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Aspergers/ASD support thread
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Glad that you are making some progress (albeit slow), its really frustrating that we are so near the end of term, doesn't give you any time to get things moving.I'm not a failure if I don't make it, I'm a success because I :tried!0
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Hi I'm hoping somone on here can give me some guidance.
DS is 10, He was statemented 12 months ago and then was moved to a special school for children with social, emotional and behavioural difficulties. His old and new school believe he may be on the Autistic Spectrum. After waiting for over 12 months and seeing no one we have finally got an appointment to go for an initial consultation with the local ASD team, they have already been into school to assess him last week.
What i wanted to know is both me and my partner have not got a clue what to expect, they have sent us a questionairre to fill in and just wondered if anyone can shed any light on what will happen at this appointment.
Thanks0 -
mad - http://www.autism.org.uk/about-autism/all-about-diagnosis/diagnosis-the-process-for-children.aspx may help you.Sealed pot challenge #232. Gold stars from Sue-UU - :staradmin :staradmin £75.29 banked
50p saver #40 £20 banked
Virtual sealed pot #178 £80.250 -
mad_as_a_march_hare wrote: »Hi I'm hoping somone on here can give me some guidance.
DS is 10, He was statemented 12 months ago and then was moved to a special school for children with social, emotional and behavioural difficulties. His old and new school believe he may be on the Autistic Spectrum. After waiting for over 12 months and seeing no one we have finally got an appointment to go for an initial consultation with the local ASD team, they have already been into school to assess him last week.
What i wanted to know is both me and my partner have not got a clue what to expect, they have sent us a questionairre to fill in and just wondered if anyone can shed any light on what will happen at this appointment.
Thanks
I gather it varies from team to team and from area from area, but generally speaking you will be asked a lot more questions about DS and how he acts, interacts, his development history etc. They will also ask, or try to ask DS questions about any problems he feels he has and observe the way he answers and reacts.
If you feel unconfortable talking about DS in his presence, you can ask to make another appointment which you will attend without him, in order to be able to speak more freely. Also, you may find - I certainly did - that you are asked so many questions that you can not think of any answers to immediately, yet the moment you walk out the door you will start remembering answers. Take a notebook, and write any questions you need to think about down during the appointment, then write the answers later on as they occur to you and take them in to your next appointment, or send them straight to the team. The more information you can provide, the less time it will take for the assesment to be completed.
Be prepared for a long, long wait. It could take numerous appointments before they are happy to give an opinion one way or another, and there can be many months wait between appointments. It is not uncommon for a diagnosis to take years from the initial appointment. If DS - or you - are really struggling, do not feel that you have to sit there and wait for a diagnosis - ask what help is available while you wait for a diagnosis or otherwise.
If you would like to know more about ASDs, whether in order to help you make your mind up as to whether they are barking up a wrong tree or not, or just to look for any advice and help, I can not recomment Tony Attwood's Complete Guide to Asperger's Syndrome enough - that is the Bible for people with ASDs, and a book that completely changed my family's life - for the better.
And good luck !
Oh, and hello to all who read this threadI will try to introduce myself properly when I have a bit more time....
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Oh dear, we have upset our son.:(
We are in the UK at the moment and have been doing some gardening. We took out from the front garden a particular large sculptural phormium plant which was past its best, took it to the tip and replaced it with a rose bush.
When Ben came home from work he was horrified. he didn't want it moved or thrown away as he 'liked it'. Things got worse when he went into the back garden and found we had removed the large weeds and altered the garden slightly. He didn't want the weeds out, he wanted them left as they were.
He had been alright the day before about removing a dead palm tree and even helped my husband saw it down; this I think was becasuse he had been warned it would happen.
We forgot today how people with Aspergers's Syndrome often hate change.
I think he has forgiven us though.(AKA HRH_MUngo)
Member #10 of £2 savers club
Imagine someone holding forth on biology whose only knowledge of the subject is the Book of British Birds, and you have a rough idea of what it feels like to read Richard Dawkins on theology: Terry Eagleton0 -
www.asperger-syndrome.me.uk is a website that offers help and support to people with or effected by asperger Syndrome. there information about the condition along with way to help and cope plus alot more information that might be useful0
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hello, does anyone receive carers allowance on behalf of looking after someone with asd, if so how did they go about it, i would be grateful for any response0
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hi all,
not been on this thread for a while. DS is getting worse since he hasnt been at school. They will only have him an hour a day, and even then they send him home. All the ASD schools have no places and 2 wont even let me view until at least september.
Has anyone else had this, im seriously thinking about going to the paper because the coucil are as much use as a chocolate tea pot. They dont seem to care my DS hasnt had an education for 2 years. Im still working, trying to clear debts asap so i can stop work, just seems impossible with DS behaving the way he is. He is going to end up so depressed soon, if hes not already.
Just dont know where to turn, or who to go to for help anymore, im so sad for my DS.0 -
hello, does anyone receive carers allowance on behalf of looking after someone with asd, if so how did they go about it, i would be grateful for any response
The person you're caring for needs to be on mid or high care DLA.
http://www.direct.gov.uk/en/caringforsomeone/moneymatters/dg_10012522Sealed pot challenge #232. Gold stars from Sue-UU - :staradmin :staradmin £75.29 banked
50p saver #40 £20 banked
Virtual sealed pot #178 £80.250 -
hello, does anyone receive carers allowance on behalf of looking after someone with asd, if so how did they go about it, i would be grateful for any response
i get carers for my son and you can apply online at http://www.dwp.gov.uk/carersallowance/0
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