sensory intrgrative dysfunction.

Try turning underwear/clothes inside out as it will be the seams that she can feel. I would also experiment with boxers or silky french knicker style. (I know she is 7 so sizing might be tricky) It is going to be trial and error. Good luck.
I hope the school are being helpful and that they have a good SEN team. They should be working with you to find solutions adapting their uniform code if need be.

I have a brilliant book called 'Freaks, geeks and Asperger Syndrome' A user guide to adolescence.
written by Luke Jackson who is a teenager who has AS and comes from a family where 3 of them are on the spectrum. There was a brilliant documentry a few years back about them. Inspirational.
It is brilliantly written (I read it in an evening) and as it is from his perspective it gives a real inside view. See if your library has a copy.
I wish you and your Grandaughter well.
X

blether_2

Hi There, my son has AS, and also has sensory issues. On Facebook there is a support page "Asperger's Awareness page" which has nearly 25,000 members. It has so much information advice and support. Recently there was a topic Re:Clothing and someone had posted a link to a site that sells items such as seamless clothes. I've had a look but, can't see it just now.
If I find it, i'll post it.

Mandles

clumsymoo wrote: »

Brenny,
I am familiar with this as have had several AS children through my Nursery. Also my son has ADHD and behavioral problems, but was origionaly tested for AS and has some AS traits including the sensory ones. I used to have to cut all labbles out of clothes and is very oraly sensitive and to loud sounds too. He is 14 now and has learned to deal with things much better.
Anyhoo enough about my son.

The stripping off can be exascerbated by stressful situations so try to as stay calm as possible. (harder done than said)

Many AS children have what is known as Sensory intrgrative dysfunction.

Try turning underwear/clothes inside out as it will be the seams that she can feel. I would also experiment with boxers or silky french knicker style. (I know she is 7 so sizing might be tricky) It is going to be trial and error. Good luck.
I hope the school are being helpful and that they have a good SEN team. They should be working with you to find solutions adapting their uniform code if need be.

I have a brilliant book called 'Freaks, geeks and Asperger Syndrome' A user guide to adolescence.
written by Luke Jackson who is a teenager who has AS and comes from a family where 3 of them are on the spectrum. There was a brilliant documentry a few years back about them. Inspirational.
It is brilliantly written (I read it in an evening) and as it is from his perspective it gives a real inside view. See if your library has a copy.
I wish you and your Grandaughter well.
X

Brenny wrote that question over 4 years ago now!:D I think he/she has probably solved that problem by now. This has been used as the ASD thread ever since. Thanks for your reply though.

3onitsway

Hi all - i posted a while back about an incredibly expensive 'specialist' holiday we went on for my autistic 13 year old - which all went terribly wrong

Since then, i've got nowhere with each person in the organisation passing the buck to another.

So if anyone is interested, or as a warning before paying out ridiculous amounts on something for yourself/your child, read my facebook page:

http://www.facebook.com/group.php?gid=134560079921817&v=app_2373072738&ref=mf#!/topic.php?uid=134560079921817&topic=116

julie03

my sister has a 11 yr old girl who shows some signs of having ASD,
she gets very anxious if out of routine
doesnt get jokes or sarcasm
has needed 1 to 1 help at school for the last yr and in sats had a teacher sit and explain every question to her
has terrible concentration
develops obbsessions at the moment is twilight

my son is dyspraxic and has suspected aspergers and i cant remember who she should ask to be refered to. i also told her to talk to the sen co-ordinator at the new school to discuss her needs as my sister is now worried by her starting high school. i have never had to really push for anything, as i had a very supportive GP and health visitor. if she goes back to her GP who she ask to assess her daughter

thanks

Savvy_Sue

I think it's CAMHS - Child and Adolescent Mental Health Service, but don't be alarmed by the name, they cover all sorts of 'issues'.

Your sister might also find the Tony Attwood books useful. I've only got the older one, but 'The complete guide' is more recent.

seven-day-weekend

Just to tell everyone, today my son has been made redundant from his job at Matalan (everyone in that particular store has) - it closes in nine weeks.

Hope he can get something else during this period of high unemployment.